Providing Secure Access to Confidential Patient Information Detailing Diabetic Condition [PDF]
, 2001 Can secure access be granted to confidential patient records using the Internet? Our study has involved providing distributed access to one such confidential information database in a United Kingdom (UK) secondary care (hospital) organisation.
McDowell, D.M. +3 more
core
Exceptions, limitations and collective management of rights as vehicles for access to information [PDF]
, 2013 Copyright law reflects a balance between the competing interests of protection and access. It is often held that this balance has been disturbed by recent technological and related legal developments.
Axhamn, Johan, Axhamn, Johan,
core +1 more source
An [Imperfect] Case for Dyadic Research in Pediatric Psychosocial Oncology
Pediatric Blood &Cancer, EarlyView.
Stephanie M. Nanos +2 more
wiley +1 more source
The Role of “Adult‐Onset” Cancer Predisposition Genes in Pediatric Cancer: A Comprehensive Review
Pediatric Blood &Cancer, EarlyView.ABSTRACT Current literature estimates that 10% of pediatric cancers are caused by pathogenic or likely pathogenic (P/LP) germline variants in cancer predisposition genes (CPGs). Variants in CPGs thought to increase cancer risk exclusively during adulthood are referred to as “adult‐onset” CPGs (aoCPGs).
Maria Rozo +5 more
wiley +1 more source
Washington State Access to Justice Technology Principles [PDF]
, 2004 This statement presumes a broad definition of access to justice, which includes the meaningful opportunity, directly or through other persons: (1) to assert a claim or defense and to create, enforce, modify, or discharge a legal obligation in any forum; (
Washington State Access to Justice Board,
core +1 more source
Health Literacy, Self‐Efficacy and Knowledge of Sickle Cell Disease Among Caregivers
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Sickle cell disease (SCD) is a hereditary blood disorder in which abnormal haemoglobin leads to severe anaemia, painful crises and organ failure. Caregivers’ health literacy (HL) – their ability to assess, understand and apply information, and interact with healthcare professionals – is crucial for managing children with SCD, yet ...
Melanie Bruinooge +6 more
wiley +1 more source
SIPP ACCESS: Information tools improve access to national longitudinal panel surveys [PDF]
, 1988 SIPP ACCESS represents an innovation in providing services for statistical data. A computer-based, integrated information system incorporates both the data and information about the data.
Robbin, Alice, David, Martin
core
Facilitating Open Access to Information: A Community Approach to Open Education and Open Textbooks [PDF]
, 2019 Access to information as a necessary precondition for human flourishing is recognized explicitly in the UNESCO Strategic Development Goals, and mirrored by the work of universities globally to reduce barriers to information, especially research outputs ...
Stagg, Adrian +3 more
core +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Leukemia is the most common childhood cancer in Mexico, and acute lymphoblastic leukemia (ALL) is the most frequent subtype. Exposure to high concentrations of benzene has been associated with ALL incidence, particularly in urban areas. This study evaluated the relationship between distance to benzene emission sources and the number
Orlando Rivera Zurita +5 more
wiley +1 more source
Early Impact of Childhood Opportunity on Neurocognitive Outcomes in Sickle Cell Disease
Pediatric Blood &Cancer, EarlyView.ABSTRACT Introduction Neurocognitive impairment is a well‐recognized complication of sickle cell disease (SCD) that begins early in childhood and persists across development. While cerebrovascular injury contributes substantially to risk, neurocognitive deficits are also observed in children without overt or silent cerebral infarctions, suggesting ...
Julia E. LaMotte +5 more
wiley +1 more source