Results 41 to 50 of about 825,134 (282)

A comparative study to identify factors of caregiver burden between baby boomers and post baby boomers: a secondary analysis of a US online caregiver survey

BMC Public Health, 2018
Background Baby boomers’ position in the caregiving context is shifting from caregiver to care recipient as the population ages. While the unique characteristics of baby boomer caregivers are well established in caregiving literature, there is limited ...
Heejung Kim, Sangeun Lee, Jooyoung Cheon, Soyun Hong, Mido Chang   +4 more
doaj   +1 more source

Predictors of family caregiving burden of persons with schizophrenia with and without transition of primary caregivers from 1994 to 2015 in rural China

BJPsych Open, 2022
Background Little is known about how sociodemographic and clinical factors affect the caregiving burden of persons with schizophrenia (PwSs) with transition in primary caregivers.
Man-Man Peng, Zhiying Ma, She-Ying Chen, Wei Luo, Shi-Hui Hu, Xin Yang, Bo Liu, Cecilia Lai-Wan Chan, Mao-Sheng Ran   +8 more
doaj   +1 more source

Severe Headbanging Responsive to Levodopa in a Child With FOXP1 Syndrome

American Journal of Medical Genetics Part A, EarlyView.
ABSTRACT We report a 9‐year‐old female with FOXP1 syndrome due to a de novo in‐frame deletion in the FOXP1 gene. The child has a severe neurodevelopmental disorder including global developmental delay and autism spectrum disorder. At age 2, she developed severe headbanging, which was progressive and did not respond to multidisciplinary, behavioral ...
Pamela Veale, Christopher Tiessen, Vithya Gnanakumar   +2 more
wiley   +1 more source

A Composite Measure of Caregiver Burden in Dementia: The Dementia Burden Scale—Caregiver [PDF]

Journal of the American Geriatrics Society, 2018
Objectives To better capture the scope of caregiver burden by creating a composite of 3 existing measures that assess different health domains. Design Prospective follow‐up study.
John D. Peipert, Lee A. Jennings, Ron D. Hays, Neil S. Wenger, Emmett Keeler, David B. Reuben   +5 more
openaire   +4 more sources

Reframing Trisomy 13 and 18 Care: Moving Beyond the Myth of “Incompatibility With Life” in a South African and Low‐and Middle‐Income Country Context

American Journal of Medical Genetics Part A, EarlyView.
ABSTRACT Trisomy 13 (T13) and trisomy 18 (T18) have historically been described as “lethal” or “incompatible with life,” contributing to diagnosis‐based limitations of care. Contemporary evidence demonstrates greater heterogeneity in survival and outcomes than previously recognized, including among selected children receiving intensive care or cardiac ...
H. L. Malherbe, M. Araujo, L. Balimba, J. A. Joshi, P. Makhetha, M. Meiring, M. T. Mpe, D. Reddy, B. Shingwenyana, J. C. Carey   +9 more
wiley   +1 more source

Caregiver Burden in Chronic Diseases: Role of Perceived Social Support and Duration of Care in Arthritis and Diabetes

Pakistan Armed Forces Medical Journal
Objective: To assess the relationship between caregiver burden and perceived social support, and caregiver burden and caregiving duration of arthritis and diabetes, and to analyze gender differences.
Maryam Umar, Maryam Farooq Munir, Saima Majeed   +2 more
doaj   +1 more source

The Burden and Benefits of Caregiving: A Latent Class Analysis

, 2018
Background and Objectives Informal caregiving to older adults is a key part of the U.S. long-term care system. Caregivers’ experiences consist of burden and benefits, but traditional analytic approaches typically consider dimensions ...
Teja Pristavec
core   +1 more source

Caregiving burden, depression, and anxiety in family caregivers of patients with cancer

, 2021
Purpose: The purpose of this cross-sectional study was to determine the caregiving burden, depression and anxiety of family caregivers of Turkish patients with cancer and the affecting factors.
Unsar, Serap, Erol, Ozgul, Ozdemir, Ozlem   +2 more
core   +2 more sources

Milestone Attainment in Young Children With Arthrogryposis Multiplex Congenita: Developmental Profile and Associated Factors

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Evidence on developmental milestones in children with arthrogryposis multiplex congenita (AMC) under the age of five is scarce. This multisite cross‐sectional study described developmental status and examined factors associated with milestone attainment in 143 children aged 0–66 months from a pediatric AMC Registry.
Ahlam Zidan, Sophia C. Pasia, Emmanouil Rampakakis, Reggie Hamdy, Frank Rauch, Lauren C. Hyer, Joel Lerman, Haluk Altiok, Krister Freese, Cary Mielke, Sarah B. Nossov, Philip F. Giampietro, Thania Ordaz‐Robles, Noémi Dahan‐Oliel   +13 more
wiley   +1 more source

The EXPLAIN Study: Exploring Arthrogryposis Multiplex Congenita in Adults in Norway — A Description of Demographic, Medical, and Neurological Findings

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Arthrogryposis Multiplex Congenita (AMC) encompasses several hundred conditions with diverse genetic, pathophysiological, and clinical origins. The overarching EXPLAIN study explores underlying causes and implications of AMC and represents the largest clinical cohort of adults with AMC reported to date.
My Vuong Hermansen, Kristin Ørstavik, Unni Steen, Mathias Toft, Cathrine Brunborg, Lena Lande Wekre   +5 more
wiley   +1 more source