Results 41 to 50 of about 4,524,695 (352)

Unheard and Under‐Supported: Health‐Related Quality of Life in Children, Adolescents, and Young Adults With Sickle Cell Disease

open access: yesPediatric Blood &Cancer, EarlyView.
Abstract Background Sickle cell disease (SCD) is an autosomal recessive hemoglobinopathy affecting millions of individuals worldwide. The clinical expression and psychosocial burden of SCD vary widely across geographical, cultural, and healthcare system contexts, underscoring the need for setting‐specific approaches to assessment.
Desiré Fantasia   +7 more
wiley   +1 more source

Exploring Preferences for a Digital Single‐Session Intervention for Adolescent Siblings of Youth With Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Adolescent siblings of children with cancer are at elevated risk for psychosocial problems. Unfortunately, various barriers such as limited family time and resources, conflicting schedules, and psychosocial staffing constraints at cancer centers hinder sibling access to support.
Christina M. Amaro   +10 more
wiley   +1 more source

Dialogical strategies of science communicators (Science Communication)

open access: yesDOCA - Database of Variables for Content Analysis, 2021
According to Taylor et al. (2001), dialogue can be defined "as a tool for effective and mutually rewarding interpersonal communication" (p. 267) and refers to “any negotiated exchange of ideas and opinions” (Kent & Taylor, 1998, p. 325), whereby all parties in a relationship strive to engage in an honest, open and ethically communicative give and ...
openaire   +2 more sources

Local Authorities and Communicators Engaged in Science: PLACES Impact Assessment Case Study of Prague [PDF]

open access: yes, 2013
Regional aspects of science communication represent a potential asset and as such are quite suitable topic for further examination with respect to future social and economic development in Prague based on the city's main development strategies.
Filáček, Adolf, Pechlát, Jakub
core  

Development and Evaluation of an Undergraduate Science Communication Module [PDF]

open access: yes, 2011
This paper describes the design and evaluation of an undergraduate final year science communication module for the Science Faculty at the University of East Anglia.
Bonfigliolo C.   +13 more
core   +1 more source

Clinical Course and Impact of Breaks in Therapy for Children With Relapsed/Refractory Solid Tumors

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Pediatric relapsed or refractory (R/R) solid tumors carry a dismal prognosis, and postrelapse patient experiences are not well described. We present postrelapse outcomes, including number of R/R events and subsequent therapy regimens.
Matthew T. McEvoy   +5 more
wiley   +1 more source

Training Family Science Faculty in CORE Communication [PDF]

open access: yes, 2017
As a whole and regardless of major, university graduates with interpersonal competence (also defined as soft skills) are viewed as more employable (Finch, Hamilton, Baldwin, & Zehner, 2013; Robles, 2012), yet interpersonal competence is not often ...
Chen, Jou-Chen   +2 more
core   +1 more source

Twitterati and Paperati – evidence versus popular opinion in science communication [PDF]

open access: yes, 2015
Science communication has traditionally been the remit of peer-reviewed journals with information being shared, almost exclusively, within the academic community.
Collins, D., MacNamara, Á.,
core   +1 more source

Implementing Health‐Related Quality of Life Assessment in Pediatric Oncology: A Feasibility Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background There is growing interest in embedding health‐related quality of life (HRQoL) assessment and patient‐reported outcome measures (PROMs) within clinical cancer care. This study evaluated the feasibility, acceptability, and usability of implementing an electronic PROM (ePROM) platform to measure HRQoL in children with cancer ...
Mikaela Doig   +13 more
wiley   +1 more source

The Art of Science Communication—A Novel Approach to Science Communication Training

open access: yesJournal of Microbiology & Biology Education, 2018
Effective communication is a requisite skill for scientists. However, formalized training in this area is often unavailable for members of the scientific community.
Susanna Greer   +6 more
doaj   +1 more source

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