Results 81 to 90 of about 59,485 (246)

Onasemnogene Abeparvovec in Patients With SMA: Interim Results of the RESTORE Registry in Japan

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective There are limited real‐world data regarding the safety and effectiveness of onasemnogene abeparvovec (OA; Zolgensma) infusion, a one‐time gene replacement therapy, for Japanese patients with spinal muscular atrophy (SMA). We aimed to improve understanding of the real‐world outcomes for OA in Japan.
Kayoko Saito   +8 more
wiley   +1 more source

Consumer advisory committees : consumers reaching out to... the local community, other people with disabilities, RSC teams and offices

open access: yes, 2007
Brochure; intended to be printed off on one sheet, front and back, and folded in fourths.; Includes an information card to fill out and mail in indicating your interest in joining a CAC.; "Catalog #G-62; Produced: 12/07."What is a consumer advisory ...

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A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development

open access: yesArthritis Care &Research, EarlyView.
Objective A patient‐centered approach for chronic disease management, including systemic lupus erythematosus (SLE), aligns treatment with patients’ values and preferences, leading to improved outcomes. This paper summarizes how patient experiences, perspectives, and priorities informed the American College of Rheumatology (ACR) 2024 Lupus Nephritis (LN)
Shivani Garg   +20 more
wiley   +1 more source

Regional Fisheries Advisory Committee 21st July, 1975

open access: yes, 1975
This is the report from the Regional Fisheries Advisory Committee meeting, which was held on the 21st July 1975. The report contains information on the appointment of the Regional Fisheries Advisory Committee (1975-1976), the appointment of the Local ...

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Clinical Practice Guideline for Evaluation and Management of Peripheral Nervous System Manifestations in Sjögren's Disease

open access: yesArthritis Care &Research, EarlyView.
Objective Sjögren's disease is an autoimmune disorder that can impact multiple organ systems, including the peripheral nervous system (PNS). PNS manifestations, which can exist concurrently, include mononeuropathies, polyneuropathies, and autonomic nervous system neuropathies.
Anahita Deboo   +88 more
wiley   +1 more source

Regional Fisheries Advisory Committee 26th April, 1982

open access: yes, 1982
This is the report from the Regional Fisheries Advisory Committee meeting, which was held on the 26th April 1982.The report contains sections on the minutes of the last meeting and recommendations for these committees, Fishery Improvement Grant and ...

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Evaluation of a Novel Electric Health Record Sidecar Application to Display Rheumatoid Arthritis Clinical Outcomes During Clinic Visits: Results of a Stepped‐Wedge Cluster Randomized Pragmatic Trial

open access: yesArthritis Care &Research, EarlyView.
Objective We developed a novel electronic health record sidecar application to visualize key rheumatoid arthritis (RA) outcomes, including disease activity, physical function, and pain, via a patient‐facing graphical interface designed for use during outpatient visits (“RA PRO dashboard”).
Gabriela Schmajuk   +16 more
wiley   +1 more source

Regional Fisheries Advisory Committee 21st September, 1981

open access: yes, 1981
This is the report from the Regional Fisheries Advisory Committee meeting, which was held on the 21st September 1981.The report contains sections on the minutes of the last meeting and recommendations for these committees, a Review of Inland and Coastal ...

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Prevalence of Systemic Lupus Erythematosus in Australia, 2010–2022: A Population‐Based Study Using Linked National Administrative Health Data

open access: yesArthritis Care &Research, EarlyView.
Objective Systemic lupus erythematosus (SLE) is a heterogenous inflammatory condition with widely varying global prevalence estimates. The frequency of SLE in the general population of Australia has been reported to be notably lower than contemporary estimates in countries such as the United States or United Kingdom, at 19 to 39 per 100,000 as opposed ...
Lucinda Roper   +7 more
wiley   +1 more source

Regional Fisheries Advisory Committee 19th May, 1986

open access: yes, 1986
This is the report from the Regional Fisheries Advisory Committee meeting, which was held on the 19th May, 1986. The report contains sections on fishing licence duties, a liaison with Sea Fisheries Committees; applications to trap eels before the 25th ...

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