Common Data Elements Repository. [PDF]
Created by the NIH in 2015, the Common Data Elements (CDE) Repository provides free online access to search and use Common Data Elements. This tool helps to ensure consistent data collection, saves time and resources, and ultimately improves the accuracy of and interoperability among datasets. The purpose of this column is to provide an overview of the
Villere S.
europepmc +3 more sources
The Ontario Brain Institute's “Brain-CODE” is a large-scale informatics platform designed to support the collection, storage and integration of diverse types of data across several brain disorders as a means to understand underlying causes of brain ...
Anthony L. Vaccarino +35 more
openalex +3 more sources
Common data elements to standardize genomics studies in cerebral palsy. [PDF]
AbstractAimTo define clinical common data elements (CDEs) and a mandatory minimum data set (MDS) for genomic studies of cerebral palsy (CP).MethodCandidate data elements were collated following a review of the literature and existing CDEs. An online, three‐round Delphi survey was used to rate each data element as either ‘core’, ‘recommended ...
Wilson YA +10 more
europepmc +4 more sources
Identifying Common Data Elements to Achieve Injury-related Health Equity Across the Lifespan: A Consensus-Driven Approach. [PDF]
Background: Limited availability and poor quality of data in medical records and trauma registries impede progress to achieve injury-related health equity across the lifespan.
Conrick KM +9 more
europepmc +4 more sources
Common data elements for predictors of pediatric sepsis: A framework to standardize data collection. [PDF]
Background Standardized collection of predictors of pediatric sepsis has enormous potential to increase data compatibility across research studies. The Pediatric Sepsis Predictor Standardization Working Group collaborated to define common data elements ...
Mawji A +7 more
europepmc +3 more sources
Development of Common Data Elements for Organ Transplantation.
This cohort study examines the validity of an electronic health record data model for organ transplantation.
McElroy LM +22 more
europepmc +3 more sources
Advancing Symptom Science Through Use of Common Data Elements [PDF]
AbstractBackgroundUse of common data elements (CDEs), conceptually defined as variables that are operationalized and measured in identical ways across studies, enables comparison of data across studies in ways that would otherwise be impossible. Although healthcare researchers are increasingly using CDEs, there has been little systematic use of CDEs ...
Nancy S, Redeker +13 more
openaire +3 more sources
A companion to the preclinical common data elements for rigor, reproducibility and transparency in basic and translational epilepsy research. A report of the TASK3-WG1A: Pharmacology Working Group of the ILAE/AES Joint Translational Task Force. [PDF]
Rigorous and transparent procedures in preclinical epilepsy research studies are important to permit assessing the reproducibility of their findings and derisk their translation into the clinic. The General Pharmacology Working Group of the ILAE/AES Task
Klein BD +11 more
europepmc +2 more sources
Common Data Elements for COVID-19 Neuroimaging: A GCS-NeuroCOVID Proposal. [PDF]
Funder: James S.
Edlow BL +11 more
europepmc +8 more sources
Advancing research on strategies to reduce drug use and overdose-related harms: a community informed approach to establishing common data elements. [PDF]
With the overdose crisis continuing to pose significant challenges in North America, harm reduction strategies are critical for public health systems to reduce mortality and morbidity.
Saavedra LM +18 more
europepmc +2 more sources

