Results 51 to 60 of about 589,540 (246)

Assessing data management and sharing plans: The “state of play” at Duke and opportunities for cross-campus collaborations

IASSIST Quarterly
Over the past few years, the United States has implemented a second round of data management policies, exemplified by the 2023 NIH Data Management and Sharing Policy and 2022 “Nelson Memo.” Effectively supporting public access to data and a data sharing
Sophia Lafferty-Hess, William Krenzer, Jenny Ariansen, Jennifer Darragh   +3 more
doaj   +1 more source

Health Literacy, Self‐Efficacy and Knowledge of Sickle Cell Disease Among Caregivers

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a hereditary blood disorder in which abnormal haemoglobin leads to severe anaemia, painful crises and organ failure. Caregivers’ health literacy (HL) – their ability to assess, understand and apply information, and interact with healthcare professionals – is crucial for managing children with SCD, yet ...
Melanie Bruinooge, Maite E. Houwing, Rowena L. Grohssteiner, Ferdows Atiq, Sonja A. M. C. Teuben, Mirjam P. Fransen, Marjon H. Cnossen   +6 more
wiley   +1 more source

Data Management and Data Management Plans

, 2019
Presentation describing some of the methods I use for establishing good data collection practices. Includes information on data management plans, which are now required for most federal grant agencies. A well-documented data collection, management, processing, and cleaning plan implemented when data is being collected is an excellent foundation for ...
openaire   +1 more source

Early Impact of Childhood Opportunity on Neurocognitive Outcomes in Sickle Cell Disease

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Neurocognitive impairment is a well‐recognized complication of sickle cell disease (SCD) that begins early in childhood and persists across development. While cerebrovascular injury contributes substantially to risk, neurocognitive deficits are also observed in children without overt or silent cerebral infarctions, suggesting ...
Julia E. LaMotte, Hannah Koch, Olivia A. Coughlin, Jillian R. Bouck, Allie Carter, Seethal A. Jacob   +5 more
wiley   +1 more source

Data Management And Data Management Plans

, 2017
Modern research requires special tooling, software and processes that allow researchers to link, transform, visualise and interpret the data. Lack of proper data management practices can lead in extreme cases to irreversible loss of data. As a consequence, reproducibility of scientific experiments can be questioned.
openaire   +1 more source

Ironic Medications: A Narrative‐Based Psycho‐Educational Intervention to Explore Patient–Provider Communication in Adolescents With Haematological Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Adolescents with haematological malignancies face significant emotional and relational challenges, often accompanied by difficulties in communicating their needs within the healthcare context. To address these issues, a narrative‐based psycho‐educational intervention based on the creation and prescription of Ironic Medications was ...
Marta Stoppa, Elena Pagani Bagliacca, Selena Russo, Giulia Rampoldi, Maria Grazia Strepparava, Adriana Cristina Balduzzi, Andrea Biondi, Marco Spinelli   +7 more
wiley   +1 more source

The Standardized Data Management Plan for Educational Research

International Journal of Digital Curation
Although there is an increasing number of tools and support opportunities, research data management is still challenging. Conventional templates of data management plans (DMP) guide users, but hardly support them in implementing and realizing data ...
Sebastian Netscher, Harald Kaluza, Reiner Mauer, Kati Mozygemba, Karsten Stephan   +4 more
doaj   +1 more source

Data Management and Data Management Planning

, 2019
Presentation given at the "Ask Me Anything Call on Data Management and Data Planning" at the Research Data Alliance (RDA) Early Career and Engagement IG at the 18th of September 2019.
openaire   +2 more sources

Re‐Irradiation in Pediatric Diffuse Midline Glioma: A Multi‐Institutional Retrospective Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Children with recurrent diffuse midline gliomas (DMGs) have limited therapeutic options at recurrence. Re‐irradiation (RT2) may be used at progression, but with uncertainty about the benefit. Methods We conducted a multi‐institutional retrospective study of children aged < 18 with DMG treated at three centers (Toronto, Canada ...
Ajay Thomas Alex, Sean P. Hassan, Helen Benghiat, Liam Herbert, Jennifer Adamski, Shivani Bailey, Claire Esler, Louise Brookes, Molly Bamber, Grace Koudou, Karen Waite, Julie Bennett, Anirban Das, Derek S. Tsang   +13 more
wiley   +1 more source

Données de la recherche hier et aujourd’hui : pour une histoire politique du travail en sciences humaines et sociales

Tracés, 2019
Research funding institutions in Europe have recently requested a “Data Management Plan” (DMP) from their candidates. In light of this new requirement, the article discusses the history of researchers and their “data”, e.g.
Christelle Rabier, Camille Noûs
doaj   +1 more source