Results 21 to 30 of about 555,702 (254)

Person-centered clinical care: principles and strategies

Revista Peruana de Medicina Experimental y Salud Pública, 2016
The development of person-centered clinical care is inscribed within an international programmatic movement towards a medicine focused on the totality of the person.
Juan Enrique Mezzich, Alberto Perales
doaj   +1 more source

Centering Relationality and CARE for Stewardship of Indigenous Research Data

Data Science Journal
The CARE Principles for Indigenous Data Governance are a seminal advance in the stewardship of Indigenous data. The Data Services for Indigenous Scholarship and Sovereignty (DSISS) project is working to guide how research libraries and data repositories ...
Miranda Belarde-Lewis, Sandra Littletree, Iisaaksiichaa Ross Braine, Kaitlin Srader, Nestor Guerrero, Carole L. Palmer   +5 more
doaj   +1 more source

Developing the Principles of Parental Mental Health in the Neonatal Intensive Care Unit (NICU) [PDF]

Iranian Journal of Neonatology, 2017
Background: Hospitalization of infants in the neonatal intensive care unit (NICU) may disrupt the proper interaction with infants and lead to anxiety and depression, while adversely affecting the role of families.
Haydeh Heidari, Mohammad heidarzadeh
doaj   +1 more source

Applying Economic Principles to Health Care

Emerging Infectious Diseases, 2001
Applying economic thinking to an understanding of resource use in patient care is challenging given the complexities of delivering health care in a hospital.
R. Douglas Scott, Steven L. Solomon, John E. McGowan   +2 more
doaj   +1 more source

Implementing the FAIR and CARE Principles Simultaneously: Emerging Insights from IPBES

Data Science Journal
The FAIR principles are considered to be an essential set of guidelines to make data as open as possible. However, the FAIR principles do not do justice to the data sovereignty of Indigenous Peoples. Therefore, as a counterweight to the openness of FAIR,
Renske M. Gudde, Rainer M. Krug, Yanina V. Sica, Howard P. Nelson, Félicie Françoise, Manuela Gómez-Suárez, Aidin Niamir   +6 more
doaj   +1 more source

Caring for VIPs: Nine principles

Cleveland Clinic Journal of Medicine, 2011
Caring for very important persons (VIPs), including celebrities and royalty, presents medical, organizational, and administrative challenges, often referred to collectively as the "VIP syndrome." The situation often pressures the health care team to bend the rules by which they usually practice medicine.
Jorge A, Guzman, Madhu, Sasidhar, James K, Stoller   +2 more
openaire   +2 more sources

Research Data Management and Crowdsourcing Personal Histories

Journal of Open Humanities Data
Drawing on experiences of the University of Oxford’s Sustainable Digital Scholarship (SDS) service and the World War Two crowdsourcing project ‘Their Finest Hour’, this paper explores how institutional digital repositories (such as the SDS platform) can ...
Catherine Conisbee
doaj   +1 more source

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Therapeutic Apheresis for Intravenous Methylprednisolone‐Refractory Neuromyelitis Optica Spectrum Disorder: Clinical and Radiological Outcomes in a Single‐Center Case Series

Therapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Background Neuromyelitis optica spectrum disorder (NMOSD) is a relapsing autoimmune disease of the central nervous system. High‐dose intravenous methylprednisolone (IVMP) is the standard first‐line therapy for acute attacks, although some patients remain refractory.
Wataru Horiguchi, Daisuke Katagiri, Takeyuki Watadani, Shunichi Matsuda, Hiroshi Kaneko, Noritoshi Arai   +5 more
wiley   +1 more source