Results 1 to 10 of about 1,851,910 (300)

Benefit sharing: Why inclusive provenance metadata matter [PDF]

Frontiers in Genetics, 2022
Fair and equitable benefit sharing of genetic resources is an expectation of the Nagoya Protocol. Although the Nagoya Protocol does not yet formally apply to Digital Sequence Information (“DSI”), discussions are currently underway regarding to include ...
Jacob Golan, KatieLee Riddle, Maui Hudson, Jane Anderson, Natalie Kusabs, Tim Coltman   +5 more
doaj   +2 more sources

A framework for the promotion of ethical benefit sharing in health research [PDF]

BMJ Global Health, 2022
There is an increasing recognition of the importance of including benefit sharing in research programmes in order to ensure equitable and just distribution of the benefits arising from research.
Nicki Tiffin, Anja Bedeker, Michelle Nichols, Taryn Allie, Tsaone Tamuhla, Peter van Heusden, Olorunyomi Olorunsogbon   +6 more
doaj   +2 more sources

Access and benefit-sharing by the European Virus Archive in response to COVID-19 [PDF]

The Lancet Microbe, 2022
Summary: Biobanking infrastructures, which are crucial for responding early to new viral outbreaks, share pathogen genetic resources in an affordable, safe, and impartial manner and can provide expertise to address access and benefit-sharing issues.
Scarlett Sett, PhD, Carolina dos Santos Ribeiro, MSc, Christine Prat, PhD, George Haringhuizen, LLM, Amber Hartman Scholz, PhD, Tatjana Avšič, Carrie Batten, Maria Serena Beato, Hervé Bourhy, Antonino Di Caro, Rémi Charrel, Bruno Coutard, Jan Felix Drexler, Christian Drosten, Anthony R. Fooks, Boris Klempa, Marion Koopmans, Thomas Klimkait, Stephan Günther, Jean-Claude Manuguerra, Ali Mirazimi, Thomas C. Mettenleiter, Florence Komurian-Pradel, Sven Reiche, Chantal Reusken, Jean-Louis Romette, Sylvie van der Werf, David Williams   +27 more
doaj   +2 more sources

Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members [PDF]

Frontiers in Genetics, 2022
Background: Genomic and biobanking research has increased in Africa over the past few years. This has raised pertinent ethical, legal, and societal concerns for stakeholders such as sample or data ownership, commercialization, and benefit sharing.
Erisa Sabakaki Mwaka, Godfrey Bagenda, Deborah Ekusai Sebatta, Sylvia Nabukenya, Ian Munabi   +4 more
doaj   +2 more sources

Developing a contextually and culturally relevant benefit-sharing framework for pathogen genomic research and biobanking in africa: a deliberative expert approach [PDF]

BMC Medical Ethics
Background Globally, researchers are struggling to implement benefit-sharing plans in genomics research and biobanking. In the African context, there are currently limited benefit-sharing frameworks to guide researchers, and some often rely on personal ...
Pamela Emefa Selormey, Irene H. Tsey, John Ganle, Patricia Akweongo, Paulina Tindana   +4 more
doaj   +2 more sources

A scoping review of considerations and practices for benefit sharing in biobanking [PDF]

BMC Medical Ethics, 2021
Background Despite the rapid global growth of biobanking over the last few decades, and their potential for the advancement of health research, considerations specific to the sharing of benefits that accrue from biobanks have received little attention ...
Allan Sudoi, Jantina De Vries, Dorcas Kamuya   +2 more
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Rethinking benefit sharing in collaborative human genetic research from an Afrocommunitarian perspective [PDF]

Frontiers in Genetics, 2022
This article draws on reflections about humanness, friendliness and partiality, in the writings of Afro-communitarians to develop principles for thinking critically about why benefit sharing, what may count as benefits within the context of human ...
Cornelius Ewuoso, Allan Sudoi, Dorcas Kamuya   +2 more
doaj   +2 more sources

Harmonize rules for digital sequence information benefit-sharing across UN frameworks [PDF]

Nature Communications
As multiple UN fora develop parallel rules for sharing benefits from digital sequence information, we urge better coordination. International policymakers should focus on harmonizing new benefit-sharing rules to ensure open access to data, database ...
Scarlett Sett, W. John Kress, Michael Halewood, David Nicholson, Genuar Nuñez-Vega, Davide Faggionato, Mathieu Rouard, Marcel Jaspars, Manuela da Silva, Christine Prat, Débora S. Raposo, Irma Klünker, Jens Freitag, Christian Keambou Tiambo, Carolina dos Santos Ribeiro, Linda Wong, Halima Benbouza, Jörg Overmann, DSI Scientific Network signatory authors, Amber Hartman Scholz   +19 more
doaj   +2 more sources

Strengthening Global Public Health Surveillance through Data and Benefit Sharing [PDF]

Emerging Infectious Diseases, 2018
Equitable sharing of public health surveillance data can help prevent or mitigate the effect of infectious diseases. Equitable data sharing includes working toward more equitable sharing of the public health benefits that data sharing brings and requires
Michael Edelstein, Lisa M. Lee, Asha Herten-Crabb, David L. Heymann, David R. Harper   +4 more
doaj   +2 more sources

Abundance of Xanthium spinosum L. along the different land types and its impacts on invaded plant communities in North Shewa Zone, Ethiopia

Sustinere: Journal of Environment and Sustainability, 2023
A biological invasion is a form of biological pollution that is most likely more terrible than chemical pollution. Xanthium spinosum is one of the most invasive alien plant species.
Amare Assefa, Gebiyaw Tilaye
doaj   +1 more source