Results 51 to 60 of about 35,801 (248)

THE GRIEVING PROCESS EXPERIENCED FAMILY AND CHARGES IN TREATING CHILDREN WITH AUTISM

Jurnal Ners, 2017
Introduction: Children with autism will be a stressor to their family. This research aims to describe about family grieving process and family burden when taking care of their children with autism at Special Needs School Bangun Bangsa, Surabaya.
Rizki Fitryasari Patra Koesoemo
doaj   +1 more source

Caregivers in anorexia nervosa: is grief underlying parental burden?

Eating and Weight Disorders - Studies on Anorexia, Bulimia and Obesity, 2022
Abstract Purpose Anorexia Nervosa (AN) is a severe chronic disorder and parents’ experience of caregiving is usually marked by emotional distress and burden. Severe chronic psychiatric disorders are known to be linked with the concept of grief. Grief has not been investigated in AN.
Jeanne Duclos, Giulia Piva, Élise Riquin, Christophe Lalanne, Dominique Meilleur, Soline Blondin, Sylvie Berthoz, Jeanne Duclos, Lama Mattar, Hélène Roux, Marie-Raphaële Thiébaud, Sarah Vibert, Tamara Hubert, Annaig Courty, Damien Ringuenet, Jean-Pierre Benoit, Corinne Blanchet, Marie-Rose Moro, Laura Bignami, Clémentine Nordon, Frédéric Rouillon, Solange Cook, Catherine Doyen, Marie-Christine Mouren, Priscille Gerardin, Sylvie Lebecq, Marc-Antoine Podlipski, Claire Gayet, Malaika Lasfar, Marc Delorme, Xavier Pommereau, Stéphanie Bioulac, Manuel Bouvard, Jennifer Carrere, Karine Doncieux, Sophie Faucher, Catherine Fayollet, Amélie Prexl, Stéphane Billard, François Lang, Virginie Mourier-Soleillant, Régine Greiner, Aurélia Gay, Guy Carrot, Sylvain Lambert, Morgane Rousselet, Ludovic Placé, Jean-Luc Venisse, Marie Bronnec, Bruno Falissard, Christophe Genolini, Christine Hassler, Jean-Marc Tréluyer, Olivier Chacornac, Maryline Delattre, Nellie Moulopo, Christelle Turuban, Christelle Auger, Solange Cook-Darzens, Nathalie Godart   +59 more
openaire   +4 more sources

The Diagnosis That Arrived Decades Late: Living Without and Then With Myhre Syndrome

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Myhre syndrome (MIM #139210) is a rare multisystem disorder first described in 1981, characterized by short stature, neurodevelopmental delay, joint contractures, and cardiopulmonary complications. Its molecular basis, recurrent pathogenic variants in SMAD4, was not discovered until 2011. This narrative is based on a review of medical records,
Abdallah F. Elias
wiley   +1 more source

Faktor-faktor yang Memengaruhi Anticipatory Grief pada Family Caregiver Pasien yang Didiagnosis Kanker: Narrative Literature Review

Jurnal Keperawatan Klinis dan Komunitas (Clinical and Community Nursing Journal)
Background: Family caregiver of patients with cancer often experience anticipatory grief (AG) when providing care. Although previous studies have explored AG in cancer contexts, most findings remain fragmented and focus only on isolated variable ...
I Gusti Ayu Winda Madani, Luh Made Karisma Sukmayanti Suarya   +1 more
doaj   +1 more source

National Disability Insurance Scheme and Quality of Life Among Carers of Children With Autism Spectrum Disorder in Australia: A Thematic Analysis

Australian Journal of Social Issues, EarlyView.
ABSTRACT Diagnoses of autism spectrum disorder in Australia have increased considerably in recent years. The current study investigated how the National Disability Insurance Scheme (NDIS) impacts quality of life (QoL) among carers of children with autism spectrum disorder.
Jesse Gerhard, Sharon L. Grant
wiley   +1 more source

A problem shared is a problem halved? Comparing burdens arising for family caregivers of patients with disorders of consciousness in institutionalized versus at home care

BMC Psychology, 2018
Background Disorders-of-consciousness (DOC) are rare conditions leading to very severe physical and mental disabilities. Providing care for DOC patients has been described as a stressful experience, eroding the physical and psychological health of the ...
Inga Steppacher, Johanna Kissler
doaj   +1 more source

Predeath Grief, Resourcefulness, and Perceived Stress Among Caregivers of Partners With Young-Onset Dementia [PDF]

, 2019
More than 200,000 Americans are currently diagnosed with young-onset dementia (YOD). YOD is dementia diagnosed prior to the age of 65. Most persons of YOD are cared for by their partners.
Bekhet, Abir K., Frenn, Marilyn, Garnier-Villarreal, Mauricio, Kobiske, Karie Ruekert   +3 more
core   +1 more source

Mental health impacts experienced by caregivers of people with Dravet syndrome: A systematic literature review

Epilepsia, EarlyView.
Graphical abstract for the systematic literature review. Abstract Objective Dravet syndrome (DS) places tremendous burden on caregivers owing to the extent of required assistance and impact on daily living, as well as the risk to the individual with DS of premature mortality from sudden unexpected death in epilepsy and morbidity associated with ...
Adam Strzelczyk, Mary Anne Meskis, Galia Wilson, Bobby Jacob, Christoph Helmstaedter, Jane von Gaudecker, Veronica Hood, Ceri Hughes, Michael Scott Perry   +8 more
wiley   +1 more source

The Non‐Professional Virtues of the Hospice Volunteer

Journal of Applied Philosophy, EarlyView.
ABSTRACT Volunteers have long played a significant role in hospice care. Much of the care volunteers provide consists of weekly hour‐long in‐home visits. Home‐visiting hospice volunteers are not professionals, nor are they strangers or intimates. Hospice volunteers will not typically face moral dilemmas, nor be called upon to make dramatic decisions ...
Michael B. Gill
wiley   +1 more source

The We‐Relationship as a Key to Addressing Dementia‐Related Ambiguous Loss

Journal of Applied Philosophy, EarlyView.
ABSTRACT Pauline Boss describes the challenges faced by people caring for family members with dementia in terms of ambiguous loss – a condition in which the physical presence of the person with dementia coexists with their psychological absence. This article proposes the concept of we‐relationship as a key to addressing dementia‐related ambiguous loss.
Takuya Niikawa, Xue Li
wiley   +1 more source