A framework for the promotion of ethical benefit sharing in health research [PDF]
BMJ Global Health, 2022 There is an increasing recognition of the importance of including benefit sharing in research programmes in order to ensure equitable and just distribution of the benefits arising from research.
Nicki Tiffin +6 more
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Benefit sharing: Why inclusive provenance metadata matter [PDF]
Frontiers in Genetics, 2022 Fair and equitable benefit sharing of genetic resources is an expectation of the Nagoya Protocol. Although the Nagoya Protocol does not yet formally apply to Digital Sequence Information (“DSI”), discussions are currently underway regarding to include ...
Jacob Golan +5 more
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The commercialization of biospecimens from Indigenous Peoples: A scoping review of benefit-sharing [PDF]
Frontiers in Medicine, 2022 BackgroundThere is ongoing and increasing interest in the commercialization of biospecimen-derived products from Indigenous Peoples. Discourse on benefit-sharing specifically in the context of the commercialization of Indigenous Peoples biospecimens are ...
Tarlynn Tone-Pah-Hote +2 more
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Access and benefit-sharing by the European Virus Archive in response to COVID-19 [PDF]
The Lancet Microbe, 2022 Summary: Biobanking infrastructures, which are crucial for responding early to new viral outbreaks, share pathogen genetic resources in an affordable, safe, and impartial manner and can provide expertise to address access and benefit-sharing issues.
Scarlett Sett, PhD +27 more
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Flobsion—Flexible Option with Benefit Sharing [PDF]
International Journal of Financial Studies, 2019 Global environmental goals and the Paris agreement declared the need to avoid dangerous climate change by reducing emissions of greenhouse gases with an ultimate goal to transform today’s policies and reach climate neutrality before the end of the ...
Nikolay Khabarov +3 more
doaj +5 more sources
Developing a contextually and culturally relevant benefit-sharing framework for pathogen genomic research and biobanking in africa: a deliberative expert approach [PDF]
BMC Medical EthicsBackground Globally, researchers are struggling to implement benefit-sharing plans in genomics research and biobanking. In the African context, there are currently limited benefit-sharing frameworks to guide researchers, and some often rely on personal ...
Pamela Emefa Selormey +4 more
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Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members [PDF]
Frontiers in Genetics, 2022 Background: Genomic and biobanking research has increased in Africa over the past few years. This has raised pertinent ethical, legal, and societal concerns for stakeholders such as sample or data ownership, commercialization, and benefit sharing.
Erisa Sabakaki Mwaka +4 more
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A scoping review of considerations and practices for benefit sharing in biobanking [PDF]
BMC Medical Ethics, 2021 Background Despite the rapid global growth of biobanking over the last few decades, and their potential for the advancement of health research, considerations specific to the sharing of benefits that accrue from biobanks have received little attention ...
Allan Sudoi +2 more
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Benefit sharing in health research
South African Journal of Bioethics and Law, 2015 The necessity of benefit sharing may be questioned when research activities are funded by international sources within a developing country. Benefit sharing is a topic which remains uncertain in the context of genetic research, particularly with regard ...
Safia Mahomed, Ian Sanne
doaj +3 more sources
Balanced Options for Access and Benefit-Sharing: Stakeholder Insights on Provider Country Legislation. [PDF]
Front Plant Sci, 2019 The over-arching aim of the access and benefit-sharing (ABS) of genetic resources is to enable fair distribution of benefits between the users (such as universities and biotech companies) and providers (such as biodiversity rich countries) so as to both ...
Sirakaya A.
europepmc +3 more sources