Results 31 to 40 of about 1,298,177 (313)

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Community Engagement newsletter, Faculty of Veterinary Science, Autumn 2015 [PDF]

, 2015
News articles with colour photos about the various community engagement projects of the Faculty of Veterinary Science, University of Pretoria.Community engagement = fun in the sun / Adél de Haast -- I want be a vet weekend / Lesego Teffu -- Reality and ...
Teffu, Lesego, De Haast, Adel
core   +2 more sources

Strengths and limitations of using participatory science data to characterize a wildlife mass mortality event

Ecosphere
Participatory science (i.e., “community science” or “citizen science”) platforms are increasingly used at every level of ecological and conservation research, including disease monitoring.
Liam U. Taylor, Tatsiana Barychka, Seabird McKeon, Natasha Bartolotta, Stephanie Avery‐Gomm   +4 more
doaj   +1 more source

A changing of the garden: evaluating the performance and ecosystem functionality of alternative oyster garden structures in residential waterways

Frontiers in Ecology and Evolution
Oyster gardening, in which hanging oyster recruitment substrates are suspended from docks, has become an increasingly common and accessible technique for coastal communities to support local oyster populations for biodiversity enhancement, habitat ...
Adrian Sakr, Logan D. Mazor, Eric C. Milbrandt, Joseph P. Morton, Andrew H. Altieri   +4 more
doaj   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

Community Engagement newsletter, Faculty of Veterinary Science, Winter, 2011 [PDF]

, 2011
Originally published as HTML file, converted to PDF with Adobe Acrobat 9 Pro Version 9.0.0.News articles with colour photos about the various community engagement projects of the Faculty of Veterinary Science, University of Pretoria.Introduction to ...
Pretorius, Minette, Loots, Karen, Johnson, Sarah, Van den Berg, Andre, Poggenpoel, Cecilia, Beukes, Stefan, Pretorius, Carli, Van Aarde, Mariette, Fourie, Andries, Miller, Sean Myles, Semmelink, Marianne, Dommett, Simon, Sonntag, Quixi, Malan, Anel   +13 more
core  

Community Engagement newsletter, Faculty of Veterinary Science, Winter 2023

, 2023
News articles with colour photos about the various community engagement projects of the Faculty of Veterinary Science, University of Pretoria.News articles with colour photos about the various community engagement projects of the Faculty of Veterinary ...
Marufu, Chris, Gamede, Cassendrah, Van Niekerk, Leonie, Ochai, Sunday Ochonu, Kgasi, Alfred T., Wentzel, Jeanette Maria, McAdam, Andrew, Mzamani, Monde, Sonntag, Quixi   +8 more
core  

Supporting Survivor‐Centered Care Through Digital Health Integration

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Survivors of childhood cancer face barriers to receiving guideline‐based, long‐term follow‐up care. Two digital tools, Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink), address complementary gaps by enabling tailored survivorship care plan (SCP) generation, updating, storage, and sharing.
Jordan G. Marchak, Rebecca Williamson‐Lewis, Michael O'Connor, Michael Palgon, Yu‐Ra Kim, Michael Schuckenbrock, Paula Edwards, Abraham Mendoza, Anthony Adams, Brian Arriaga‐Solis, Justin Parker, Harry Tinoco‐Giraldo, Jason King, C. Michael Fordis, Karen E. Effinger, Maria Monica Gramatges   +15 more
wiley   +1 more source

AGU 2022 - Environmental Data Science Book: a community-driven resource showcasing open-source Environmental science - snapshot

, 2022
This Research Object aggregates all the different Research Objects and resources used for presenting the Environmental Data Science Book at AGU 2022. The Environmental Data Science book is a living, open and community-driven online resource to showcase
Environmental Data Science Book Community, Anne Fouilloux, Alejandro Coca-Castro   +2 more
core   +1 more source

Comparative Evaluation of Hemodiafiltration, Hemoperfusion, and Standard Hemodialysis on Efficacy, Inflammatory Control, Dialysis Adequacy, and Safety in End‐Stage Renal Disease: A Prospective Observational Study

Therapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Background Chronic micro‐inflammation in patients with end‐stage renal disease (ESRD) is a significant driver of cardiovascular complications and diminished quality of life. While standard hemodialysis (SHD) effectively manages small‐molecule clearance, its ability to remove medium‐to‐large uremic toxins—the primary catalysts of systemic ...
Hongwei Zuo, Weisi Dai, Jie Mao, Mei Ye, Xingshan Lu, Xiaocui Zhang   +5 more
wiley   +1 more source