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Prospective multicentre cross-sectional audit among older Australians accessing health and residential aged care services: protocol for a national advance care directive prevalence study

open access: yesBMJ Open, 2019
Introduction Advance care planning (ACP), an ongoing communication and planning process, aims to clarify a person’s values and preferences, so these guide decision-making if the person becomes unable to make his or her own decisions. Ideally, ACP results
Karen M Detering   +6 more
doaj   +1 more source

Advance care planning in primary care [PDF]

open access: yesBMJ, 2006
O f the various trajectories of physical decline, organ failure is often the most difficult to plan for in advance because of its unpredictability.1 The qualitative study by Davison and Simpson in this week's BMJ challenges the notion that early discussion of planning for the end of life will destroy hope rather than create it.
Murray, S. A, Sheikh, A., Thomas, K.
openaire   +3 more sources

A website supporting sensitive religious and cultural advance care planning (ACPTalk): Formative and summative evaluation [PDF]

open access: yes, 2018
Background: Advance care planning (ACP) promotes conversations about future health care needs, enacted if a person is incapable of making decisions at end-of-life that may be communicated through written documentation such as advance care directives.
Boyd   +4 more
core   +2 more sources

"Hope for the best, prepare for the worst": A qualitative interview study on parents' needs and fears in pediatric advance care planning. [PDF]

open access: yes, 2016
Pediatric advance care planning is advocated by healthcare providers because it may increase the chance that patient and/or parent wishes are respected and thus improve end-of-life care.
Borasio, G.D.   +4 more
core   +2 more sources

Choosing Life, Not Suffering

open access: yesVoices in Bioethics, 2014
In his 2010 New Yorker piece titled “Letting Go,” Dr. Atul Gawande discusses the case of Sara Thomas Monopoli, a 34-year-old woman with inoperable and metastatic lung cancer.
Mytra Haerizadeh, Dylan Marshall
doaj   +1 more source

Measuring Advance Care Planning: Optimizing the Advance Care Planning Engagement Survey [PDF]

open access: yesJournal of Pain and Symptom Management, 2017
A validated 82-item Advance Care Planning (ACP) Engagement Survey measures a broad range of behaviors. However, concise surveys are needed.The objective of this study was to validate shorter versions of the survey.The survey included 57 process (e.g., readiness) and 25 action items (e.g., discussions).
Sudore, Rebecca L   +7 more
openaire   +4 more sources

Experiences and preferences for advance care planning following a diagnosis of dementia: Findings from a cross-sectional survey of carers.

open access: yesPLoS ONE, 2023
BackgroundFuture medical and financial planning is important for persons with dementia given the impact of the disease on capacity for decision making.AimsTo explore from the perspective of carers of persons with dementia: (1) Participation in future ...
Jamie Bryant   +3 more
doaj   +1 more source

Efficacy of Normalisation of Advance Care Planning (NACP) for people with chronic diseases in hospital and community settings: a quasi-experimental study

open access: yesBMC Health Services Research, 2021
Background Advance Care Planning (ACP) has emerged to improve end-of-life processes and experiences. However, the available evidence presents the gloomy picture of increasing number of older people living with chronic diseases and the mismatch between ...
Sarah Jeong   +5 more
doaj   +1 more source

Advance care planning in 21st century Australia: a systematic review and appraisal of online advance care directive templates against national framework criteria [PDF]

open access: yes, 2015
Objectives A drive to promote advance care planning at a population level has led to a proliferation of online advance care directive (ACD) templates but little information to guide consumer choice.
Agar, M   +6 more
core   +3 more sources

Junior Medical Officers’ knowledge of advance care directives and substitute decision making for people without decision making capacity: a cross sectional survey

open access: yesBMC Medical Ethics, 2022
Background For the benefits of advance care planning to be realised during a hospital admission, the treating team must have accurate knowledge of the law pertaining to implementation of advance care directives (ACDs) and substitute decision making. Aims
Jamie Bryant   +10 more
doaj   +1 more source

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