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Données à penser. Enjeux pratiques et éthiques autour des données dans le montage de projets de recherche européens

Tracés, 2019
This article takes the form of a feedback on the setting up of European research projects, unfolding the sequences between objectives, constraints and decision-making for two concrete cases.
Delphine Cavallo, Camille Noûs
doaj   +1 more source

Survival Outcomes and Complications Among Canadian Children With Retinoblastoma: A Population‐Based Report From CYP‐C

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Retinoblastoma (RB) is the most common pediatric ocular cancer, yet population‐based data on survival and risk factors remain limited. This study aimed to describe survival in a large national RB cohort and identify predictors of death and complications.
Samuel Sassine, Ofélie Trudeau‐Ferrin, Caroline Laverdière, Patrick Hamel, Rosanne Superstein, Bénédicte Koukoui, Carole Provost, Paul C. Nathan, Vijay Ramaswamy, Furqan Shaikh, Brenda Gallie, Ashwin Mallipatna, Stephanie Kletke, Helen Dimaras, Hallie Coltin   +14 more
wiley   +1 more source

D1.3 Final data management plan [PDF]

, 2016
The purpose of the Final Data Management Plan is to provide a definitive analysis of the elements of the data management policy that will be used with regard to all the datasets generated in the project.
Universitat Autònoma de Barcelona. Centre de Recerca Ecològica i d'Aplicacions Forestals, WaterInnEU   +1 more
core  

Personalized Selumetinib Dosing in Pediatric Neurofibromatosis Type 1: Insights From a Pilot Therapeutic Drug Monitoring Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Objective To evaluate selumetinib exposure using therapeutic drug monitoring (TDM) in pediatric patients with neurofibromatosis type 1 (NF1) and plexiform neurofibromas (PN), assess interpatient pharmacokinetic variability, and explore the relationship between drug exposure, clinical response, and adverse effects.
Janka Kovács, Zoltán Köllő, Balázs Gellért Karvaly, Mahmoud Obeidat, Rita Nagy, Péter Hegyi, Brigitta Teutsch, Eszter Tuboly, Miklós Garami   +8 more
wiley   +1 more source

Road to a Chemistry-Specific Data Management Plan

Data Science Journal
In order to develop a discipline-specific data management plan (DMP) template, it is important to obtain information from researchers. For a chemistry-specific template, NFDI4Chem conducted a series of interviews with 27 participants and used data from ...
Ann-Christin Andres, Daniela Adele Hausen, Jochen Ortmeyer, Sonja Herres-Pawlis   +3 more
doaj   +1 more source

Implementing Informatics Tools with Data Management Plans for Disease Area Research

Data Science Journal, 2023
Data Management Plans (DMPs) are essential to a research data life cycle. The DMPs should be developed as part of the research programs to be effective.
Vivek Navale, Matthew McAuliffe
doaj   +1 more source

Adherence to Protocol Recommendations for Children With Wilms Tumour in Two Consecutive Studies in the United Kingdom and Ireland—Does Variation Matter?

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background and Aims Wilms tumour (WT) has excellent event‐free and overall survival (OS). However, small differences exist between countries participating in the same international study. This led us to examine variation in adherence to protocol recommendations as a potential contributing factor.
Suzanne Tugnait, R. Al‐Saadi, A. Lopez‐Cortes, K. Dzhuma, M. Oostveen, J. Brok, S. Irtan, M. Weeks, J. Bate, S. Baker, R. Williams, M. Powis, D. Saunders, O. Olsen, T. Watson, S. Shelmerdine, S. Vaidya, L. Howell, C. Duncan, G. M. Vujanic, C. Stiller, G. P. Balchin, T. Chowdhury, K. Pritchard‐Jones   +23 more
wiley   +1 more source

Data management plan (DMP) in the academic library. New tasks and tools

Forum Bibliotek Medycznych, 2019
The requirements which the funding institutions expected from the applicants for grants include more and more often the criterion of opening research data and preparing data management plans.
Tomasz Nowocień, Edyta Rogowska
doaj   +1 more source

D1.2 Draft data management plan [PDF]

, 2015
The purpose of the Draft Data Management Plan is to provide an initial analysis of the main elements of the data management policy that will be used with regard to all the datasets that will be generated in the project.
Universitat Autònoma de Barcelona. Centre de Recerca Ecològica i d'Aplicacions Forestals, WaterInnEU   +1 more
core  

Factors associated with good adherence to self-care behaviours amongst adolescents with food allergy [PDF]

, 2015
Background: Our understanding of factors which affect adherence to health sustaining self-care behaviours in adolescents with food allergy is limited. This study used the Health Belief Model to explore the relationship between food allergic adolescents ...
Atreja, Bock, Bond, Brownlee-Duffeck, Burgoon, Carver, Champion, Choo, Conn, Delamater, Dinakar, Gallagher, Gillibrand, Goldberg, Grundy, Jones, Kim, Knibb, Muraro, National Institute for Health and Care Excellence, Ohya, Pantino, Pereira, Pumphrey, Raynor, Richards, Ring, Rollnick, Rosenstock, Roter, Sampson, Sampson, Scheier, Sicherer, Taddeo, Yunginger   +35 more
core   +1 more source