British Journal of Haematology, EarlyView.Summary Research in multiple myeloma increasingly relies on surrogate end‐points to expedite approvals, yet these may not reflect patient priorities. We conducted a mixed‐methods study to identify outcomes valued by patients and clinicians and compare them with end‐points used in randomized controlled trials (RCTs).
Maria Mainou +13 more
wiley +1 more source
Informed consent in genetic and genomic studies in Sub-Saharan Africa: a systematic review of bioethical issues. [PDF]
BMC Med EthicsLi Y, Bowen DJ, Yu JH.
europepmc +1 more source
Bioethical Issues in Providing Financial Incentives to Research Participants. [PDF]
Medicoleg Bioeth, 2015 Resnik DB.
europepmc +1 more source
Expectations and Concerns of Adoptive Families of Children With Fetal Alcohol Spectrum Disorder
Child &Family Social Work, EarlyView.ABSTRACT Fetal alcohol spectrum disorder (FASD) is considered a condition that persists throughout life in people who have been exposed to alcohol during the gestation period. During the different stages of their lives, individuals with FASD face different challenges and adversities that—without the right resources and strategies—can contribute to ...
Dídac Gómez‐Santabrígida +3 more
wiley +1 more source
Perceived bioethical issues in cancer rehabilitation: a qualitative study among Italian physiotherapists. [PDF]
Arch PhysiotherBertoni G +4 more
europepmc +1 more source
A COMPARATIVE ANALYSIS OF BIOETHICAL ISSUES FROM VIEW POINTS OF RELIGIOUS AFFAIRS ADMINISTRATION IN TURKEY, ROMAN CATHOLICISM AND ORTHODOX JUDAISM. [PDF]
Acta Bioeth, 2017 Güvercin CH, Munir KM.
europepmc +1 more source
“Simply Amazing and Fantastic”: The Maude Abbott Medical Museum Visitor Book, 2018–2023
Curator: The Museum Journal, EarlyView.ABSTRACT The Maude Abbott Medical Museum has a collection of human remains which we believe is appropriate to preserve and use for teaching and research. We wondered to what extent our visitors feel the same way. We categorized all entries in our museum visitor book for 5 years into five groups based on specific words or phrases.
Rick Fraser
wiley +1 more source
Institutional review boards and bioethical issues for otologists and audiologists. [PDF]
Korean J Audiol, 2012 Park MK, Lee BD.
europepmc +1 more source
Reframing Justice in Healthcare AI: An Ubuntu‐Based Approach for Africa
Developing World Bioethics, EarlyView.ABSTRACT There is an ongoing debate on how to balance the benefits and risks of artificial intelligence (AI), especially in healthcare. In resource‐constrained settings, such as Africa, where access to quality care remains a challenge, AI has the potential to improve efficiency, accessibility, and patient outcomes.
Aloysius Ochasi +3 more
wiley +1 more source
Improving the Ethical Permissibility of Medical Electives in Lower‐Resource Settings
Developing World Bioethics, EarlyView.ABSTRACT This paper presents a moral‐theoretical evaluation of medical electives, applying different frameworks of distributive justice to the phenomenon of healthcare students visiting countries with less access to resources in order to bolster their own learning.
Simon Paul Jenkins
wiley +1 more source