Results 11 to 20 of about 228 (148)
Since the early 2000’s, anybody can buy genetic tests, directly sold on the Internet. These tests provide information about one’s susceptibilities to some diseases and/or about one’s ancestry.
Pascal Ducournau, Claire Beaudevin
doaj +1 more source
“It’s Actually Part of Clinical Care”. Mediating Biobanking Assets in the Entrepreneurial Hospital
A core aspect of the entrepreneurial hospital is the mobilisation of the means of care beyond care itself. In previous work, we showed how the entrepreneurial hospital uses its unique access to patient populations, whose health needs make them available,
Martin French +2 more
doaj +1 more source
This paper examines the scientific, social and digital processes that shape multiple forms of biovalue evident in the development, participation and use of the Simons Simplex Collection (SSC), the largest autism genetic databases in North America.
Jennifer S. Singh
doaj +1 more source
Saúde, direito à saúde e justiça sanitária
This article proposes a preliminary approach to the heterogeneous and contingent processes through which health care and the right to health are mutually defined and constituted. Two recent manifestations of this dynamic are presented and discussed.
João Arriscado Nunes
doaj +1 more source
Banking on Participation. Exploring the Co-production of Population and Public in Swiss Biobanking
This paper explores enactments of participation in two Swiss biobanking configurations, a cohort biobank and a general biobank. It sheds light on the role of Personalized Health endeavours, in which biobanks play a crucial role. In order to contribute to
Nolwenn Bühler +2 more
doaj +1 more source
Assets, Commodities and Biosocialities. Multiple Biovalues in Hybrid Biobanking Practices
Biobanks are crucial institutions in the infrastructure of contemporary life sciences. They depend on the participation of donors who give tissues and data. Through their participation, donors can build identities and form biosociality.
Lorenzo Beltrame, Christine Hauskeller
doaj +1 more source
Identity, community and care in online accounts of hereditary colorectal cancer syndrome
Sociological literature has explored how shifts in the point at which individuals may be designated as diseased impact upon experiences of ill health.
Emily Ross +3 more
doaj +1 more source
Symbolic Versus Substantive ESG Practices: A Systematic Review and Integrative Framework
ABSTRACT ESG reporting is widespread, but symbolic commitments do not always reflect substantive practices. This study conducts a systematic literature review of 62 empirical articles published between 2021 and 2025 to synthesize the main determinants and consequences of this disclosure–performance misalignment in ESG reporting (commonly referred to as
Cristina Alexandrina Ştefănescu +1 more
wiley +1 more source
Identifying Affective Patterns in Patients With Eating Disorders: A Latent Profile Analysis
ABSTRACT Background Emotional difficulties are common among individuals with Eating Disorders (EDs). Following Panksepp's theoretical model, which conceptualises primary emotional systems as the evolutionary foundation of personality, this study aimed to identify distinct profiles of primary emotional systems within a clinical eating disorder (ED ...
Rachele Fasolato +15 more
wiley +1 more source

