Results 91 to 100 of about 24,717,677 (336)

The Role of the Gut Microbiota in Allogeneic Hematopoietic Cell Transplantation

American Journal of Hematology, EarlyView.
ABSTRACT Allogeneic hematopoietic cell transplantation (allo‐HCT) is an effective treatment for patients with high‐risk hematologic malignancies. Over the last decade, gut microbiota composition during allo‐HCT has been associated with patients' outcomes.
Wenjing Hao, Nicolas Stocker, Béatrice Gaugler, Mohamad Mohty, Florent Malard   +4 more
wiley   +1 more source

Centering Relationality and CARE for Stewardship of Indigenous Research Data

Data Science Journal
The CARE Principles for Indigenous Data Governance are a seminal advance in the stewardship of Indigenous data. The Data Services for Indigenous Scholarship and Sovereignty (DSISS) project is working to guide how research libraries and data repositories ...
Miranda Belarde-Lewis, Sandra Littletree, Iisaaksiichaa Ross Braine, Kaitlin Srader, Nestor Guerrero, Carole L. Palmer   +5 more
doaj   +1 more source

The International Consortium for Arthrogryposis: A Collaborative Framework for Early Detection, Care, Research, and Education

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Arthrogryposis multiplex congenita (AMC) is a group of rare congenital conditions, characterized by multiple joint contractures but may involve any body system including central nervous system. AMC is etiologically heterogeneous, with over 400 genetic and many non‐genetic causes implicated in its prenatal development.
Shahrzad Nematollahi, Noa Bouzaglo, Victoria Castillo Sanchez, Johanna I. P. de‐Vries, Klaus Dieterich, Alicja Fafara, Isabel Filges, Philip Giampietro, Göknur Haliloğlu, Judith Hall, Coleman Hilton, Remco Jansen, Valentina Maestri, Carolina Navalon, Daniel Natera de Benito, Tony Pan, Ani Samargian, Bonita Sawatzky, Harold van Bosse, Paul A. Trainor, Noémi Dahan‐Oliel   +20 more
wiley   +1 more source

The Role of Data Stewardship in Software Sustainability and Reproducibility [PDF]

2018 IEEE 14th International Conference on e-Science (e-Science), 2018
Software and computational tools are instrumental for scientific investigation in today’s digitized research environment. Despite this crucial role, the path towards implementing best practices to achieve reproducibility and sustainability of research software is challenging.
Cruz, Maria J., Kurapati, Shalini, Turkyilmaz-van der Velden, Yasemin   +2 more
openaire   +3 more sources

Implementing Indigenous Data Sovereignty in Australia: A Five‐Phase Framework for Indigenous Data Governance

Australian Journal of Social Issues, EarlyView.
ABSTRACT This article presents the development of a five‐phase Indigenous Data Governance (IDGov) Framework in Australia, focusing on partnerships between the Aboriginal Community Controlled Health Organisation (ACCHO) sector and non‐Indigenous health entities.
Jacob Prehn, Michael A. Guerzoni, Maggie Walter, Gawaian Bodkin‐Andrews, Bobby Maher   +4 more
wiley   +1 more source

Strengthening Treaty Understanding: The Role of Education in Building Durable Indigenous–State Agreements

Australian Journal of Social Issues, EarlyView.
ABSTRACT Education is a central mechanism for ensuring that Indigenous–State treaties are understood, supported and endure through political change. Public knowledge shapes the negotiation, acceptance, implementation and long‐term stability of agreements. In Australia, however, treaty knowledge remains fragmented.
Jacob Prehn, Harry Hobbs, Jessica Horton
wiley   +1 more source

Investigating Graduate Mentor Perspectives on Data Information Literacy and Stewardship in Undergraduate Engineering Research Projects

Journal of eScience Librarianship
Objectives: The purpose of this study is to explore graduate mentors’ perspectives on the data information literacy of the undergraduate engineering research teams they support, and to identify the challenges these teams face in managing data across the ...
Carla Zoltowski, Joreen Arigye, Sarah Sewell, Senay Purzer, Wei Zakharov   +4 more
doaj   +2 more sources

Cultural obstacles to research data management and sharing at TU Delft

Insights: The UKSG Journal, 2019
Research data management (RDM) is increasingly important in scholarship. Many researchers are, however, unaware of the benefits of good RDM and unsure about the practical steps they can take to improve their RDM practices. Delft University of Technology (
Esther Plomp, Nicolas Dintzner, Marta Teperek, Alastair Dunning   +3 more
doaj   +1 more source

Data Stewardship Wizard

, 2018
The Data Stewardship Wizard ( https://dsw.fairdata.solutions ) is a joint ELIXIR CZ and ELIXIR NL project bringing a smart solution for researchers to help them understand what is needed for good (FAIR based) Data Stewardship, to find ELIXIR experts to help out, and to build their own Data ...
Hooft, Rob, Pergl, Robert, Suchánek, Marek, Gelder, Celia Van   +3 more
openaire   +1 more source

Coscine and Data Stewardship [PDF]

Coscine is the research data management platform for research projects, which is developed by the RWTH Aachen's IT Center. It aims to assist researchers in making their data FAIR—Findable, Accessible, Interoperable, and Resusable—from file storage, description of those files with metadata, and collaboration with all participating researchers as well as
Dukkart, Kseniia, Gonzalez, Catherine E., Parks, Nicole A.   +2 more
openaire   +1 more source