A framework for the promotion of ethical benefit sharing in health research [PDF]
BMJ Global Health, 2022 There is an increasing recognition of the importance of including benefit sharing in research programmes in order to ensure equitable and just distribution of the benefits arising from research.
Nicki Tiffin +6 more
doaj +3 more sources
Benefit sharing: Why inclusive provenance metadata matter [PDF]
Frontiers in Genetics, 2022 Fair and equitable benefit sharing of genetic resources is an expectation of the Nagoya Protocol. Although the Nagoya Protocol does not yet formally apply to Digital Sequence Information (“DSI”), discussions are currently underway regarding to include ...
Jacob Golan +5 more
doaj +3 more sources
The commercialization of biospecimens from Indigenous Peoples: A scoping review of benefit-sharing [PDF]
Frontiers in Medicine, 2022 BackgroundThere is ongoing and increasing interest in the commercialization of biospecimen-derived products from Indigenous Peoples. Discourse on benefit-sharing specifically in the context of the commercialization of Indigenous Peoples biospecimens are ...
Tarlynn Tone-Pah-Hote +2 more
doaj +3 more sources
Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members [PDF]
Frontiers in Genetics, 2022 Background: Genomic and biobanking research has increased in Africa over the past few years. This has raised pertinent ethical, legal, and societal concerns for stakeholders such as sample or data ownership, commercialization, and benefit sharing.
Erisa Sabakaki Mwaka +4 more
doaj +3 more sources
Access and benefit-sharing by the European Virus Archive in response to COVID-19 [PDF]
The Lancet Microbe, 2022 Summary: Biobanking infrastructures, which are crucial for responding early to new viral outbreaks, share pathogen genetic resources in an affordable, safe, and impartial manner and can provide expertise to address access and benefit-sharing issues.
Scarlett Sett, PhD +27 more
doaj +3 more sources
A scoping review of considerations and practices for benefit sharing in biobanking [PDF]
BMC Medical Ethics, 2021 Background Despite the rapid global growth of biobanking over the last few decades, and their potential for the advancement of health research, considerations specific to the sharing of benefits that accrue from biobanks have received little attention ...
Allan Sudoi +2 more
doaj +3 more sources
Equity in the Pandemic Treaty: Access and Benefit-Sharing as a Policy Device or a Rhetorical Device? [PDF]
J Law Med Ethics, 2023 Equity is a foundational concept for the new World Health Organization (WHO) Pandemic Treaty. WHO Member States are currently negotiating to turn this undefined concept into tangible outcomes by borrowing a policy mechanism from international ...
Hampton AR +3 more
europepmc +2 more sources
Conservation benefit-sharing mechanisms and their effectiveness in the Greater Serengeti Ecosystem: local communities' perspectives. [PDF]
Biodivers Conserv, 2023 Benefit-sharing mechanisms have been instrumental in securing the support of local communities living on the edge of protected areas to implement protected area goals and enhance biodiversity conservation outcomes.
Kegamba JJ +3 more
europepmc +2 more sources
Balanced Options for Access and Benefit-Sharing: Stakeholder Insights on Provider Country Legislation. [PDF]
Front Plant Sci, 2019 The over-arching aim of the access and benefit-sharing (ABS) of genetic resources is to enable fair distribution of benefits between the users (such as universities and biotech companies) and providers (such as biodiversity rich countries) so as to both ...
Sirakaya A.
europepmc +4 more sources
Harmonize rules for digital sequence information benefit-sharing across UN frameworks. [PDF]
Nat CommunAs multiple UN fora develop parallel rules for sharing benefits from digital sequence information, we urge better coordination. International policymakers should focus on harmonizing new benefit-sharing rules to ensure open access to data, database ...
Sett S +19 more
europepmc +2 more sources