Equity in the Pandemic Treaty: Access and Benefit-Sharing as a Policy Device or a Rhetorical Device? [PDF]
J Law Med Ethics, 2023 Hampton AR +3 more
europepmc +1 more source
Restructuring Medicare's Benefit Design: Implications for Beneficiaries and Spending [PDF]
, 2011 Estimates the effects of options for restructuring Medicare's fee-for-service benefit design, including a $550 deductible for Parts A and B, a 20 percent coinsurance on nearly all services, and a $5,500 limit on cost sharing for Medicare-covered ...
James Mays +4 more
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Clinically Relevant Outcome Measures in Women With Adrenoleukodystrophy
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Adrenoleukodystrophy is a rare inherited peroxisomal disease caused by pathogenic variants in the ABCD1 gene located on the X chromosome. Although the most severe central nervous system and adrenal complications typically affect only men with adrenoleukodystrophy, the majority of women develop myeloneuropathy symptoms in adulthood.
Chenwei Yan +3 more
wiley +1 more source
Editorial: Toward a better understanding and application of benefit sharing in genomic and global health research. [PDF]
Front Genet, 2023 Yakubu A, Mc Cartney AM, Sprumont D.
europepmc +1 more source
Vestibular Patient Journey: Insights From Vestibular Disorders Association (VeDA) Registry
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Vestibular symptoms impose a high burden of disability. Understanding real‐world diagnostic and treatment pathways can identify care gaps and guide interventions. We aimed to characterize symptom profiles, diagnostic trends, provider involvement, and treatment patterns in vestibular disorders.
Ali Rafati +10 more
wiley +1 more source
Data Science JournalThere are ethical, legal, and governance challenges surrounding data, particularly in the context of digital sequence information (DSI) on genetic resources. I focus on the shift in the international framework, as exemplified by the CBD-COP15 decision on
Masanori Arita
doaj +1 more source
Conservation benefit-sharing mechanisms and their effectiveness in the Greater Serengeti Ecosystem: local communities' perspectives. [PDF]
Biodivers Conserv, 2023 Kegamba JJ +3 more
europepmc +1 more source
Surviving the Perfect Storm: Impacts of Benefit Reductions and Increased Cost Sharing in a Medicaid Program [PDF]
, 2008 Summarizes two studies of how changes to the Oregon Health Plan resulted in disenrollment among the poorest, no net savings for the state Medicaid plan, and a rise in emergency room visits.
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Developmental and Epileptic Encephalopathy due to Biallelic Pathogenic Variants in PIGM
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective PIGM encodes a critical enzyme in the glycosylphosphatidylinositol (GPI)‐anchor biosynthesis pathway. While promoter‐region mutations in PIGM have been associated with a relatively mild phenotype characterized by portal vein thrombosis and absence seizures, recent evidence suggests that coding‐region mutations result in a more severe
Júlia Sala‐Coromina +11 more
wiley +1 more source
The Nagoya Protocol on access and benefit sharing: The neglected issue of animal health. [PDF]
Front Microbiol, 2023 Beato MS, Veneroso V.
europepmc +1 more source