Results 21 to 30 of about 264,137 (313)

Compassionate love parenting training to reduce stress in caregivers of children with special needs: An experimental study

Psikohumaniora: Jurnal Penelitian Psikologi, 2023
Caregivers of children with special needs experience a high workload, which causes stress and low quality of life. A compassionate love attitude amongst caregivers is needed to improve the quality of parenting.
Dinie Ratri Desiningrum, Donna Hermawati, Maman Somantri, Yeniar Indriana, Alhimna Rusydana   +4 more
doaj   +1 more source

The effects of the family-centered empowerment model on self-efficacy and self-esteem among the family caregivers of patients with prosthetic heart valve: A controlled clinical trial

Nursing and Midwifery Studies, 2020
Background: Patients with heart valve disease need to receive long-term care from their family members after surgical valve replacement. Thus, family caregivers should have adequate self-efficacy for patient care.
Fahimeh Abedini, Armin Zareiyan, Fatemeh Alhani   +2 more
doaj   +1 more source

Burden prevention in the family caregiver of the schizophrenic patient

, 2023
openPROBLEMA: La schizofrenia è una patologia psichiatrica molto debilitante e complessa la quale ha un’incidenza dell’1% nella popolazione mondiale e compare per la prima volta in giovane età.
MUFFATTO, ELENA
core  

The formal and informal caregiver network for minors in Pediatric Hospice. A research in collaboration with the Veneto Regional Center for Pediatric Palliative Care and Analgesic Therapy. [PDF]

, 2022
openL’argomento affrontato nella ricerca deriva dall’interesse nell’approfondire il concetto di bisogno, di supporto del caregiver principale del minore preso in carico dalle Cure Palliative Pediatriche.
SCREMIN, VITTORIA
core  

Co‐creating an everyday language illustration of learning health systems alongside patient, caregiver, and community partners

Learning Health Systems
Introduction Patients, caregivers, and community partners (PCC) can have a variety of roles in learning health systems (LHS), such as contributing their data from healthcare encounters to embedded, continuous engagement where they identify health system ...
Shelley Vanderhout, Maureen Smith, Nakia Lee‐Foon, Amanda Doherty‐Kirby, Rona Fleming, Don Grant, Annie‐Danielle Grenier, John Grogan, Roger Farley, Margaret King, Chris Johnston, Virgil Luca, Lisa Ridgway, Donna Rubenstein, Candace Skrapek, Kerry Kuluski   +15 more
doaj   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Caregiver recruitment and engagement: identifying best practices and strategies for including family caregivers of veterans in health services research

BMC Health Services Research
Background Family caregivers are integral to the care of patients and possess important perspectives regarding improving healthcare delivery. Yet, caregivers are seldom engaged in research in part because of challenges recruiting and retaining them.
Victoria Ngo, Luci K. Leykum, Andrea F. Kalvesmaki, Stuti Dang, Polly H. Noël, Mary Jo Pugh, Roxana E. Delgado, Erin D. Bouldin, Julie Parish, Ranak B. Trivedi, Elizabeth Dole Center of Excellence for Veteran and Caregiver Research Team   +10 more
doaj   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

The Assessment of Caregiver Burden in Caregivers of Hemodialysis Patients [PDF]

Materia Socio Medica, 2015
Chronic renal failure is among the chronic disease which due to persistence of the disease and long treatment process has various effects on the physiological, psychological, functional ability, lifestyle changes, and independence status of the patient and his family. This may result in the burden feeling in caregivers.
Mashayekhi, Fatemeh, Pilevarzadeh, Motahareh, Rafati, Foozieh   +2 more
openaire   +2 more sources

Serological Benefit of SARS‐CoV‐2 Vaccination Relative to Infection in Children With Acute Lymphoblastic Leukemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Children with acute lymphoblastic leukemia (ALL) are at risk of severe outcomes from SARS‐CoV‐2 (SCV2). In the post‐pandemic context, where most children have been infected with SCV2, there are limited data on whether vaccination remains beneficial in children with ALL.
Janna R. Shapiro, Freda Qi, Karen Colwill, Alina D. Dorogy, Ying Liu, Michelle Science, Anne‐Claude Gingras, James M. Rini, Sumit Gupta, Sarah Alexander, Shelly Bolotin, Tania H. Watts   +11 more
wiley   +1 more source