Results 51 to 60 of about 137,969 (305)

Medisinsk behandling og bindende forhåndsønsker- Noe for Norge? : En oversikt og diskusjon om verdien av forhåndsønsker og pasientens rett til å oppnevne stedfortredende beslutningstaker [PDF]

, 2009
A patient’s opportunity to affect and participate in decision-making with regard to their own medical care is considered important. Most patients want some control over their medical care, including or even especially, when they are too sick to ...
Løitegård, Kjetil
core  

Personalized Selumetinib Dosing in Pediatric Neurofibromatosis Type 1: Insights From a Pilot Therapeutic Drug Monitoring Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Objective To evaluate selumetinib exposure using therapeutic drug monitoring (TDM) in pediatric patients with neurofibromatosis type 1 (NF1) and plexiform neurofibromas (PN), assess interpatient pharmacokinetic variability, and explore the relationship between drug exposure, clinical response, and adverse effects.
Janka Kovács, Zoltán Köllő, Balázs Gellért Karvaly, Mahmoud Obeidat, Rita Nagy, Péter Hegyi, Brigitta Teutsch, Eszter Tuboly, Miklós Garami   +8 more
wiley   +1 more source

Primary Healthcare NZ Nurses’ experiences of Advance Directives: Understanding Their Potential Role

Nursing Praxis in Aotearoa New Zealand, 2013
Advance directives are one aspect of advance care planning designed to improve end of life care. The New Zealand Nurses Organisation released their first mission statement in 2010 concerning advance directives suggesting an increase in the use of these ...
Raewyn Davidson, Elizabeth Banister, Kay de Vries   +2 more
doaj  

Adherence to Protocol Recommendations for Children With Wilms Tumour in Two Consecutive Studies in the United Kingdom and Ireland—Does Variation Matter?

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background and Aims Wilms tumour (WT) has excellent event‐free and overall survival (OS). However, small differences exist between countries participating in the same international study. This led us to examine variation in adherence to protocol recommendations as a potential contributing factor.
Suzanne Tugnait, R. Al‐Saadi, A. Lopez‐Cortes, K. Dzhuma, M. Oostveen, J. Brok, S. Irtan, M. Weeks, J. Bate, S. Baker, R. Williams, M. Powis, D. Saunders, O. Olsen, T. Watson, S. Shelmerdine, S. Vaidya, L. Howell, C. Duncan, G. M. Vujanic, C. Stiller, G. P. Balchin, T. Chowdhury, K. Pritchard‐Jones   +23 more
wiley   +1 more source

Advance Care Directives : A Herzl Clinic Quality Improvement Project

McGill Journal of Medicine, 2023
Background: Advance Care Planning has benefits for patients and is often optimal when done in the primary care setting. Unfortunately, it does not occur frequently or routinely. The goal of this project was to understand the challenges and barriers that
Dalia Eladas, Audrey Amar, Fatima Boulmalf, Leen Makki, Melanie Suissa, Kaba Tambadou, Fanny Hersson-Edery   +6 more
doaj   +1 more source

Sirolimus for Extracranial Arteriovenous Malformations: A Scoping Review of the Evidence in Syndromic and Non‐Syndromic Cases

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Arteriovenous malformations (AVMs) are rare, high‐flow, vascular anomalies that can occur either sporadically or as part of a genetic syndrome. AVMs can progress with serious morbidity and even mortality if left unchecked. Sirolimus is an mTOR inhibitor that is effective in low‐flow vascular malformations; however, its role in AVMs is unclear.
Will Swansson, Ingrid Winship, Gary Hammerschlag, Laura Scardamaglia   +3 more
wiley   +1 more source

Evaluating the Utility of Paired Tumor and Germline Targeted DNA Sequencing for Pediatric Oncology Patients: A Single Institution Report

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Objective To evaluate the diagnostic yield and utility of universal paired tumor–normal multigene panel sequencing in newly diagnosed pediatric solid and central nervous system (CNS) tumor patients and to compare the detection of germline pathogenic/likely pathogenic variants (PV/LPVs) against established clinical referral criteria for cancer ...
Natalie Waligorski, Rebecca Ronsley, Shannon M. Stasi, Jeffrey Stevens, Erin R. Rudzinski, Christina M. Lockwood, Sarah E. S. Leary, Bonnie L. Cole, Michelle A. Ting, Vera Paulson   +9 more
wiley   +1 more source

Direito dos pacientes às diretivas antecipadas de vontade

Revista Bioética
Resumo Este estudo investigou o conhecimento que 55 pacientes com doenças terminais tinham sobre seu diagnóstico, prognóstico e a possibilidade de registrar seus desejos no final de vida sob a forma de diretivas antecipadas de vontade.
Maria Aparecida Scottini, José Eduardo de Siqueira, Rachel Duarte Moritz   +2 more
doaj   +1 more source

Implementation of early will directives: facilities and difficulties experienced by palliative care teams

Revista Gaúcha de Enfermagem
Objective: To know the facilities and difficulties the palliative care team professionals experience in the implementation process of advance healthcare directives.
Aline Carniato Dalle Nogario, Edison Luiz Devos Barlem, Jamila Geri Tomaschewski-Barlem, Rosemary Silva da Silveira, Silvana Bastos Cogo, Deciane Pintanela de Carvalho   +5 more
doaj   +2 more sources

Advance directives in Austrian intensive care units: An analysis of prevalence and barriers

Resuscitation Plus, 2020
Purpose: To investigate the prevalence of advance directives, healthcare proxies, and legal representatives in Austrian intensive care units (ICUs), and to explore barriers faced by adults engaged in the contemplation and documentation phase of the ...
Markus Köstenberger, Svenja Diegelmann, Ralf Terlutter, Sonja Bidmon, Stefan Neuwersch, Rudolf Likar   +5 more
doaj   +1 more source