Results 61 to 70 of about 4,335,424 (343)

Molecular Methods for Rare Hemoglobinopathy Cases: First Brazilian Report of Pediatric Siblings with Hb O‐Arab and Alpha‐Thalassemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Hemoglobinopathies are prevalent globally; diagnosis is complex in high genetic admixture populations like Brazil. We report, in two pediatric siblings, the first documented cases in Brazil of heterozygosity for hemoglobin (Hb) O‐Arab with coinheritance of α‐thalassemia (αα/−α4.2; −α3.7/−α4.2), resulting in microcytic and hypochromic anemia ...
Elisângela de Souza Miranda Muynarsk, Amanda Cristina Meneguetti Berti, Bárbara Braga Vieira Marques, Victoria Simões Bernardo, Flaviene Felix Torres, Ingrid Souza Dias, Vanessa da Silveira Ramos de Castro, Gabriela Alves Bernardino, Danilo Grünig Humberto da Silva, Edis Belini‐Júnior   +9 more
wiley   +1 more source

Introduction to Data Ethics [PDF]

, 2018
An Introduction to data ethics, focusing on questions of privacy and personal identity in the economic world as it is defined by big data technologies, artificial intelligence, and algorithmic capitalism. Originally published in The
Brusseau, James
core  

Linking Literature and Data: Status Report and Future Efforts [PDF]

, 2011
In the current era of data-intensive science, it is increasingly important for researchers to be able to have access to published results, the supporting data, and the processes used to produce them.
Accomazzi, Alberto
core   +1 more source

Criterion‐Related Validity of the Neuropsychological Quick Assessment for Screening Cognitive, Motor, and Behavioral Impairments in Patients With Pediatric Brain Tumors: An Observational Pilot Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Neuropsychological complications may impair the qualitative prognosis of patients with pediatric brain tumors. However, multifaceted evaluations cannot be conducted in all patients because they are time consuming and burdensome for patients.
Ami Tabata, Keita Ueda, Tsukasa Ueno, Katsutsugu Umeda, Kentaro Ueno, Kanade Tanaka, Noyuri Nishida, Rie Yamawaki, Megumi Nukui, Yoshiki Arakawa   +9 more
wiley   +1 more source

Medicare Hospital Readmissions Reduction Program [PDF]

, 2011
Outlines national health reform provisions to reduce readmissions by publishing readmission data, lowering Medicare payments to hospitals with high readmission rates, and pairing such hospitals with patient safety organizations.
Jane Hyatt Thorpe, Teresa Cascio
core  

The Efficacy and Safety of Bevacizumab/Irinotecan/Temozolomide (BIT) for Relapsed/Refractory Neuroblastoma: The UK Children's Cancer and Leukaemia Group Experience

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Patients with high‐risk neuroblastoma who either are refractory to induction chemotherapy or relapse following multi‐modal treatment have a dismal prognosis. Based on data from the BEACON trial, since 2021 the UK national guidelines recommend bevacizumab, irinotecan, and temozolomide (BIT) for patients with relapsed/refractory ...
Thomas J. Jackson, Menna Shamma, Upeka Senanayake, Shaimaa Sahmoud, Kathleen Duffin, Victoria Howard, David King, Ayesha Fathani, Blanche Lumb, Andrei Pobischan, Irum Latif Memon, Monzir Ahmed, Rhian Thomas, Gerard Millen, Yasmeen Alomari, Sucheta Vaidya, Lynley V. Marshall, Sally L. George, Ramya Ramanujachar, Juliet Gray, Paola Angelini   +20 more
wiley   +1 more source

Survey on differential privacy and its progress

Tongxin xuebao, 2017
With the arrival of the era of big data sharing,data privacy protection issues will be highlighted.Since its introduction in 2006,differential privacy technology has been widely researched in data mining and data publishing.In recent years,Google,Apple ...
Zhi-qiang GAO, Yu-tao WANG
doaj  

Privacy Preserving Sensitive Data Publishing using (k,n,m) Anonymity Approach

Journal of Communications Software and Systems, 2020
Open Science movement has enabled extensive knowledge sharing by making research publications, software, data and samples available to the society and researchers.
Nancy Victor, Daphne Lopez
doaj  

Implementing Health‐Related Quality of Life Assessment in Pediatric Oncology: A Feasibility Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background There is growing interest in embedding health‐related quality of life (HRQoL) assessment and patient‐reported outcome measures (PROMs) within clinical cancer care. This study evaluated the feasibility, acceptability, and usability of implementing an electronic PROM (ePROM) platform to measure HRQoL in children with cancer ...
Mikaela Doig, Sophie Jessop, Jordan R. Hansford, Hien Le, Matthew O'Connor, Peter Gorayski, Andrew Cunningham, Amanda Hutchinson, Victoria Bedford, Eva Bezak, Nayana Parange, Kelly Skelton, Timothy Price, Michala Short   +13 more
wiley   +1 more source

Data publishing in mechanics and dynamics: challenges, guidelines, and examples from engineering design

Data-Centric Engineering
Data-based methods have gained increasing importance in engineering. Success stories are prevalent in areas such as data-driven modeling, control, and automation, as well as surrogate modeling for accelerated simulation.
Henrik Ebel, Jan van Delden, Timo Lüddecke, Aditya Borse, Rutwik Gulakala, Marcus Stoffel, Manish Yadav, Merten Stender, Leon Schindler, Kristin Miriam de Payrebrune, Maximilian Raff, C. David Remy, Benedict Röder, Rohit Raj, Tobias Rentschler, Alexander Tismer, Stefan Riedelbauch, Peter Eberhard   +17 more
doaj   +1 more source