Results 11 to 20 of about 6,775,448 (288)

Digital Sequence Information between Benefit-Sharing and Open Data. [PDF]

J Law Biosci, 2022
Currently, parties to the Convention on Biological Diversity (CBD) are negotiating a strategic plan to save biodiversity. One crucial element of an agreement is the question of whether and how digital sequence information (DSI) is subject to access and ...
Klünker I, Richter H.
europepmc   +2 more sources

Qualitative Analysis of the Design and Implementation of Benefit-Sharing Programs for Biologics Across Europe. [PDF]

BioDrugs, 2022
Background To encourage the rational prescribing of biologics, payers across Europe have experimented with the implementation of benefit-sharing programs.
Barcina Lacosta T, Vulto AG, Turcu-Stiolica A, Huys I, Simoens S.   +4 more
europepmc   +2 more sources

Multilateral benefit-sharing from digital sequence information will support both science and biodiversity conservation. [PDF]

Nat Commun, 2022
Open access to sequence data is a cornerstone of biology and biodiversity research, but has created tension under the United Nations Convention on Biological Diversity (CBD).
Scholz AH, Freitag J, Lyal CHC, Sara R, Cepeda ML, Cancio I, Sett S, Hufton AL, Abebaw Y, Bansal K, Benbouza H, Boga HI, Brisse S, Bruford MW, Clissold H, Cochrane G, Coddington JA, Deletoille AC, García-Cardona F, Hamer M, Hurtado-Ortiz R, Miano DW, Nicholson D, Oliveira G, Bravo CO, Rohden F, Seberg O, Segelbacher G, Shouche Y, Sierra A, Karsch-Mizrachi I, da Silva J, Hautea DM, da Silva M, Suzuki M, Tesfaye K, Tiambo CK, Tolley KA, Varshney R, Zambrano MM, Overmann J.   +40 more
europepmc   +2 more sources

Extending the CARE Principles from tribal research policies to benefit sharing in genomic research. [PDF]

Front Genet, 2022
Indigenous Peoples have historically been targets of extractive research that has led to little to no benefit. In genomics, such research not only exposes communities to harms and risks of misuse, but also deprives such communities of potential benefits.
Carroll SR, Plevel R, Jennings LL, Garba I, Sterling R, Cordova-Marks FM, Hiratsuka V, Hudson M, Garrison NA.   +8 more
europepmc   +2 more sources

Benefit-sharing with human participants in health research in South Africa: A call for clarity. [PDF]

Dev World Bioeth
This study critically examines the concept of benefit‐sharing in the context of health research involving human participants in South Africa, identifying a significant gap in the precision and application of terminology.
Kamau C, Prinsen L, Thaldar D.
europepmc   +2 more sources

A need for recalibrating access and benefit sharing: How best to improve conservation, sustainable use of biodiversity, and equitable benefit sharing in a mutually reinforcing manner?: How best to improve conservation, sustainable use of biodiversity, and equitable benefit sharing in a mutually reinforcing manner? [PDF]

EMBO Rep, 2022
The upcoming UN Biodiversity Conference should address shortfalls of Access and Benefit Sharing systems inspired by the Nagoya Protocol to help improve sustainable use of biodiversity and equitable benefit sharing.
Sara R, Wyss M, Custers R, In 't Veld A, Muyldermans D.   +4 more
europepmc   +2 more sources

From urban NPOs to rural knowledge networks: applying benefit-sharing models to African genomics research [PDF]

Nature Communications
Despite repeated calls from international governing bodies for benefit sharing in biomedical research as a means of promoting mutual trust and reciprocity, real-world examples of benefit sharing are lacking.
Ngonidzashe Ngwarai, Furahini Tluway, Nokthula Mayindi, Jackson Mabasa, Given Mashaba, Simon Khoza, Jennifer Hove, Dorcus Khoza, Floidy Wafawanaka, Shingirai Chipungu, Dzunisani Ndlovu, Brian Mdaka, Tsakani Ngobeni, Andrew Phiri, Jeffrey Tibane, F. Xavier Gómez-Olivé, Stephen Tollman, Vukosi Nomses Mkansi, Lisa K. Micklesfield, Mmalehlokoana Maria Manabile, Solomon S. Rampai Choma, Prathap Kasina, Erin Burke, Michèle Ramsay, June Fabian, Sarah LeBaron von Baeyer   +25 more
doaj   +2 more sources

Developing a contextually and culturally relevant benefit-sharing framework for pathogen genomic research and biobanking in africa: a deliberative expert approach [PDF]

BMC Medical Ethics
Background Globally, researchers are struggling to implement benefit-sharing plans in genomics research and biobanking. In the African context, there are currently limited benefit-sharing frameworks to guide researchers, and some often rely on personal ...
Pamela Emefa Selormey, Irene H. Tsey, John Ganle, Patricia Akweongo, Paulina Tindana   +4 more
doaj   +2 more sources

Stakeholder Perspectives on Access and Benefit-Sharing for Areas Beyond National Jurisdiction

Frontiers in Marine Science, 2020
Negotiations for a new international legally binding instrument under the United Nations Convention on the Law of the Sea for the conservation and sustainable use of marine biological diversity of areas beyond national jurisdiction (ABNJ) are currently ...
Jane Eva Collins, Jane Eva Collins, Thomas Vanagt, Isabelle Huys   +3 more
doaj   +2 more sources

Access and Benefit Sharing Under the Nagoya Protocol-Quo Vadis? Six Latin American Case Studies Assessing Opportunities and Risk. [PDF]

Front Pharmacol, 2020
Background Global challenges related to access and benefit sharing (ABS) of biological resources have become a key concern in the area of research on herbal medicines, ethnopharmacology, drug discovery, and the development of other high value products ...
Heinrich M, Scotti F, Andrade-Cetto A, Berger-Gonzalez M, Echeverría J, Friso F, Garcia-Cardona F, Hesketh A, Hitziger M, Maake C, Politi M, Spadafora C, Spadafora R.   +12 more
europepmc   +2 more sources