Results 141 to 150 of about 311,401 (301)

Holding back in communications with clinicians: Patient and care partner perspectives in Parkinson’s disease

PEC Innovation
Objectives: To describe how patients with Parkinson’s disease (PD) and care partners choose to share or withhold information from clinicians. Methods: This is a qualitative, descriptive study nested within a multisite, randomized clinical trial of ...
Roman Ayele, Zachary A. Macchi, Sarah Jordan, Jacqueline Jones, Benzi Kluger, Patrick Maley, Kirk Hall, Malenna Sumrall, Hillary D. Lum   +8 more
doaj   +1 more source

Caring for caregivers/care partners of persons with dementia [PDF]

International Psychogeriatrics, 2021
Jeste, Dilip V, Mausbach, Brent, Lee, Ellen E   +2 more
openaire   +4 more sources

Super‐Refractory Status Epilepticus (SRSE) in a Patient With Compound Heterozygous OPA1 Variants: Case Report and Literature Review

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Super‐Refractory Status Epilepticus (SRSE) is a rare, life‐threatening neurological emergency with unclear etiology in many cases. Mitochondrial dysfunction, often due to disease‐causing genetic variants, is increasingly recognized as a cause, with each gene producing distinct pathophysiological mechanisms.
Pouria Mohammadi, Lara Basovic, Christopher Michael McGraw   +2 more
wiley   +1 more source

International perspectives of care partners for people with Parkinson’s disease

Journal of Geriatric Mental Health
Background: Caregiving in Parkinson’s disease often negatively impacts care partner mental health and can worsen health outcomes for people with Parkinson’s disease.
Rachael A. Herlihy, Esme D. Trahair, Allison Marie Allen, Adriana Gonzalez, Ken Hill, Lissa Kapust, Anne Kosem, Jessamyn Mckenzie, Elaine Book   +8 more
doaj   +1 more source

A Case Study On Empowering A Non-Profit Organization To Better Help People With Disabilities Through M-Health [PDF]

, 2014
Local non-profit organizations are constrained in developing efficient methods for helping people with disabilities confined at their own homes. The cost of labor of physically serving such people is a continued issue at the organizations.
Lawler, James, Moller, Hannah, Salloum, Robert   +2 more
core   +1 more source

Remote Monitoring in Myasthenia Gravis: Exploring Symptom Variability

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Myasthenia gravis (MG) is a rare, autoimmune disorder characterized by fluctuating muscle weakness and potential life‐threatening crises. While continuous specialized care is essential, access barriers often delay timely interventions. To address this, we developed MyaLink, a telemedical platform for MG patients.
Maike Stein, Maximilian Mönch, Meret Herdick, Frauke Stascheit, Sarah Hoffmann, Hannah Preßler, Philipp Mergenthaler, Carla Dusemund, Paolo Doksani, Haoqi Sun, Pushpa Narayanaswami, Andreas Meisel, Lea Gerischer, Sophie Lehnerer   +13 more
wiley   +1 more source

Intimate partner violence is independently associated with poor utilization of antenatal care in Arba Minch town, southern Ethiopia: A cross-sectional study.

PLOS Global Public Health
To ensure the best possible health conditions for both mother and fetus throughout pregnancy, skilled healthcare professionals provide antenatal care (ANC) to expectant mothers.
Dagne Deresa Dinagde, Kassahun Fikadu Tesema, Fitsum Wolde, Gudisa Weyessa Heyi, Gizu Tola Feyisa, Agmasie Damtew Walle   +5 more
doaj   +1 more source

Journeying through dementia: an occupational approach to supported self management [PDF]

, 2017
This is a research based intervention for individuals living with a diagnosis of dementia.
Craig, Claire
core  

Predicting Loss of Ambulation in Limb Girdle Muscular Dystrophy R9

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Limb girdle muscular dystrophy type R9 (LGMDR9) results from biallelic variants in FKRP. There is limited data to predict loss of ambulation (LOA) among those with LGMDR9. Methods Participants in an ongoing dystroglycanopathy natural history study (NCT00313677) with FKRP variants who had achieved ambulation and were more than 3 ...
Chandra L. Miller, Lauren N. Coffey, Shelley R. H. Mockler, Katie M. Laubscher, Carrie M. Stephan, M. Bridget Zimmerman, Katherine D. Mathews   +6 more
wiley   +1 more source

Applying an Ethical Lens to the Treatment of People With Multiple Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT The practice of neurology requires an understanding of clinical ethics for decision‐making. In multiple sclerosis (MS) care, there are a wide range of ethical considerations that may arise. These involve shared decision‐making around selection of a disease‐modifying therapy (DMT), risks and benefits of well‐studied medications in comparison to
Methma Udawatta, Farrah J. Mateen
wiley   +1 more source