Impact of an Advance Care Planning Video Intervention on Care of Short‐Stay Nursing Home Patients
, 2020 Lacey Loomer +7 more
openalex +2 more sources
Transcending health literacy: using videos to aid advance care planning and healthcare decision-making [PDF]
, 2012 Chandra Vig +2 more
openalex +1 more source
Pediatric Feeding Disorder: Consensus Definition and Conceptual Framework [PDF]
, 2019 Pediatric feeding disorders (PFDs) lack a universally accepted definition. Feeding disorders require comprehensive assessment and treatment of 4 closely related, complementary domains (medical, psychosocial, and feeding skill-based systems and associated
Browne, Joe +14 more
core +1 more source
Remote Monitoring in Myasthenia Gravis: Exploring Symptom Variability
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Background Myasthenia gravis (MG) is a rare, autoimmune disorder characterized by fluctuating muscle weakness and potential life‐threatening crises. While continuous specialized care is essential, access barriers often delay timely interventions. To address this, we developed MyaLink, a telemedical platform for MG patients.
Maike Stein +13 more
wiley +1 more source
Association Between Region of Birth and Advance Care Planning Documentation Among Older Australian Migrant Communities: A Multi-Center Audit Study [PDF]
, 2020 Craig Sinclair +5 more
openalex
Adult‐Onset Subacute Sclerosing Panencephalitis Presenting With Subacute Cognitive Deficits
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT We describe the case of a 41‐year‐old man diagnosed with adult‐onset subacute sclerosing panencephalitis (SSPE). The patient presented with subacute progressive cognitive deficits and a neuropsychological profile indicating predominant frontoparietal dysfunction. MRI showed only mild parietal‐predominant cerebral atrophy.
Dennis Yeow +4 more
wiley +1 more source
PP12.001 Current state and nurses’ practical knowledge on advance care planning for patients with hematologic malignancies in Japan: a qualitative interview [PDF]
, 2023 Miki Fujimoto +2 more
openalex +1 more source
Applying an Ethical Lens to the Treatment of People With Multiple Sclerosis
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT The practice of neurology requires an understanding of clinical ethics for decision‐making. In multiple sclerosis (MS) care, there are a wide range of ethical considerations that may arise. These involve shared decision‐making around selection of a disease‐modifying therapy (DMT), risks and benefits of well‐studied medications in comparison to
Methma Udawatta, Farrah J. Mateen
wiley +1 more source