Results 31 to 40 of about 58,576 (242)

Carers and breathlessness [PDF]

Current Opinion in Supportive & Palliative Care, 2017
Purpose of review Informal carers play a key role in supporting patients living with breathlessness in advanced disease, but with considerable impacts on their own well being. The purpose was to review recent advances in our understanding of the caring role in refractory breathlessness, its impacts on carers, and interventions ...
openaire   +4 more sources

MYCN Amplification in RB1‐Inactivated Retinoblastoma: Association With High‐Risk Features

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background MYCN amplification occurs in a subset of retinoblastoma cases, both with and without RB1 inactivation. It has been suggested that retinoblastomas with MYCN amplification represent a distinct entity with more aggressive clinical behavior.
Kyriaki Papaioannou, Regina Kubica, Karen Fischhuber, Jasmin Beygo, Madlen Reschke, Petra Ritter‐Sovinz, Eva Biewald, Petra Ketteler, Dietmar Lohmann, Deniz Kanber   +9 more
wiley   +1 more source

Treatment of anorexia nervosa: a multimethod investigation translating experimental neuroscience into clinical practice

Programme Grants for Applied Research, 2017
Background: Anorexia nervosa (AN) is a severe psychiatric condition and evidence on how to best treat it is limited. Objectives: This programme consists of seven integrated work packages (WPs) and aims to develop and test disseminable and cost-effective ...
Ulrike Schmidt, Helen Sharpe, Savani Bartholdy, Eva-Maria Bonin, Helen Davies, Abigail Easter, Elizabeth Goddard, Rebecca Hibbs, Jennifer House, Alexandra Keyes, Pooky Knightsmith, Antonia Koskina, Nicholas Magill, Jessica McClelland, Nadia Micali, Simone Raenker, Bethany Renwick, Charlotte Rhind, Mima Simic, Lot Sternheim, Sabine Woerwag-Mehta, Jennifer Beecham, Iain C Campbell, Ivan Eisler, Sabine Landau, Susan Ringwood, Helen Startup, Kate Tchanturia, Janet Treasure   +28 more
doaj   +1 more source

Intraoperative Collection of Ascitic Fluid With Intra‐ or Postoperative Reinfusion in Ovarian Cancer: Safety and Feasibility of a Roller Pumping Method

Therapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Introduction Patients with ovarian cancer often present with massive ascites, leading to significant protein loss during surgical procedures. Although cell‐free concentrated ascites reinfusion therapy (CART) is used in palliative settings to mitigate protein loss, its application in intraoperative settings remains unexplored.
Yutaka Yoneoka, Tsukuru Amano, Akimasa Takahashi, Mari Deguchi, Hiroyuki Yamanaka, Yuji Tanaka, Shunichiro Tsuji, Takashi Murakami   +7 more
wiley   +1 more source

Twelve principles to support caregiver engagement in health care systems and health research

Patient Experience Journal, 2019
Family and friend caregivers (i.e., unpaid carers) play a critical role in meeting the needs of people across various ages and illness circumstances. Caregiver experiences and expertise, which are currently overlooked, should be considered in practice ...
Kerry Kuluski, Kristina Kokorelias, Allie Peckham, Jodeme Goldhar, John Petrie, Carole Anne Alloway   +5 more
doaj  

Adjunctive Therapeutic Plasma Exchange in Refractory Adult‐Onset Still's Disease Complicated by Secondary Macrophage Activation Syndrome: A Single‐Center Experience

Therapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Introduction Adult‐onset Still's disease (AOSD) complicated by macrophage activation syndrome (MAS) carries substantial mortality. The role of therapeutic plasma exchange (TPE) remains uncertain. Methods We retrospectively analyzed patients with AOSD‐MAS treated with TPE at a single‐center.
Masataka Ueda, Tomohiro Saito, Masahide Mizobuchi, Tomoki Shimomura, Saki Kawamori, Mitsuru Kawanishi, Natsuko Hattori, Jo Sugiyama, Satoshi Tsubata, Hanami Horiguchi, Kazuki Abe, Nao Iida, Yuki Kajio, Nao Oguro, Ryo Yanai, Hirokazu Honda   +15 more
wiley   +1 more source

Understanding and addressing factors affecting carers’ mental health during end-of-life caregiving: synopsis of meta synthesis of literature and stakeholder collaboration

Health and Social Care Delivery Research
Background Family carers provide crucial support to patients nearing end of life. This can affect carers’ own mental health negatively. It is important to understand what factors may affect carers’ mental health and convey this information to ...
Gunn Grande, Christine Rowland, Tracey Shield, Kerin Bayliss, Jackie Flynn, Danielle Harris, Alison Wearden, Morag Farquhar, Maria Panagioti, Alexander Hodkinson, Margaret Booth, David Cotterill, Lesley Goodburn, Cedric Knipe, Penny Bee   +14 more
doaj   +1 more source

Informal carer's knowledge of traumatic brain injury questionnaire: Initial development and validation

Nursing Open, 2021
Aim To develop and psychometrically test the instrument for measuring the knowledge of traumatic brain injury of informal carers. Design Instrument development.
Amena Awadh Bamatraf, Mei Chan Chong, Mazlina Mazlan, Chong Chin Che, Rista Fauziningtyas, Nursalam Nursalam   +5 more
doaj   +1 more source

Organoids in pediatric cancer research

FEBS Letters, EarlyView.
Organoid technology has revolutionized cancer research, yet its application in pediatric oncology remains limited. Recent advances have enabled the development of pediatric tumor organoids, offering new insights into disease biology, treatment response, and interactions with the tumor microenvironment.
Carla Ríos Arceo, Jarno Drost
wiley   +1 more source

Psychological wellbeing among carers of children and adolescents with physical disabilities in North-Eastern Tanzania—a cross-sectional survey study

Frontiers in Public Health
IntroductionCaring for physically disabled children, particularly in contexts where resources are often insufficient or absent, exposes primary carers to significant psychological strain.
Elia Asanterabi Swai, Elia Asanterabi Swai, Elia Asanterabi Swai, Haleluya Imanueli Moshi, Haleluya Imanueli Moshi, Sia Emmanueli Msuya, Sia Emmanueli Msuya, Sia Emmanueli Msuya, Ann Sörlin, Klas-Göran Sahlen, Marie Lindkvist   +10 more
doaj   +1 more source