Results 31 to 40 of about 239,134 (285)

PPI-POWER-Planning our work with equity and respect: A case study of PPI working

Research Involvement and Engagement
Background Patient and Public Involvement (PPI) is increasingly advocated for undertaking research that is useful and relevant to those impacted by it. Funding bodies now include PPI as a mandatory part of funding programmes.
Anne-Marie Martin, Kayleigh Twomey, Mary Doyle-Kent, Lorraine Woods, Joanne Murphy   +4 more
doaj   +1 more source

Feasibility and Acceptability of a Novel Online Program for Mental Health Carers

International Journal of Psychological Research, 2023
Objective: To evaluate the feasibility and acceptability of a new online program (Minds Together ) for carers of a person with depressive or anxiety symptoms.
Elloyse Fitzgeraldson, Zoi Triandafilidis, Yohana Franklin, Kerrin Palazzi, Frances Kay-Lambkin, Sally Fitzpatrick   +5 more
doaj   +1 more source

Does emotional resilience enhance foster placement stability? A qualitative investigation. [PDF]

, 2012
Frequent changes of foster placement are known to have a detrimental effect on the long-term well-being of cared for children. Foster carers who take on children with challenging behaviours have to draw on resources, both internal and external, to help ...
Moss, Mark, Preston, Sally, Yates, Kevin
core   +1 more source

A Quality Improvement Initiative to Standardize Pneumocystis jirovecii Pneumonia Prophylaxis in Pediatric Patients With Solid Tumors

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric patients with extracranial solid tumors (ST) receiving chemotherapy are at an increased risk for Pneumocystis jirovecii pneumonia (PJP). However, evidence guiding prophylaxis practices in this population is limited. A PJP‐related fatality at our institution highlighted inconsistent prescribing approaches and concerns about
Kriti Kumar, Denise M. Connolly, Ellen Kellington, Elyse Zelunka, Karla Kerrigan, Furqan Shaikh, Paul C. Nathan, Meredith S. Irwin, Sarah Cohen‐Gogo   +8 more
wiley   +1 more source

Potential Early Risk Biomarkers for Reduced Forced Expiratory Volume in Children Post‐Hematopoietic Cell Transplantation

Pediatric Blood &Cancer, EarlyView.
ABSTRACT We sought to identify potential early risk biomarkers for lung disease in children post‐allogeneic HCT. Patients with pulmonary function tests 3 months post‐transplant and plasma samples between days 7 and 14 post‐HCT were included. Six of 27 subjects enrolled had reduced forced expiratory volume 1 (FEV1) z scores.
Isabella S. Small, Pi Chun Cheng, April L. Rahrig, Courtney M. Rowan   +3 more
wiley   +1 more source

An online supported self-management toolkit for relatives of people with psychosis or bipolar experiences: the IMPART multiple case study

Health Services and Delivery Research, 2020
Background: Digital health interventions have the potential to improve the delivery of psychoeducation to people with mental health problems and their relatives.
Fiona Lobban, Duncan Appelbe, Victoria Appleton, Golnar Aref-Adib, Johanna Barraclough, Julie Billsborough, Naomi R Fisher, Sheena Foster, Bethany Gill, David Glentworth, Chris Harrop, Sonia Johnson, Steven H Jones, Tibor Z Kovacs, Elizabeth Lewis, Barbara Mezes, Charlotte Morton, Elizabeth Murray, Puffin O’Hanlon, Vanessa Pinfold, Jo Rycroft-Malone, Ronald Siddle, Jo Smith, Chris J Sutton, Pietro Viglienghi, Andrew Walker, Catherine Wintermeyer   +26 more
doaj   +1 more source

Personalizing the Pediatric Hematology/Oncology Fellowship: Adapting Training for the Next Generation

Pediatric Blood &Cancer, EarlyView.
ABSTRACT The pediatric hematology‐oncology fellowship training curriculum has not substantially changed since its inception. The first year of training is clinically focused, and the second and third years are devoted to scholarship. However, this current structure leaves many fellows less competitive in the current job market, resulting in ...
Scott C. Borinstein, Melissa J. Rose, Scott Moerdler, Richard Ho   +3 more
wiley   +1 more source

An International Validation of a Clinical Tool to Assess Carers’ Quality of Life in Huntington’s Disease

Frontiers in Psychology, 2019
Family carers of individuals living with Huntington’s disease (HD) manage a distinct and unique series of difficulties arising from the complex nature of HD.
Aimee Aubeeluck, Edward J. N. Stupple, Malcolm B. Schofield, Alis C. Hughes, Lucienne van der Meer, Bernhard Landwehrmeyer, Aileen K. Ho, Aileen K. Ho   +7 more
doaj   +1 more source

Domiciliary Care: The Formal and Informal Labour Process [PDF]

, 2013
Domiciliary carers are paid care workers who travel to the homes of older people to assist with personal routines. Increasingly, over the past 20 years, the delivery of domiciliary care has been organised according to market principles and portrayed as ...
Bolton, Sharon. C, Wibberley, Gemma
core   +1 more source

Psychosocial Outcomes in Patients With Endocrine Tumor Syndromes: A Systematic Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction The combination of disease manifestations, the familial burden, and varying penetrance of endocrine tumor syndromes (ETSs) is unique. This review aimed to portray and summarize available data on psychosocial outcomes in patients with ETSs and explore gaps and opportunities for future research and care.
Daniël Zwerus, Floortje Strobbe, Annemarie A. Verrijn Stuart, Hanneke M. van Santen, Gerlof D. Valk, Sasja A. Schepers, Rachel S. van Leeuwaarde   +6 more
wiley   +1 more source