Results 161 to 170 of about 989,120 (394)

Genome Sequencing Uncovers Additional Findings in Phelan‐McDermid Syndrome

American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, EarlyView.
ABSTRACT Phelan‐McDermid syndrome (PMS) is a genetic condition caused by deletions of chromosome 22q13.3 or pathogenic variants in the SHANK3 gene. Neurologic features typically include intellectual disability, autism spectrum disorder, hypotonia, and absent speech, though there is considerable variability even among individuals with the same molecular
Rachel Gore Moses, Morgan Similuk, Alexandra Hehn, Rylee Duncan, Margaret Pekar, Eliza Gordon‐Lipkin, Maria T. Acosta, Deena Zeltser, Nadjalisse Reynolds‐Lallement, Latha Soorya, Mustafa Sahin, Tess Levy, Alexander Kolevzon, Joseph D. Buxbaum, Elizabeth Berry‐Kravis, Craig M. Powell, Jonathan A. Bernstein, Mari Tokita, Bryce A. Seifert, Rajarshi Ghosh, Magdalena A. Walkiewicz, Audrey Thurm   +21 more
wiley   +1 more source

More Social Needs Endorsed by Caregivers of Young Children Experiencing Everyday Discrimination [PDF]

, 2018
Background: Both discrimination and social needs are underlying risk factors for poor health outcomes; however, there are no studies looking at how feelings of discrimination impact reporting of social needs in the pediatric health care setting ...
Abatemarco, PhD, MSW, Diane, Critchlow, Elizabeth, Datto, MD, George, Phan, MD, MPH, Thao-Ly, Robbins, MD, MPH, Jennifer, Spencer, PhD, Tirzah   +5 more
core   +1 more source

Reducing Caregiver Burden: A Randomized Psychoeducational Intervention for Caregivers of Persons With Dementia [PDF]

, 1999
Sharon K. Ostwald, Kenneth Hepburn, Wayne Caron, Theressa Burns, Rhys Mantell   +4 more
openalex   +1 more source

Beyond administrative burden: Activation and administrative harm

Australian Journal of Social Issues, EarlyView.
Abstract Within recent public policy and administration scholarship, there has been a growing focus on the concept of “administrative burden” to describe the learning, compliance and psychological costs incurred by citizens when trying to access services and exercise social and political rights. Specifically, in the context of activation and welfare‐to‐
Michael McGann, Sarah Ball
wiley   +1 more source

Age-related hearing loss in individuals and their caregivers: effects of coping on the quality of life among the dyads

Patient Preference and Adherence, 2016
Sébastien Lazzarotto,1,2 Karine Baumstarck,1 Anderson Loundou,1 Zeinab Hamidou,1,3 Valérie Aghababian,1 Tanguy Leroy,1,4 Pascal Auquier1 1EA 3279, Self-Perceived Health Assessment Research Unit, School of Medicine, Aix Marseille Universit ...
Lazzarotto S, Baumstarck K, Loundou A, Hamidou Z, Aghababian V, Leroy T, Auquier P   +6 more
doaj  

Elder Abuse Assessment Tools and Interventions for use in the Home Environment: a Scoping Review

Clinical Interventions in Aging, 2020
Kathleen Van Royen,1,2 Paul Van Royen,1 Liesbeth De Donder,3 Robbert J Gobbens1,4,5 1Department of Primary and Interdisciplinary Care, University of Antwerp, Antwerp, Belgium; 2Department of Communication Studies, University of Antwerp, Antwerp, Belgium;
Van Royen K, Van Royen P, De Donder L, Gobbens RJ   +3 more
doaj  

Long-term prevalence and predictors of prolonged grief disorder amongst bereaved cancer caregivers: A cohort study [PDF]

, 2019
Context: The short-term impact of prolonged grief disorder (PGD) following bereavement is well documented. The longer term sequelae of PGD however are poorly understood, possibly unrecognized, and may be incorrectly attributed to other mental health ...
Bell, Melanie L, Hall, Christopher, Hudson, Peter, Lobb, Elizabeth, Price, Melanie, Remedios, Cheryl, Zordan, Rachel D   +6 more
core   +1 more source

Gender and Relationship Differences in Caregiving Patterns and Consequences Among Employed Caregivers [PDF]

, 1997
Margaret B. Neal, Berit Ingersoll‐Dayton, Marjorie E. Starrels   +2 more
openalex   +1 more source

How is therapeutic residential care constructed within key policy documents ?

Australian Journal of Social Issues, EarlyView.
Abstract Therapeutic residential care (TRC) is a mode of delivering out‐of‐home care (OOHC) that can help meet the needs of some of Australia's most vulnerable young people and their families. TRC programmes aim to support young people to develop positive relationship experiences in a safe and stable environment.
Lynne McPherson, Antonia Canosa, Kathomi Gatwiri, Donnah Anderson, Kylie Day, Robbie Gilligan, Anne Graham, Janise Mitchell, Tim Moore, Meaghan Vosz   +9 more
wiley   +1 more source

Culture, Connection and Care: The Role of Institutional Justice Capital for Enhancing the Wellbeing of Aboriginal and Torres Strait Islander Children in Out‐Of‐Home Care

Australian Journal of Social Issues, EarlyView.
ABSTRACT Ensuring that Aboriginal and Torres Strait Islander children removed from their families by child protection services remain connected to their kin, Country and culture is a priority to begin to redress the intergenerational trauma and harm caused by colonisation.
Sharynne Hamilton, Larissa Jones, Millie Penny, Charmaine Pell, Sarah Maslen, Carol Michie, Raewyn Mutch, Melissa O’Donnell, Carrington Shepherd, Brad Farrant   +9 more
wiley   +1 more source