Results 41 to 50 of about 2,491,322 (314)

Using UX Personas to Improve Library GIS and Data Services

Weave: Journal of Library User Experience, 2021
This study describes the process of persona-creation in a liberal-arts university well-integrated within a global network of Geographic Information System researchers.
Justin Parrott, Taylor Hixson
doaj   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

Adjustment of the marine ecological red lines in China

Scientific Reports
The marine ecological red lines (MERLs) is an institutional innovation of the Chinese government to seek a balance between ecological protection and social development.
Rong Zeng, Yan Xu, Lu Yang, Yangyi Ai, Jie Liu, Chang Liu, Wenhai Lu   +6 more
doaj   +1 more source

Excel for data visualization in academic health sciences libraries: a qualitative case study

Journal of the Medical Library Association, 2020
Background: Data visualization is a growing topic of discussion and area of educational programming in health sciences libraries. This paper synthesizes information on eight institutions’ experiences in offering Excel-focused data visualization workshops
Fred Willie Zametkin LaPolla
doaj   +1 more source

Improved data linkage in the Extended Cohort for E-health, Environment and DNA (EXCEED) study through an electronic informed consent (eConsent) and recruitment management system.

International Journal of Population Data Science, 2022
Objectives The complexities of the informed consent process for participating in cohort-based medical studies are well-recognised, and the pandemic presented specific challenges related to this.
Xueyang Wang, Emma Adams, Catherine Bee, Anna Guyatt, Catherine John, Richard Packer, David Shepherd, Laura Venn, Martin Tobin, Robert Free   +9 more
doaj   +1 more source

RDM Services at the Luxembourg National Data Service

Proceedings of the Conference on Research Data Infrastructure, 2023
The Luxembourg National Data Service (LNDS) was established on 28 July 2022 by the Luxembourg government and public research institutes. LNDS is a national organisation providing services for value creation from public sector data from different domains.
Wei Gu, Christophe Trefois, Pinar Alper, Danielle Welter, Yohan Jarosz, Jacek Lebioda, Linda Ebermann, Regina Becker, Venkata P. Satagopam, Reinhard Schneider 0002, Bert Verdonck   +10 more
openaire   +1 more source

Venous Thromboembolism in Pediatric Bone Sarcoma Patients: A 10‐Year, Single‐Institution Experience Encompassing the COVID‐19 Pandemic

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Osteosarcoma (OS) and Ewing sarcoma (EWS) are the most common primary bone cancers in children, but acute thrombosis is poorly characterized in this population. Our study evaluated the rates of venous thromboembolism (VTE) and associated risk factors in pediatric patients with bone sarcomas treated over a 10‐year period encompassing
Sarah Kappa, Shou Xu, Mark Zobeck, Sarah E. Sartain, Nino Rainusso, Lisa Wang, Nicole Montgomery, Paige Wheaton, Sarah Whittle   +8 more
wiley   +1 more source

The Development of Academic Data Services in Canada and China: Profiles of Data Services at Fudan University and the University of Windsor.

International Journal of Librarianship, 2017
A comparative perspective on the development of academic data services at Fudan University in China and at the University of Windsor in Canada.
Kristi Thompson, Shenqin Yin
doaj   +1 more source

Research Support through Programming: Developing an Automation-Assisted Literature Search

Ticker, 2021
This case study describes the work of librarians at the Lippincott Library of the Wharton School at the University of Pennsylvania in developing a novel approach to supporting research through programming.
Kevin A Thomas, Marcella E. Barnhart
doaj   +2 more sources

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook, Veerain Gupta, Nicholas J. Clark, Vijay Rings, Lauren E. Corona, Douglass B. Clayton, Daniel J. Benedetti   +6 more
wiley   +1 more source