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Analyzing Real-World Use of Research Common Data Elements

AMIA ... Annual Symposium proceedings. AMIA Symposium, 2018
Common Data Elements (CDEs) are defined as "data elements that are common to multiple data sets across different studies" and provide structured, standardized definitions so that data may be collected and used across different datasets. CDE collections are traditionally developed prospectively by subject-matter and domain experts.
Vojtech, Huser, Liz, Amos
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Common Data Elements for Posttraumatic Stress Disorder Research

Archives of Physical Medicine and Rehabilitation, 2010
An expert work group with 7 members was formed under the cosponsorship of 5 U.S. federal agencies to identify common data elements for research related to posttraumatic stress disorder (PTSD). The work group reviewed both previous and contemporary measurement standardization efforts for PTSD research and engaged in a series of electronic and live ...
Danny G, Kaloupek, Kathleen M, Chard, Michael C, Freed, Alan L, Peterson, David S, Riggs, Murray B, Stein, Farris, Tuma   +6 more
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Variables, Data Types and Common Elements

2001
This chapter presents the syntax and semantics of the basic, common language elements of all programming languages of IEC 61131-3.
Karl-Heinz John, Michael Tiegelkamp
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The Nordic Common Data Element repository for describing cancer data

International Journal of Metadata, Semantics and Ontologies, 2009
The aim of the Nordic Common Data Element Project is to facilitate convergence towards a common metadata standard in cancer in the Nordic countries. The experience of installing, learning and using the open software suite, Cancer Data Standards Repository (caDSR), developed by the National Cancer Institute's Center for Bioinformatics, NCICB, in the USA
Thora Jonsdottir, Johann Thorsson, Ebba Thora Hvannberg, Jan Eric Litton, Helgi Sigurdsson   +4 more
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Common Data Element Collection in Underserved School Communities: Challenges and Recommendations

Pediatrics, 2023
OBJECTIVES To provide recommendations for future common data element (CDE) development and collection that increases community partnership, harmonizes data interpretation, and continues to reduce barriers of mistrust between researchers and underserved communities ...
Diya M, Uthappa, Tara K, Mann, Jennifer L, Goldman, Jennifer E, Schuster, Jason G, Newland, William B, Anderson, Ann, Dozier, Moira, Inkelas, John J, Foxe, Lisa, Gwynn, Christina A, Gurnett, Corinne, McDaniels-Davidson, Tyler, Walsh, Tremayne, Watterson, Jeanne, Holden-Wiltse, Jessie M, Potts, Emily M, D'Agostino, Karen, Zandi, Anthony, Corbett, Samantha, Spallina, Gregory P, DeMuri, Yelena P, Wu, Elizabeth R, Pulgaron, Susan M, Kiene, Eyal, Oren, Joshuaa D, Allison-Burbank, May, Okihiro, Rebecca E, Lee, Sara B, Johnson, Tammy K, Stump, Ryan J, Coller, Dana Keener, Mast, Emily E, Haroz, Steven, Kemp, Daniel K, Benjamin, Kanecia O, Zimmerman   +35 more
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Traumatic Brain Injury Rehabilitation: Analysis of Common Data Elements

2013
Physical medicine rehabilitation interventions for post-acute traumatic brain injury (TBI) are heterogeneous and subject to differences based on multi-disciplinary treatment plans [1]. There is no universal knowledge representation (KR) model for TBI rehabilitation which impedes data collection, aggregation, computation, and sharing.
Michael J, Grove, Greg J, Lamberty, Lael C, Gatewood, Layne M, Johnson   +3 more
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P.10.18 Common data elements for muscle biopsy reporting

Neuromuscular Disorders, 2013
Physicians commonly utilize the muscle biopsy to assist in the diagnosis of neuromuscular diseases. However, there is no current standard for evaluating or reporting on findings, and the resulting variability can impede accurate diagnoses and limit the utility of the muscle biopsy as a tool for clinical care, research, and stratifying patients for ...
J. Dastgir, A. Rutkowski, R. Alvarez, S. Cossette, K. Yan, R. Hoffmann, C. Sewry, Y. Hayashi, S.A. Moore, H. Goebel, C. Bonnemann, M.W. Lawlor   +11 more
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Common data elements for arthrogryposis multiplex congenita: An international framework

Developmental Medicine & Child Neurology
AbstractAimTo facilitate multisite studies and international clinical research, this study aimed to identify consensus‐based, standardized common data elements (CDEs) for arthrogryposis multiplex congenita (AMC).MethodA mixed‐methods study comprising of several focus group discussions and three rounds of modified Delphi surveys to achieve consensus ...
Shahrzad Nematollahi, Klaus Dieterich, Isabel Filges, Johanna I. P. De Vries, Harold Van Bosse, Daniel Natera de Benito, Judith G. Hall, Bonita Sawatzky, Tanya Bedard, Victoria Castillo Sanchez, Carolina Navalon‐Martinez, Tony Pan, Coleman Hilton, Noémi Dahan‐Oliel   +13 more
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Common data elements to advance ME/CFS research

Open Access Government
Common data elements to advance ME/CFS research Standardizing data collection in ME/CFS research through Common Data Elements is a crucial step toward improving diagnosis, advancing treatments, and fostering collaboration across studies to accelerate progress in understanding this complex disease.
Megan Ulmer Carnes, Linda Morris Brown, Mike Enger   +2 more
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Identification of Common Data Elements from Pivotal FDA Trials.

AMIA ... Annual Symposium proceedings. AMIA Symposium, 2021
It is difficult to arrive at an efficient and widely acceptable set of common data elements (CDEs). Trial outcomes, as defined in a clinical trial registry, offer a large set of elements to analyze. However, all clinical trial outcomes is an overwhelming amount of information.
Craig S, Mayer, Nick, Williams, Vojtech, Huser   +2 more
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