Results 231 to 240 of about 146,457 (308)

Building a Culture of Voice and Agency for Aboriginal Children in Out‐of‐Home Care: A Review of Policy in New South Wales and Victoria

Australian Journal of Social Issues, EarlyView.
ABSTRACT Aboriginal children and young people in out‐of‐home care (OOHC), like all children and young people, have a fundamental right to be involved in decisions that affect them, to be afforded the opportunity for a voice, and to have that voice taken seriously.
Bradley Burns, Rebekah Grace, Scott Avery   +2 more
wiley   +1 more source

How to integrate patient and carer perspectives, methodological rigor, and ethics into biomedical research funding. [PDF]

PLoS Biol
Lichtenberg H, Müller C, Lindeman H, Ali L, Minheere A, van den Eijnden M, Dirnagl U.   +6 more
europepmc   +1 more source

Implementing Indigenous Data Sovereignty in Australia: A Five‐Phase Framework for Indigenous Data Governance

Australian Journal of Social Issues, EarlyView.
ABSTRACT This article presents the development of a five‐phase Indigenous Data Governance (IDGov) Framework in Australia, focusing on partnerships between the Aboriginal Community Controlled Health Organisation (ACCHO) sector and non‐Indigenous health entities.
Jacob Prehn, Michael A. Guerzoni, Maggie Walter, Gawaian Bodkin‐Andrews, Bobby Maher   +4 more
wiley   +1 more source

Expanding research and care for Leigh syndrome: efforts of a patient-led advocacy organization. [PDF]

Res Involv Engagem
Zilber S, Burnworth M, Afolabi T, Brestoff JR, Minczuk M, Luis AR, Ling Q, Prigione A, Tolle I, Elsharkawi I, Perlstein E, Boyce D, Johnson S, Woleben K.   +13 more
europepmc   +1 more source

Food Policy Councils: Integrating Food Justice and Environmental Justice [PDF]

, 2014
Purifoy, Danielle M.
core   +1 more source

‘Keeping Ourselves Safe From the System’: Perinatal Care Model Considerations for Aboriginal and Torres Strait Islander Families Intersecting With Child Protection

Australian Journal of Social Issues, EarlyView.
ABSTRACT It is the priority of Aboriginal and Torres Strait Islander communities, and Australian governments, to provide infants with enriching environments in which they may thrive. This is particularly critical during the perinatal period. Yet, an increasing number of notifications and interventions by child protection authorities are occurring in ...
Neve Mucabel‐Bue, Shakira Onwuka, Paul Gray, Melissa O'Donnell, Helen Herrman, Renna Gayde, Skye Stewart, Kimberley A. Jones, Jane Fisher, Emma Stubbs, Cath Chamberlain, Jacynta Krakouer   +11 more
wiley   +1 more source

Addressing Infectious Diseases in Vulnerable Populations Under the Auspices of One Health: A Call for Action in Europe. [PDF]

Infect Dis Rep
Lakatos B, Farkas FB, Guido G, Saracino A, Di Gennaro F.   +4 more
europepmc   +1 more source

Expectations and Reality: The Lived Experiences of Australians With Psychosocial Disability Within the NDIS

Australian Journal of Social Issues, EarlyView.
ABSTRACT While Australia's National Disability Insurance Scheme (NDIS) was founded on principles of choice and control, for people with significant mental health challenges (what the NDIS calls ‘psychosocial disability’) these ideals often remain elusive. Support systems continue to be fractured and in the context of ongoing policy reforms, it is vital
Joel Hollier, Jennifer Smith‐Merry
wiley   +1 more source

Services for Patients with Rare Genetic Diseases in Germany. [PDF]

J Community Genet
Schmidtke C, Kühnen P, Mai K, Mundlos C, Cepus JS, Heider N, Lipp T.   +6 more
europepmc   +1 more source

Harnessing the Neurobiology of Empathy and Compassion to Alleviate Burnout in Neurology

Annals of Neurology, EarlyView.
The neurologist cares for patients with complex chronic conditions that compromise their wellbeing. Many such disorders are poorly understood. Whereas for some, effective symptomatic treatments exist, for most we lack an understanding of the molecular and cellular bases for disease pathogenesis needed for discovering disease‐modifying treatments ...
Fadel Zeidan, Joseph D. Stern, William C. Mobley   +2 more
wiley   +1 more source