Remote Monitoring in Myasthenia Gravis: Exploring Symptom Variability
ABSTRACT Background Myasthenia gravis (MG) is a rare, autoimmune disorder characterized by fluctuating muscle weakness and potential life‐threatening crises. While continuous specialized care is essential, access barriers often delay timely interventions. To address this, we developed MyaLink, a telemedical platform for MG patients.
Maike Stein +13 more
wiley +1 more source
Research and Practice of AI Ethics: A Case Study Approach Juxtaposing Academic Discourse with Organisational Reality. [PDF]
Ryan M +5 more
europepmc +1 more source
Whole‐Body Pattern of Muscle Degeneration and Progression in Sarcoglycanopathies
ABSTRACT Objective To characterize whole‐body intramuscular fat distribution pattern in patients with sarcoglycanopathies and explore correlations with disease severity, duration and age at onset. Methods Retrospective, cross‐sectional, multicentric study enrolling patients with variants in one of the four sarcoglycan genes who underwent whole‐body ...
Laura Costa‐Comellas +39 more
wiley +1 more source
Academic and Professional Discourse in Translation
The translation of specialized texts, represents a challenging process, due to the terminological complexity as well as the necessity to relate the translation to a certain textual typology. The study will be divided into two main parts.
Ana-Maria Mangher (Chitac)
doaj
[Academic discourse on the emotionally loaded topic of mouth-nose covering in children]. [PDF]
Hansen G +3 more
europepmc +1 more source
Modelling the flow of discourse in a corpus of written academic English [PDF]
Discourse studies attempt to describe how context affects text, and how text progresses from one sentence to the next. Systemic Functional Linguistics (SFL) offers a model of language to describe how information flow varies according to context and co ...
Moore, Nicolas
core
Remote Assessment of Ataxia Severity in SCA3 Across Multiple Centers and Time Points
ABSTRACT Objective Spinocerebellar ataxia type 3 (SCA3) is a genetically defined ataxia. The Scale for Assessment and Rating of Ataxia (SARA) is a clinician‐reported outcome that measures ataxia severity at a single time point. In its standard application, SARA fails to capture short‐term fluctuations, limiting its sensitivity in trials.
Marcus Grobe‐Einsler +20 more
wiley +1 more source
Persuasion in academic discourse
This chapter studies persuasion in academic book reviews from a cross-cultural perspective. After discussing the rhetorical structure of book reviews, the study explores the strategic means used by the authors of reviews to represent themselves as expert members of the disciplinary community, show authorial involvement, and open a dialogic space for ...
openaire +1 more source
Sport Mega Events and the Need for Critical Sociological Research: the Case of Euro 2012 [PDF]
Euro 2012 was the first Sport Mega Event held in Poland. It has been presented in public discourse in Poland as unprecedented opportunity for modernization and unquestionable success.
Woźniak, Wojciech
core
Value of MRI Outcomes for Preventive and Early‐Stage Trials in Spinocerebellar Ataxias 1 and 3
ABSTRACT Objective To examine the value of MRI outcomes as endpoints for preventive and early‐stage trials of two polyglutamine spinocerebellar ataxias (SCAs). Methods A cohort of 100 participants (23 SCA1, 63 SCA3, median Scale for the Assessment and Rating of Ataxia (SARA) score = 5, 42% preataxic, and 14 gene‐negative controls) was scanned at 3T up ...
Thiago J. R. Rezende +26 more
wiley +1 more source

