Results 151 to 160 of about 160,038 (284)

Down Syndrome and Alzheimer's Disease: A Qualitative Study Exploring Understanding and Perceptions of Dementia and Diagnostic Pathways Among People With Down Syndrome and Their Families

open access: yesJournal of Intellectual Disability Research, EarlyView.
ABSTRACT Background People with Down syndrome are at high risk of Alzheimer's disease. Dementia diagnosis and support are a growing challenge for health and social care systems. There is limited knowledge of the perceptions of dementia and dementia diagnostic pathways among people with Down syndrome and their families.
M. L. Healy   +3 more
wiley   +1 more source

The Experience of Care in People With Palliative Needs and Their Families: A Qualitative Metasynthesis

open access: yesJournal of Clinical Nursing, EarlyView.
ABSTRACT Aim To synthesise and reinterpret qualitative evidence on how people with palliative care needs and their family caregivers experience the care process. Background Palliative care aims to provide holistic, person‐ and family‐centred care.
Ana Gil Méndez   +8 more
wiley   +1 more source

Traumatic grief after disasters worldwide

open access: yes, 2019
Experiencing the death of a significant other due to a disaster heightens the risk of disturbed grief with comorbid posttraumatic stress disorder (PTSD) and depression, also referred to as traumatic grief.
Heeke, C.   +3 more
core  

Togetherness in Couples Living With Chronic Obstructive Pulmonary Disease: An Interpretive Interview Study

open access: yesJournal of Clinical Nursing, EarlyView.
ABSTRACT Aim To explore how persons with chronic obstructive pulmonary disease (COPD) and partners experience illness‐related changes in shared everyday life and intimacy, and how these changes affect well‐being. Design An interpretive phenomenological interview study.
Louise Muxoll Gronhaug   +4 more
wiley   +1 more source

Effectiveness of Family‐Focused End of Life and Bereavement Interventions Across Neonatal, Paediatric, and Adult Intensive Care: An Overview of Reviews

open access: yesJournal of Clinical Nursing, EarlyView.
ABSTRACT Background Intensive Care Units (ICUs) care for critically ill patients across all age groups, with many deaths occurring during or shortly after admission. For families, this can be associated with significant psychological distress, including prolonged grief, depression, and post‐traumatic stress.
Melissa Riegel   +4 more
wiley   +1 more source

The Impact of Social Participation Interventions on Quality of Life of Older Adults in Residential Aged Care Facilities: A Systematic Review

open access: yesJournal of Clinical Nursing, EarlyView.
ABSTRACT Aim To examine the impact of social participation interventions on the quality of life of older adults in residential aged care home settings. Design Systematic review. Methods The inclusion criteria were articles published in English language between 2015 and 2025, peer‐reviewed articles, availability of full‐text, and conducted in ...
Sara Habibian   +4 more
wiley   +1 more source

Psychosocial Repercussions and Challenges in Accessing Healthcare for Young Women With Breast Cancer in Brazil: A Qualitative Thematic Analysis

open access: yesJournal of Clinical Nursing, EarlyView.
ABSTRACT Background Breast cancer in young women is a complex experience that goes beyond biomedical treatment, involves challenges in accessing healthcare, and has psychosocial and relational repercussions. Despite the growing recognition of these dimensions, qualitative studies exploring these experiences in the Brazilian context are still scarce ...
Helena Fiats Ribeiro   +8 more
wiley   +1 more source

Towards an integrated conceptualization of traumatic grief

open access: yes, 2019
Recently, the diagnoses Persistent Complex Bereavement Disorder (PCBD) and prolonged grief disorder (PGD) have been included in DSM-5 and ICD-11, respectively.
Djelantik, A.A.A.M.J.   +3 more
core  

Erased by law: Kinship, care, and bureaucratic exclusion at the end of life in South Korea

open access: yesMedical Anthropology Quarterly, EarlyView.
Abstract This article examines how institutional frameworks in South Korea erase nonlegal caregiving relationships within hospice care environments. Drawing on seven months of ethnographic fieldwork, the study delineates how patients are categorized as “unclaimed” despite the presence of long‐term companions or cohabitants who provide intimate end‐of ...
Seok Joo Youn
wiley   +1 more source

“They need to get a new program”: Experiential frictions with the gender of care in the 12 step program for ethnically Mexican women

open access: yesMedical Anthropology Quarterly, EarlyView.
Abstract Using gender as an analytic, I parse out how the historical gendered, classed, and racialized roots of the 12 Step Program remain present in its therapeutic model, even in global contexts beyond its original formulation. These foundations continue to shape therapeutic logics and experience within the Program, in positive and negative ways.
Ellen E. Kozelka
wiley   +1 more source

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