The reconfiguration of biobanks in Europe under the BBMRI-ERIC framework: towards global sharing nodes? [PDF]
Life Sciences, Society and Policy, 2020 AbstractFreezers with biospecimen deposits became biobanks and later were networked at the pan-European level in 2013 under the Biobanking and BioMolecular Resources Research Infrastructure—European Research Infrastructure Consortium (BBMRI-ERIC). Drawing on document analysis about the BBMRI-ERIC and multi-sited fieldwork with biobankers in Spain from ...
Violeta Argudo-Portal +2 more
exaly +7 more sources
Infrastructuring European scientific integration: Heterogeneous meanings of the European biobanking infrastructure BBMRI–ERIC [PDF]
Social Studies of Science, 2023 While transnational research infrastructure projects long preceded the formal integration process that created the European Union, their advancement is an increasingly central part of EU research policy and of European integration in general. This paper analyses the Biobanking and Biomolecular Resources Research Infrastructure–European Research ...
Erik Aarden
exaly +4 more sources
Pan-European Data Harmonization for Biobanks in ADOPT BBMRI-ERIC [PDF]
Applied Clinical Informatics, 2019 Abstract Background High-quality clinical data and biological specimens are key for medical research and personalized medicine. The Biobanking and Biomolecular Resources Research Infrastructure-European Research Infrastructure Consortium (BBMRI-ERIC) aims to facilitate access to such biological resources.
Sebastian Mate +2 more
exaly +5 more sources
Linking the ECRIN Metadata Repository with the BBMRI-ERIC Directory to connect clinical studies with related biobanks and collections [version 2; peer review: 1 approved, 2 approved with reservations] [PDF]
Open Research EuropeBackground There is much value to be gained by linking clinical studies and (biosample-) collections that have been generated in the context of a clinical study. However, the linking problem is hard because usually no direct references between a clinical
Christian Ohmann +8 more
doaj +6 more sources
Perceptions of legislation relating to the sharing of genomic biobank results with donors—a survey of BBMRI-ERIC biobanks [PDF]
European Journal of Human Genetics, 2018 Biobanks accumulate huge amounts of research findings, including participants' genomic data. Increasingly this leads to biobanks receiving research results that could be of clinical significance to biobank participants. The EU Horizon 2020 Project 'Genetics Clinic of the Future' surveyed European biobanks' perceptions of the legal and regulatory ...
Minna Brunfeldt +2 more
exaly +6 more sources
Big Data and SocietyThe European biobanking infrastructure BBMRI-ERIC was established in the context of European Union science policy to facilitate collaboration between European repositories of biological samples and associated data, or so-called biobanks.
Erik Aarden
exaly +3 more sources
BBMRI-ERIC Directory: 515 Biobanks with Over 60 Million Biological Samples [PDF]
Biopreservation and Biobanking, 2016 Petr Holub +2 more
exaly +6 more sources
BBMRI-ERIC Negotiator: Implementing Efficient Access to Biobanks
Biopreservation and Biobanking, 2021 Various biological resources, such as biobanks and disease-specific registries, have become indispensable resources to better understand the epidemiology and biological mechanisms of disease and are fundamental for advancing medical research. Nevertheless, biobanks and similar resources still face significant challenges to become more findable and ...
Robert Reihs +2 more
exaly +4 more sources
A roadmap towards Ireland’s membership of BBMRI-ERIC [version 2; peer review: 1 approved, 3 approved with reservations] [PDF]
HRB Open ResearchBackground BioBANC Symposium has become a key forum for the Irish biobanking community. The third annual event focused on networking and quality, featuring a workshop to explore the role and value of networked biobanking for Ireland. The Director General
Nicola Miller +6 more
doaj +2 more sources
A comprehensive European Colorectal Cancer Cohort dataset [PDF]
Scientific DataColorectal cancer (CRC) is a leading cause of cancer-related deaths worldwide. The Biobanking and Biomolecular Resources European Research Infrastructure (BBMRI-ERIC) established a CRC-Cohort with European coverage contributed by 26 biobanks from 12 ...
Petr Holub +81 more
doaj +2 more sources