Results 201 to 210 of about 956,345 (261)
Editorial: Global infectious disease surveillance technologies and data sharing protocols. [PDF]
Huang J, Ding Z, Li J.
europepmc +1 more source
ABSTRACT Introduction Spinal cord infarction (SCI) is a rare but devastating myelopathy, characterized by a high disability rate and an unfavorable prognosis. It has often been underdiagnosed and misdiagnosed as idiopathic transverse myelitis (ITM). This study aimed to describe the clinical features, radiological biomarkers, treatments, and functional ...
Zeqiang Ji +13 more
wiley +1 more source
From microscopes to maps: enabling a new era of open and reproducible data sharing in intravital imaging. [PDF]
Peiseler M.
europepmc +1 more source
ABSTRACT Background SOX1 antibody‐positive paraneoplastic neurological syndromes (PNS) exhibit significant population‐specific clinical heterogeneity. While Western cohorts predominantly manifest Lambert‐Eaton myasthenic syndrome (65%–80%), comprehensive clinical characterization and treatment response data in Asian populations remain critically ...
Jin‐Long Ye +11 more
wiley +1 more source
Balancing protection of participants and other stakeholders with openness: African lessons from the MADIVA data sharing and access policy. [PDF]
Nyachowe DT +19 more
europepmc +1 more source
Clinically Relevant Outcome Measures in Women With Adrenoleukodystrophy
ABSTRACT Adrenoleukodystrophy is a rare inherited peroxisomal disease caused by pathogenic variants in the ABCD1 gene located on the X chromosome. Although the most severe central nervous system and adrenal complications typically affect only men with adrenoleukodystrophy, the majority of women develop myeloneuropathy symptoms in adulthood.
Chenwei Yan +3 more
wiley +1 more source
Perceptions and Awareness of Healthcare Professionals Regarding FAIR Data Principles and Health Data Sharing in Saudi Arabia. [PDF]
Alharbi EA, Alrefaei AF.
europepmc +1 more source
ABSTRACT Introduction Progressive Supranuclear Palsy (PSP) is a neurodegenerative ‘tauopathy’ with predominating pathology in the basal ganglia and midbrain. Caudal tau spread frequently implicates the cerebellum; however, the pattern of atrophy remains equivocal.
Chloe Spiegel +8 more
wiley +1 more source
Six solutions for clinical study data sharing in Germany. [PDF]
Bobrov E +4 more
europepmc +1 more source
Toward Responsible and Sustainable Data Sharing in Large-scale Cohort-based Genomic Research. [PDF]
Song 宋洁 J +3 more
europepmc +1 more source

