Results 51 to 60 of about 8,251 (253)

Anticipatory grief of spousal and adult children caregivers of people with dementia

BMC Palliative Care, 2018
Background Anticipatory grief (AG) among caregivers of people with dementia is common and has been found to be related to negative health outcomes. Previous studies showed different patterns of AG between spousal and adult children caregivers of people ...
Daphne Sze Ki Cheung, Ken Hok Man Ho, Tsz Fung Cheung, Simon Ching Lam, Mimi Mun Yee Tse   +4 more
doaj   +1 more source

Resolution of a Parent’s Disease: Attachment and Well-Being in Offspring of Parents Diagnosed with Parkinson’s Disease

Journal of Parkinson’s Disease, 2022
Background: Parkinson’s disease (PD) is one of the most common chronic, progressive neurodegenerative diseases, with well-developed research focusing on the caregiver-spouse showing low well-being along with predeath grief and feelings of loss among ...
Alon Goldberg
doaj   +1 more source

The psychosocial toll of Dublin III on asylum seekers in the Netherlands

American Journal of Community Psychology, EarlyView.
Abstract The Dublin III Regulation determines which EU Member State is responsible for examining asylum claims, but its implementation carries significant consequences for those subjected to it. This study examines how Dublin III, as implemented in the Netherlands, affects asylum seekers' psychosocial wellbeing using Silove′s Adaptation and Development
Imen El Amouri
wiley   +1 more source

The Diagnosis That Arrived Decades Late: Living Without and Then With Myhre Syndrome

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Myhre syndrome (MIM #139210) is a rare multisystem disorder first described in 1981, characterized by short stature, neurodevelopmental delay, joint contractures, and cardiopulmonary complications. Its molecular basis, recurrent pathogenic variants in SMAD4, was not discovered until 2011. This narrative is based on a review of medical records,
Abdallah F. Elias
wiley   +1 more source

THE GRIEVING PROCESS EXPERIENCED FAMILY AND CHARGES IN TREATING CHILDREN WITH AUTISM

Jurnal Ners, 2017
Introduction: Children with autism will be a stressor to their family. This research aims to describe about family grieving process and family burden when taking care of their children with autism at Special Needs School Bangun Bangsa, Surabaya.
Rizki Fitryasari Patra Koesoemo
doaj   +1 more source

National Disability Insurance Scheme and Quality of Life Among Carers of Children With Autism Spectrum Disorder in Australia: A Thematic Analysis

Australian Journal of Social Issues, EarlyView.
ABSTRACT Diagnoses of autism spectrum disorder in Australia have increased considerably in recent years. The current study investigated how the National Disability Insurance Scheme (NDIS) impacts quality of life (QoL) among carers of children with autism spectrum disorder.
Jesse Gerhard, Sharon L. Grant
wiley   +1 more source

Mental health impacts experienced by caregivers of people with Dravet syndrome: A systematic literature review

Epilepsia, EarlyView.
Graphical abstract for the systematic literature review. Abstract Objective Dravet syndrome (DS) places tremendous burden on caregivers owing to the extent of required assistance and impact on daily living, as well as the risk to the individual with DS of premature mortality from sudden unexpected death in epilepsy and morbidity associated with ...
Adam Strzelczyk, Mary Anne Meskis, Galia Wilson, Bobby Jacob, Christoph Helmstaedter, Jane von Gaudecker, Veronica Hood, Ceri Hughes, Michael Scott Perry   +8 more
wiley   +1 more source

A problem shared is a problem halved? Comparing burdens arising for family caregivers of patients with disorders of consciousness in institutionalized versus at home care

BMC Psychology, 2018
Background Disorders-of-consciousness (DOC) are rare conditions leading to very severe physical and mental disabilities. Providing care for DOC patients has been described as a stressful experience, eroding the physical and psychological health of the ...
Inga Steppacher, Johanna Kissler
doaj   +1 more source

Caregiving and bereavement research: Bridges over the gap [PDF]

, 2015
The authors reflect on the advancements in the integration of caregiving and bereavement research. They state that they observe increasing evidence of continuity in caregiving and bereavement investigation and integration.
Trauma and Grief, Stroebe, M.S., Leerstoel Bockting, Stroebe, Margaret, Boerner, Kathrin, Boerner, K.   +5 more
core   +1 more source

Adverse Childhood Experiences and Substance Use: The Mediating Role of Executive Function Deficits

Journal of Adolescence, EarlyView.
ABSTRACT Introduction While adverse childhood experiences (ACEs) are robust risk factors for adolescent substance use, the prospective neurocognitive pathways linking both cumulative and specific adversities to substance use remain understudied. This study tested a vulnerability model by examining whether executive function (EF) deficits mediate the ...
Mahsa P. Yousefkhani, Xiafei Wang, Sara A. Vasilenko   +2 more
wiley   +1 more source