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Peritoneal Dialysis [PDF]
Seminars in Interventional Radiology, 2016 Peritoneal dialysis is becoming more important in the management of patients with end-stage renal disease. Because of the efforts of the "Fistula First Breakthrough Initiative," dialysis venous access in the United States has become focused on promoting arteriovenous fistula creation and reducing the number of patients who start dialysis with a ...Mohammed, Al-Natour, Dustin, Thompsonopenaire +2 more sourcesINF2‐Related Charcot–Marie–Tooth Disease in a Japanese Cohort: Genetic and Clinical Insights
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Background
INF2 mutations cause focal segmental glomerulosclerosis (FSGS) and Charcot–Marie–Tooth disease (CMT). Accurate genetic diagnosis is critical, as INF2‐related FSGS is typically resistant to immunotherapy yet rarely recurs after transplantation, and its associated neuropathy can mimic treatable immune‐mediated disorders such as ...Chikashi Yano, Masahiro Ando, Yujiro Higuchi, Jun‐Hui Yuan, Akiko Yoshimura, Takahiro Hobara, Risa Nagatomo, Fumikazu Kojima, Yu Hiramatsu, Satoshi Nozuma, Tomonori Nakamura, Yusuke Sakiyama, Chika Matsuoka, Toru Yamashita, Takashi Kimura, Ayako Miyazaki, Chinatsu Kinjo, Kenji Yokochi, Nanami Yamanaka, Nozomu Matsuda, Tomoki Suichi, Yoshiyuki Hanaoka, Haruka Kojima, Kenichi Todo, Hiroyuki Ishiura, Jun Mitsui, Shoji Tsuji, Hiroshi Takashima +27 morewiley +1 more sourcePost‐COVID Fatigue Is Associated With Reduced Cortical Thickness After Hospitalization
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective
Neuropsychiatric symptoms are among the most prevalent sequelae of COVID‐19, particularly among hospitalized patients. Recent research has identified volumetric brain changes associated with COVID‐19. However, it currently remains poorly understood how brain changes relate to post‐COVID fatigue and cognitive deficits.Tim J. Hartung, Florentin Steigerwald, Amy Romanello, Cathrin Kodde, Matthias Endres, Sandra Frank, Peter Heuschmann, Philipp Koehler, Stephan Krohn, Daniel Pape, Jens Schaller, Sophia Stöcklein, Istvan Vadasz, Janne Vehreschild, Martin Witzenrath, Thomas Zoller, Carsten Finke, on behalf of the NAPKON Study Group, Y. Ahlgrimm, C. Finke, J. Fricke, T. Keil, L. Krist, N. Lisewsky, M. Mittermaier, M. Mueller‐Plathe, C. Pley, S. Schmidt, A. Stege, F. Steinbeis, S. Steinbrecher, C. Wildberg, M. Witzenrath, E. Zessin, T. Zoller, C. Arendt, C. Bellinghausen, S. Cremer, A. Groh, A. Gruenewaldt, Y. Khodamoradi, S. Klinsing, G. Rohde, M. Vehreschild, T. Vogl, S. Frank, J. C. Hellmuth, M. Huber, S. Kaeaeb, O. T. Keppler, E. Khatamzas, C. Mandel, S. Mueller, M. Muenchhoff, L. Reeh, C. Scherer, H. Stubbe, M. von Bergwelt, L. Weiss, B. Zwissler, S. Cleef, M. E. Figuera Basso, J. Franzenburg, K. Franzpoetter, A. Friedrichs, A. Hermes, J. Heyckendorf, C. Kujat, I. Lehmann, C. Maetzler, S. Meier, D. Pape, S. Poick, L. Reinke, A. K. Russ, A. M. Scheer, D. Schunk, T. Tamminga, S. Bohnet, D. Droemann, K. F. Franzen, R. Hoerster, N. Kaeding, M. Nissen, P. Parschke, J. Rupp, S. Caesar, H. Einsele, S. Frantz, A. Frey, A. Grau, K. Haas, C. Haertel, K. G. Haeusler, G. Hein, J. Herrmann, A. Horn, R. Jahns, P. Meybohm, F. A. Montellano, C. Morbach, J. Schmidt, P. Schulze, S. Stoerk, J. Volkmann, T. Bahmer, A. Hermes, M. Krawczak, W. Lieb, S. Schreiber, T. Tamminga, B. Balzuweit, S. Berger, J. Fricke, M. Hummel, A. Krannich, L. Krist, F. Kurth, J. Lienau, R. Lorbeer, C. Pley, J. Schaller, S. Schmidt, C. Thibeault, M. Witzenrath, T. Zoller, I. Bernemann, T. Illig, M. Kersting, N. Klopp, V. Kopfnagel, S. Muecke, M. Kraus, B. Lorenz‐Depiereux, G. Anton, A. Kuehn‐Steven, S. Kunze, M. K. Tauchert, K. Appel, M. Brechtel, I. Broehl, K. Fiedler, R. Geisler, S. M. Hopff, K. Knaub, C. Lee, S. Nunes de Miranda, S. Raquib, G. Sauer, M. Scherer, J. J. Vehreschild, P. Wagner, L. Wolf, J. C. Hellmuth, K. Guenther, F. Haug, J. Haug, A. Horn, M. Kohls, C. Fiessler, P. U. Heuschmann, O. Miljukov, C. Nuernberger, J. P. Reese, L. Schmidbauer, I. Chaplinskaya, S. Hanss, D. Krefting, C. Pape, M. Rainers, A. Schoneberg, N. Weinert, T. Bahls, W. Hoffmann, M. Nauck, C. Schaefer, M. Schattschneider, D. Stahl, H. Valentin, P. Heuschmann, A. L. Hofmann, S. Jiru‐Hillmann, J. P. Reese, S. Herold, P. Heuschmann, R. Heyder, W. Hoffmann, T. Illig, S. Schreiber, J. J. Vehreschild, M. Witzenrath +190 morewiley +1 more sourceWhere, How, and How Much? A Multicenter Cohort Study of the Relationship Across Lupus Decision‐Aid Modality, Place of Administration, Interruption and Viewing Completeness, and Patient‐Reported Outcomes
Arthritis Care &Research, EarlyView.Objective
We assessed whether shared decision‐making (SDM) and patient acceptability, feasibility, and overall satisfaction with a computerized patient decision aid (PtDA) for patients with systemic lupus erythematosus (SLE) differs by PtDA setting, modality, and the viewing experience. Methods
Patients with SLE were invited to view a self‐administered Jasvinder A. Singh, Mark Beasley, Larry R. Hearld, for the Implementing Decision‐Aid for Lupus in Clinics (IDEAL) Consortium, Winn Chatham, Jasvinder Singh, Sonali Narain, Narender Annapureddy, Diane Kamen, Kimberly Trotter, Vikas Majithia, Cathy Ching, Zineb Aouhab, Swamy Venturupalli, Rosalind Ramsey‐Goldman, Alfred Kim, Maureen McMahon, Sam Lim, Kalpana Bhairavarasu, Alexa Meara, Kenneth Kalunian +20 morewiley +1 more sourceA Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development
Arthritis Care &Research, EarlyView.Objective
A patient‐centered approach for chronic disease management, including systemic lupus erythematosus (SLE), aligns treatment with patients’ values and preferences, leading to improved outcomes. This paper summarizes how patient experiences, perspectives, and priorities informed the American College of Rheumatology (ACR) 2024 Lupus Nephritis (LN)Shivani Garg, Izzy Hartel, Lisa R. Sammaritano, Anca Askanase, Bonnie L. Bermas, Maria Dall'Era, Alí Duarte‐García, Victoria P. Werth, Brad Rovin, Reem A. Mustafa, Amy S. Turner, Bené Williams, Brian L. Ung, Hiya Bhavsar, Monique C. Gore‐Massy, Nahirannette Pulido, Natacha Guerrero, Natalie M. Smith, Wambui Machua, Linda T. Hiraki, Mary Beth Son +20 morewiley +1 more sourceEstablishing a core outcome set for peritoneal dialysis : report of the SONG-PD (standardized outcomes in nephrology-peritoneal dialysis) consensus workshop [PDF]
, 2020 Outcomes reported in randomized controlled trials in peritoneal dialysis (PD) are diverse, are measured inconsistently, and may not be important to patients, families, and clinicians.Abraham, Georgi, Abu Alfa, Ali, Anumudu, Samaya, Au, Eric, Azukaitis, Karolis, Bargman, Joanne, Baumgartf, Amanda, Bernays, Sarah, Bernier-Jean, Amelie, Blake, Peter, Boudville, Neil, Brown, Edwina, Brown, Edwina A., Brunier, Gillian, Brunier, Gillian, Butt, Zeeshan, Carter, Simon A., Chen, Jenny, Cheung, Catherine, Cho, Yeoungjee, Cho, Yeoungjee, Craig, Jonathan, Craig, Jonathan C., Crowe, Sally, Cueto Manzano, Alfonso, da Silva, Viviane Calice, Davies, Simon, Dong, Jie, Dong, Jie, Dunn, Louese, Dunning, Tony, Evangelidis, Nicole, Figueiredo, Ana, Finkelstein, Fred, Germino, Greg, Goffin, Eric, Goh, Bak Leong, Guha, Chandana, Gutman, Talia, Gutman, Talia, Hanson, Camilla, Hemmelgarn, Brenda, Howell, Martin, Htay, Htay, Hurst, Helen, Ito, Yasuhiko, Jassal, Vanita, Jha, Vivekanand, Johnson, David, Johnson, David W., Ju, Angela, Kawanishi, Hideki, Kelly, Amy, Kelly, Ayano, Kilonzo, Kajiru Gad, Kim, Yong-Lim, Krishnan, Mahesh, Lambie, Mark, Levin, Adeera, Li, Philip Kam-Tao, Lichodziejewska-Niemierko, Monika, Liew, Adrian, Logeman, Charlotte, Maner, Karine, Manera, Karine E., Mann, Neelam, Manns, Braden, Matus, Andrea, McGee, Richard, Mehrotra, Rajnish, Mehrotra, Rajnish, Mendelson, Asher, Morelle, Johann, Nadeau-Fredette, Annie-Claire, Naicker, Sarala, Naicker, Saraladevi, Nataatmadja, Melissa, Nessim, Sharon, Neu, Alicia, Neumann, Joanna, Nourse, Peter, O'Lone, Emma, Oliver, Matthew, Pecoits-Filho, Roberto, Perl, Jeffrey, Perl, Jeffrey, Quinn, Robert, Robinson, Bruce, Rutherford, Claudia, Sanabria, Mauricio Rafael, Sautenet, Benedicte, Saxena, Anjali, Scholes-Robertson, Nicole, Schreiber, Martin, Schwartz, Daniel, Sharma, Ankit, Shen, Jenny, Shen, Jenny I., Sumpton, Daniel, Sweety, Soheli Ahmed, Szeto, Cheuk-Chun, Teitelbaum, Isaac, Teixeira-Pinto, Armando, Teo, Sharon, Toffelmire, Ted, Tong, Allison, Tugwell, Peter, Van Biesen, Wim, Van, Kim Linh, Verdin, Nancy, Viecelli, Andrea, Wang, Angela Yee-Moon, Wheeler, David, Wilkie, Martin, Wilkie, Martin, Wilson, Scott, Winkelmayer, Wolfgang, Yap, Hui Kim, Yeates, Karen +118 morecore +2 more sourcesThe Complement System in Dialysis: A Forgotten Story?
Frontiers in Immunology, 2018 Significant advances have lead to a greater understanding of the role of the complement system within nephrology. The success of the first clinically approved complement inhibitor has created renewed appreciation of complement-targeting therapeutics ...Felix Poppelaars, B. Faria, Mariana Gaya da Costa, C. Franssen, W. V. van Son, S. Berger, M. Daha, M. Seelen +7 moresemanticscholar +1 more sourcePharmacokinetics, Pharmacodynamics, and Safety of Subcutaneous Belimumab in Pediatric Patients with Systemic Lupus Erythematosus: A Multicenter, Open‐Label Trial
Arthritis Care &Research, Accepted Article.Objective
This study aimed to characterize the pharmacokinetics, pharmacodynamics, safety, and exploratory efficacy of subcutaneous belimumab in pediatric patients with active systemic lupus erythematosus (SLE) receiving standard therapy. Methods
This single‐arm, multicenter, open‐label trial (GSK study 200908; NCT04179032) used three‐weight‐band ...Hermine I. Brunner, Jordi Antón, Inmaculada Calvo‐Penadés, Richard Dimelow, Gerd Horneff, Sylvia Kamphuis, Rebecca Marino, Andre van Maurik, Kirsten Minden, Masaaki Mori, Josephine Ocran‐Appiah, Christel Wilkinson, Yuichi Yamasaki, Deepak Assudani, for the Pediatric Rheumatology Collaborative Study Group (PRCSG) and Paediatric Rheumatology International Trials Organisation (PRINTO) network investigators +14 morewiley +1 more source