Results 31 to 40 of about 1,170,017 (266)

Data Policy

, 2021
Increasing the availability of research data for reuse is in part being driven by research data policies. While the number of research funders, journals and institutions with some form of research data policy is growing, the landscape is complex and therefore the implementation and implications of policies for researchers can be unclear, confusing and ...
openaire   +2 more sources

The institutional design of data governance in Brazil: entropy, restrictiveness and institutional grammar

Policy Design and Practice
This article analyzes the institutional grammar of data governance in Brazilian municipalities, focusing on the institutional designs that develop in local governments from emerging institutions.
Fernando Filgueiras, Lizandro Lui, Thayná Gomes Rosa, Gabriela Candido Ferreira   +3 more
doaj   +1 more source

Federated causal inference based on real-world observational data sources: application to a SARS-CoV-2 vaccine effectiveness assessment

BMC Medical Research Methodology, 2023
Introduction Causal inference helps researchers and policy-makers to evaluate public health interventions. When comparing interventions or public health programs by leveraging observational sensitive individual-level data from populations crossing ...
Marjan Meurisse, Francisco Estupiñán-Romero, Javier González-Galindo, Natalia Martínez-Lizaga, Santiago Royo-Sierra, Simon Saldner, Lorenz Dolanski-Aghamanoukjan, Alexander Degelsegger-Marquez, Stian Soiland-Reyes, Nina Van Goethem, Enrique Bernal-Delgado, for the BeYond-COVID project   +11 more
doaj   +1 more source

Identifying Incident Cancer Cases in Medicine Dispensing Claims: A Validation Study Using Australia’s Pharmaceutical Scheme (PBS) Data

International Journal of Population Data Science, 2020
Introduction Dispensing claims are used commonly as proxy measures in pharmacoepidemiological studies, however, their validity is often untested. Objectives and Approach We quantified the level of ascertainment and potential biases arising when using ...
Benjamin Daniels, Hanna E Tervonen, Sallie-Anne Pearson   +2 more
doaj   +1 more source

Educational achievements of children aged 10-11 years with cystic fibrosis. A data linkage study in Wales

International Journal of Population Data Science, 2022
Introduction As people with cystic fibrosis (CF) lead longer, healthier lives, educational qualifications and employment prospects are increasingly important.
Daniela K Schlüter, Rowena Griffiths, Ashley Akbari, David Taylor-Robinson   +3 more
doaj   +1 more source

Guidelines for Pediatric Radiotherapy Simulation: A Report From the Children's Oncology Group Radiation Oncology Discipline

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric radiation therapy presents unique challenges compared to adult treatments, including those of immobilization, potential need for sedation, and the critical importance of accurate, reproducible positioning. Additionally, heightened attention to imaging doses is necessary to minimize long‐term toxicity in survivors.
Parham Alaei, Stephen Mihalcik, Sujith Baliga, Young Kwok, Dana Casey, Eric Ehler, Christiane Burton, John C. Breneman, Daphne A. Haas‐Kogan, Suzanne L. Wolden, Arnold C. Paulino, Nadia N. Laack, Natia Esiashvili, Sarah Milgrom, Christine Hill‐Kayser, Thomas J. Fitzgerald, John A. Kalapurakal, Chia‐Ho Hua   +17 more
wiley   +1 more source

Analysing foodborne illness outbreak severity in the USA, 2009–19

The Lancet Global Health, 2022
Background: In the USA, one in six Americans have had a foodborne illness, resulting in approximately US$17·6 billion (2018) of losses annually attributed to medical costs, productivity losses, and economic burden due to death.
Ryan Simpson, MS, Lauren Sallade, MS, Emily Sanchez, MS, Yutong Zhang, MS, Elena Naumova, PHD   +4 more
doaj   +1 more source

Managing data retention policies at scale [PDF]

12th IFIP/IEEE International Symposium on Integrated Network Management (IM 2011) and Workshops, 2011
Regulatory policies such as EU privacy, HIPAA, and PCI-DSS place requirements on availability, integrity, migration, retention, and access of data, and compliance with such policies on stored data remains a key hurdle to cloud computing. This paper proposes a policy management service that offers scalable management of data retention policies attached ...
Jun Li 0008, Sharad Singhal, Ram Swaminathan, Alan H. Karp   +3 more
openaire   +1 more source

Early Impact of Childhood Opportunity on Neurocognitive Outcomes in Sickle Cell Disease

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Neurocognitive impairment is a well‐recognized complication of sickle cell disease (SCD) that begins early in childhood and persists across development. While cerebrovascular injury contributes substantially to risk, neurocognitive deficits are also observed in children without overt or silent cerebral infarctions, suggesting ...
Julia E. LaMotte, Hannah Koch, Olivia A. Coughlin, Jillian R. Bouck, Allie Carter, Seethal A. Jacob   +5 more
wiley   +1 more source

Psychosocial Functioning After Pediatric Bone Sarcoma: Generic and Survivor‐Specific Outcomes in Adolescent and Young Adult Patients

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric bone sarcoma patients and survivors may experience psychosocial challenges related to childhood cancer after their intensive, body‐altering treatment. This cross‐sectional study aimed to evaluate generic and survivor‐specific psychosocial outcomes in a national cohort of pediatric bone sarcoma patients and survivors, and ...
Hinke van der Hoek, Heleen Maurice‐Stam, Laura R. Beek, Jennifer van Dijk, Marjolein E. M. Langemeijer, Relinde W. Slooff‐Lentink, Alied M. van der Aa‐van Delden, Anne Westerweel, Marloes van Gorp, Hendrik W. B. Schreuder, Lianne M. Haveman, W. Peter Bekkering, Leonie G. Tigelaar, Johannes H. M. Merks, Martha A. Grootenhuis   +14 more
wiley   +1 more source