Results 41 to 50 of about 21,810 (253)

Prognostic Value of Neurofilament Light Chain and Glial Fibrillary Acidic Protein in ALD‐Related Myelopathy

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background X‐linked adrenoleukodystrophy (X‐ALD) is a neurometabolic disorder caused by pathogenic variants in ABCD1, leading to slowly progressive spinal cord disease in nearly all affected men. Sensitive biomarkers to quantify disease severity and predict progression are needed for clinical care and trial design.
Eda G. Kabak, Marije M. C. Voermans, Hans Heijst, Charlotte E. Teunissen, Marc Engelen   +4 more
wiley   +1 more source

Administrative contracts according to the General Administrative Procedure Act [PDF]

Zbornik Radova: Pravni Fakultet u Novom Sadu, 2017
In 2016 the Republic of Serbia passed the new General Administrative Procedure Act, which regulate administrative contract as a new legal institute, with only five articles. The paper presents the problems that brings this way of legal regulation.
Miljić Dražen S.
doaj  

New Forms of Public Administration Activity in Poland after 1989 as an Attempt of Realization Current Social Demands [PDF]

Polish Political Science Yearbook, 2019
The deep changes in Polish legal system and economy that took place after 1989 contributed to the emergence of new challenges for public administration.
Paulina Bieś-Srokosz
doaj   +1 more source

Onasemnogene Abeparvovec in Patients With SMA: Interim Results of the RESTORE Registry in Japan

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective There are limited real‐world data regarding the safety and effectiveness of onasemnogene abeparvovec (OA; Zolgensma) infusion, a one‐time gene replacement therapy, for Japanese patients with spinal muscular atrophy (SMA). We aimed to improve understanding of the real‐world outcomes for OA in Japan.
Kayoko Saito, Kamal Benguerba, Ken Tsuchida, Kazushige Yazawa, Isao Tsumiyama, Hiromitsu Kayama, Sandra P. Reyna, Farid Khan, Richard S. Finkel   +8 more
wiley   +1 more source

Differential Item Functioning on the Patient Health Questionnaire 8 by Disease Subtype, Language, Sex, and Age Among People With Systemic Sclerosis: A Scleroderma Patient‐Centered Intervention Network Cohort Study

Arthritis Care &Research, EarlyView.
Objective Somatic items used in depression assessments can potentially overlap with symptoms related to physical illness, including systemic sclerosis (SSc). No studies have looked at whether somatic depression items may be influenced by diffuse versus limited SSc disease subtypes, which are associated with varying degrees of symptom presentation.
Sophie Hu, Marie‐Eve Carrier, Marie‐Claude Geoffroy, Meira Golberg, Linda Kwakkenbos, Susan J. Bartlett, Catherine Fortuné, Amy Gietzen, Karen Gottesman, Geneviève Guillot, Laura K. Hummers, Amanda Lawrie‐Jones, Vanessa L. Malcarne, Michelle Richard, Maureen Sauvé, Luc Mouthon, Andrea Benedetti, Brett D. Thombs, on behalf of the SPIN Investigators, Claire E. Adams, Marie Hudson, Maureen D. Mayes, James Stempel, Robyn K. Wojeck, Christian Agard, Laurent Alric, Marc André, Floryan Beaslay, Elana J. Bernstein, Sabine Berthier, Lyne Bissonnette, Sophie Blaise, Eva Bories, Alessandra Bruns, Carlotta Cacciatore, Patricia Carreira, Marion Casadevall, Benjamin Chaigne, Lorinda Chung, Benjamin Crichi, Thylbert Deltombe, Christopher P. Denton, Tannvir Desroche, Robyn Domsic, James V. Dunne, Bertrand Dunogue, Regina Fare, Dominique Farge‐Bancel, Paul R. Fortin, Tracy Frech, Loraine Gauzère, Anne Gerber, Jessica K. Gordon, Brigitte Granel‐Rey, Aurélien Guffroy, Geneviève Gyger, Eric Hachulla, Daphna Harel, Monique Hinchcliff, Sabrina Hoa, Michael Hugues, Alena Ikic, Sindhu R. Johnson, Nader Khalidi, Kimberly S. Lakin, Marc Lambert, Maggie Larche, David Launay, Yvonne C. Lee, Paul Legendre, Catarina Leite, Hélène Maillard, Nancy Maltez, Joanne Manning, Isabelle Marie, Maria Martin Lopez, Thierry Martin, Ariel Masetto, Arsène Mekinian, Sheila Melchor Díaz, Morgane Mourguet, Christelle Nguyen, Karen Nielsen, Mandana Nikpour, Louis Olagne, Vincent Poindron, Janet Pope, Susanna Proudman, Grégory Pugnet, Loïc Raffray, François Rannou, Alexis Régent, Frederic Renou, Sébastien Rivière, David Robinson, Esther Rodríguez Almazar, Tatiana Sofia Rodríguez‐Reyna, Sophie Roux, Perrine Smets, Vincent Sobanski, Robert F. Spiera, Virginia Steen, Evelyn Sutton, Carter Thorne, Damien Vagner, John Varga, Pearce Wilcox, Vanessa Cook, Cassidy Dal Santo, Monica D'Onofrio, Elsa‐Lynn Nassar   +110 more
wiley   +1 more source

Validation of electronic bills of exchange in Iranian law by looking at American law in the light of UNCITRAL

حقوق فناوریهای نوین, 2023
lectronic bill of lading has a special place in commercial law today. On the one hand, in parallel with the observance of business principles, including the principle of the speed of business affairs, its electronification is also inevitable and requires
Ali Keshavarz, Ali Nakhjavani , naser alidoosti shahraki   +2 more
doaj  

أثر العقود الذكية المبرمة عبر تقنية البلوك تشين على تطوير العقود الإدارية: دراسة تحليلية مقارنة / The Impact of Smart Contracts Executed via Blockchain Technology on the Development of Administrative Contracts: A Comparative Analytical Study [PDF]

مجلة الشريعة والقانون بالقاهرة
 أضحت تقنية البلوك تشين محور اهتمام واسع نظرًا لقدرتها الهائلة على تأمين البيانات بشكل لامركزي، مما يعزز الشفافية والأمان في التعاملات الإلكترونية، وتعتمد هذه التقنية على نظام تشفير متقدم ينظم البيانات في سلاسل مترابطة، ما يجعلها أداة فعالة لتوثيق العقود،
عادل السيد محمد علي
doaj   +1 more source

Previous restrictions on contracting (in management contracts) [PDF]

آداب الرافدين, 1989
This research is part of a group of topics that reflect, in its entirety, the administration’s authority to choose its contractors, the extent of this authority, and what restrictions determine its scope, and from these limitations what this research ...
Ahmad Ghamas
doaj   +1 more source

High Health Care Utilization Preceding Diagnosis With Juvenile Idiopathic Arthritis

Arthritis Care &Research, EarlyView.
Objective Although early diagnosis improves long‐term outcomes, patients with juvenile idiopathic arthritis (JIA) often experience prolonged, circuitous paths to diagnosis. To inform diagnostic improvement, we sought to characterize health care utilization in the year preceding diagnosis. Methods We identified 10,021 patients with an incident diagnosis
Anna Costello, Rui Xiao, Xuemei Zhang, Jahan Jazayeri, Irit R. Rasooly, Pamela F. Weiss   +5 more
wiley   +1 more source

Contractul administrativ în activitatea administrației publice

Revista Transilvană de Ştiinţe Administrative, 2010
Romania’s adhesion to the European Union on 1 January 2007 determined deep changes in the legislation in matters of concessions, publicprivate partnership and volunteerism. Thus new regulations emerged, such as Government Emergency Ordinance no.
Ioan LAZĂR
doaj