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Young Carers [PDF]

open access: yesBritish Journal of General Practice, 2014
Until the 1990s, the roles that children and young people undertake in providing informal family care received virtually no academic or policy recognition. If awareness of these children did exist, they were generally referred to as “young carers,” although different countries have different phrases (for example, “young caregivers” in the United States
Leu, Agnes, Becker, Saul
openaire   +5 more sources

Fatigue and Its Association With Quality of Life Among Carers of Patients Attending Psychiatric Emergency Services During the COVID-19 Pandemic

open access: yesFrontiers in Psychiatry, 2021
Aims: Carers of psychiatric patients often suffered from mental and physical burden during the coronavirus disease 2019 (COVID-19) pandemic due to the lack of mental health services. This study investigated the pattern of fatigue and its association with
Xiao Ji   +8 more
doaj   +1 more source

Screening Social Anxiety in Adolescents Through the Eyes of Their Carers

open access: yesFrontiers in Psychology, 2021
Despite the availability of efficacious treatment and screening protocols, social anxiety disorder (SAD) in adolescents is considerably under-detected and undertreated.
Luis-Joaquin Garcia-Lopez   +3 more
doaj   +1 more source

Innovative methods for involving people with dementia and carers in the policymaking process

open access: yesHealth Expectations, 2021
Background There are few examples of public patient involvement in policymaking for groups whose ability to participate may be affected by a disability, particularly for people with dementia and their family carers. Principles of engagement and inclusion
Fiona Keogh   +2 more
doaj   +1 more source

Applying Outcomes in Community-Based Social Care Practice in England

open access: yesJournal of Long-Term Care, 2023
Context: Social care outcomes (the effect of services on the quality of life of people with support needs and unpaid carers) have been proposed as a way of improving the quality and effectiveness of care.
Stacey Rand   +4 more
doaj   +1 more source

Understanding what affects psychological morbidity in informal carers when providing care at home for patients at the end of life: a systematic qualitative evidence synthesis

open access: yesHealth and Social Care Delivery Research, 2023
Background Informal carers are central in supporting patients at the end of life, but this has substantial negative impacts on carers’ own mental health.
Kerin Bayliss   +14 more
doaj   +1 more source

The carer persona: Masking individual identities

open access: yesPersona Studies, 2015
According to Jungian theory, ‘persona’ is a concept reflecting a compromise between the individual and society. In mediating between a person’s subjective inner world and the external social world, the persona represents a generalised idea of the self ...
Timothy R. Broady
doaj   +1 more source

Adding to the knowledge on Patient and Public Involvement: Reflections from an experience of co‐research with carers of people with dementia

open access: yesHealth Expectations, 2020
Background Patient and Public Involvement (PPI) in research ensures that publicly funded research reflects the priorities of the people who will be affected by its results.
Claudio Di Lorito   +6 more
doaj   +1 more source

Improving care for people with dementia: development and initial feasibility study for evaluation of life story work in dementia care

open access: yesHealth Services and Delivery Research, 2016
Background: Improving dementia care quality is an urgent priority nationally and internationally. Life story work (LSW) is an intervention that aims to improve individual outcomes and care for people with dementia and their carers.
Kate Gridley   +4 more
doaj   +1 more source

Increasing self‐efficacy and knowledge in carer training: Hispanic versus Caucasian

open access: yesNursing Open, 2020
Aim Nurses are teachers to their patients and need to know best practices for diverse families living with dementia. Little is known about Hispanic beliefs around dementia knowledge and self‐efficacy that may have an impact on the learning situation ...
Leisa Easom, Ke Wang, Gayle Alston
doaj   +1 more source

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