Results 11 to 20 of about 2,578,328 (266)

Mapping of Alzheimer’s disease related data elements and the NIH Common Data Elements [PDF]

BMC Medical Informatics and Decision Making
Abstract Background Alzheimer’s Disease (AD) is a devastating disease that destroys memory and other cognitive functions. There has been an increasing research effort to prevent and treat AD. In the US, two major data sharing resources for AD research are the National Alzheimer’s Coordinating Center (NACC) and the ...
Xubing Hao, Rashmie Abeysinghe, Fengbo Zheng, Paul E. Schulz, The Alzheimer’s Disease Neuroimaging Initiative, Licong Cui   +5 more
doaj   +6 more sources

Common data elements of breast cancer for research databases: A systematic review

Journal of Family Medicine and Primary Care, 2020
Common Data Elements (CDEs) are data-metadata descriptors used to collect research study data. CDEs facilitate the collection, processing, and sharing of breast cancer data. This study intended to explore the CDEs of breast cancer for research databases and primary care systems.This study was conducted using systematic search and review.
Soraya Salmanian, Esmat Mirbagheri, Maryam Ahmadi   +2 more
doaj   +6 more sources

Learning important common data elements from shared study data: The All of Us program analysis. [PDF]

PLoS ONE, 2023
There are many initiatives attempting to harmonize data collection across human clinical studies using common data elements (CDEs). The increased use of CDEs in large prior studies can guide researchers planning new studies. For that purpose, we analyzed
Craig S Mayer, Vojtech Huser
doaj   +3 more sources

The NIH HEAL pain common data elements (CDE): a great start but a long way to the finish line. [PDF]

Pain Med
Background The National Institutes of Health (NIH) Pain Common Data Elements (CDEs) provide a standardized framework for pain research, but their implementation and interpretation present challenges.
Adams MCB, Hassett AL, Clauw DJ, Hurley RW.   +3 more
europepmc   +4 more sources

Common Data Elements to Facilitate Sharing and Re-use of Participant-Level Data: Assessment of Psychiatric Comorbidity Across Brain Disorders [PDF]

Frontiers in Psychiatry, 2022
The Ontario Brain Institute's “Brain-CODE” is a large-scale informatics platform designed to support the collection, storage and integration of diverse types of data across several brain disorders as a means to understand underlying causes of brain ...
Anthony L. Vaccarino, Derek Beaton, Derek Beaton, Sandra E. Black, Sandra E. Black, Pierre Blier, Farnak Farzan, Elizabeth Finger, Jane A. Foster, Morris Freedman, Benicio N. Frey, Benicio N. Frey, Susan Gilbert Evans, Keith Ho, Mojib Javadi, Sidney H. Kennedy, Raymond W. Lam, Anthony E. Lang, Anthony E. Lang, Bianca Lasalandra, Sara Latour, Mario Masellis, Roumen V. Milev, Daniel J. Müller, Daniel J. Müller, Douglas P. Munoz, Sagar V. Parikh, Franca Placenza, Susan Rotzinger, Susan Rotzinger, Claudio N. Soares, Alana Sparks, Stephen C. Strother, Stephen C. Strother, Richard H. Swartz, Richard H. Swartz, Brian Tan, Maria Carmela Tartaglia, Valerie H. Taylor, Elizabeth Theriault, Gustavo Turecki, Rudolf Uher, Lorne Zinman, Kenneth R. Evans   +43 more
doaj   +3 more sources

Common Data Elements for Meaningful Stroke Documentation in Routine Care and Clinical Research: Retrospective Data Analysis [PDF]

JMIR Medical Informatics, 2021
BackgroundMedical information management for stroke patients is currently a very time-consuming endeavor. There are clear guidelines and procedures to treat patients having acute stroke, but it is not known how well these ...
Sarah Berenspöhler, Jens Minnerup, Martin Dugas, Julian Varghese   +3 more
doaj   +4 more sources

Pre-Clinical Common Data Elements for Traumatic Brain Injury Research: Progress and Use Cases. [PDF]

J Neurotrauma, 2021
Traumatic brain injury (TBI) is an extremely complex condition due to heterogeneity in injury mechanism, underlying conditions, and secondary injury.
LaPlaca MC, Huie JR, Alam HB, Bachstetter AD, Bayir H, Bellgowan PF, Cummings D, Dixon CE, Ferguson AR, Ferland-Beckham C, Floyd CL, Friess SH, Galanopoulou AS, Hall ED, Harris NG, Hawkins BE, Hicks RR, Hulbert LE, Johnson VE, Kabitzke PA, Lafrenaye AD, Lemmon VP, Lifshitz CW, Lifshitz J, Loane DJ, Misquitta L, Nikolian VC, Noble-Haeusslein LJ, Smith DH, Taylor-Burds C, Umoh N, Vovk O, Williams AM, Young M, Zai LJ.   +34 more
europepmc   +4 more sources

Development and implementation of the National Heart, Lung, and Blood Institute COVID-19 common data elements [PDF]

Journal of Clinical and Translational Science, 2022
Background: Coronavirus Disease 2019 (COVID-19) instigated a flurry of clinical research activity. The unprecedented pace with which trials were launched left an early void in data standardization, limiting the potential for subsequent data pooling.
Alexandra Weissman, Alex Cheng, Alex Mainor, Elizabeth Gimbel, Kayla Nowak, Huaqin (Helen) Pan, Jeran Stratford, Alyssa Merkel, Caroline Taylor, Heather Meier, Jeanette Auman, Tracy L. Nolen, Christopher J. Lindsell, David T. Huang   +13 more
doaj   +3 more sources

Common data elements to standardize genomics studies in cerebral palsy [PDF]

Developmental Medicine & Child Neurology, 2022
AbstractAimTo define clinical common data elements (CDEs) and a mandatory minimum data set (MDS) for genomic studies of cerebral palsy (CP).MethodCandidate data elements were collated following a review of the literature and existing CDEs. An online, three‐round Delphi survey was used to rate each data element as either ‘core’, ‘recommended ...
Yana A. Wilson, Hayley Smithers‐Sheedy, Katarina Ostojic, Emma Waight, Michael C. Kruer, Michael C. Fahey, Gareth Baynam, Jozef Gécz, Nadia Badawi, Sarah McIntyre   +9 more
europepmc   +5 more sources

Domain-Specific Common Data Elements for Rare Disease Registration: Conceptual Approach of a European Joint Initiative Toward Semantic Interoperability in Rare Disease Research.

JMIR Med Inform, 2022
Background With hundreds of registries across Europe, rare diseases (RDs) suffer from fragmented knowledge, expertise, and research. A joint initiative of the European Commission Joint Research Center and its European Platform on Rare Disease ...
Abaza H, Kadioglu D, Martin S, Papadopoulou A, Dos Santos Vieira B, Schaefer F, Storf H.   +6 more
europepmc   +3 more sources