Raising a child with an Autism Spectrum Disorder : the experience of stigma by association, its impact on caregiver wellbeing, the influence of signature strengths, and the experience of growth : a thesis presented in partial fulfillment of the requirements for the degree of Doctorate of Clinical Psychology at Massey University, Manawatu, New Zealand [PDF]
The life of a child with an Autism Spectrum Disorder (ASD) is known to include many difficulties, not only due to social, behavioural and communication difficulties, but also as the child does not fit society’s specifications of ‘normal.’ Stressors ...
Weastell, Katie
core
Family caregivers of people with dementia
Family caregivers of people with dementia, often called the invisible second patients, are critical to the quality of life of the care recipients. The effects of being a family caregiver, though sometimes positive, are generally negative, with high rates
H. Brodaty, M. Donkin
semanticscholar +1 more source
Exploring Oral Health Related Quality of Life in Rett Syndrome Using Directed Content Analysis
ABSTRACT No validated oral health‐related quality of life (OHRQOL) instrument currently exists for those with severe intellectual and developmental disabilities and who communicate non‐verbally. This qualitative study aimed to explore the domains that were important to the oral health‐related quality of life in individuals with Rett syndrome (RTT).
Yvonne Yee Lok Lai+4 more
wiley +1 more source
Cuidadores formais de idosos: contextualização histórica no cenário brasileiro
A presente atualização teve como intuito discorrer sobre o histórico de cuidadores formais no contexto brasileiro, destacando os principais marcos regulatórios e espaços de discussão nacional acerca do tema.
Marina Picazzio Perez Batista+2 more
doaj +1 more source
Effects of clown doctors on child and caregiver anxiety at the entrance to the surgery care unit and separation from caregivers [PDF]
This study investigated the effects of hospital Clown Doctors intervention on child and caregiver preoperative anxiety at the entrance to the surgery care unit and separation from caregivers.
Arriaga, Patrícia, Pacheco, Catarina
core +1 more source
Design and introduction of a quality of life assessment and practice support system: perspectives from palliative care settings [PDF]
Background: Quality of life (QOL) assessment instruments, including patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs), are increasingly promoted as a means of enabling clinicians to enhance person-centered care.
Hilliard, Neil+10 more
core +2 more sources
BackgroundUnderstanding the perspectives of caregivers of children with developmental disorders living in low-income countries is important to inform intervention programmes.
D. Tilahun+5 more
semanticscholar +1 more source
ABSTRACT This exploratory cross‐sectional study aimed to estimate the family quality of life (FQoL) among 70 Brazilian families with children with Cornelia de Lange syndrome (CdLS). Data were collected using sociodemographic and clinical data forms, the Barthel index for activities of daily living, and the Beach Center FQoL Scale, a 5‐point Likert tool
Aline Apis+8 more
wiley +1 more source
Challenges of Family Caregivers of Patients with Mental Disorders in Iran: A Narrative Review
Background: Family caregivers of patients with mental disorders play the most important role in the care of psychiatric patients (PPs) and preventing their readmission. These caregivers face different challenges in different cultures.
M. Akbari+3 more
semanticscholar +1 more source
ABSTRACT Sotos syndrome is an autosomal dominant condition caused by pathogenic variants in the NSD1 gene on chromosome 5q35. It is characterized by macrosomia, distinctive facial features, and developmental delays. Patients are also reported to have a behavioral phenotype including autism spectrum disorder, attention deficit/hyperactivity disorder ...
Aravind Viswanathan+4 more
wiley +1 more source