Results 11 to 20 of about 120,906 (157)

The Pulmonary Hypertension Global Patient Survey: Groups 2 and 3. [PDF]

Pulm Circ
ABSTRACT In this first global study of patient perspectives in Group 2 and 3 PH, we demonstrate that those with Group 3 PH report significantly greater adverse impacts on physical and mental wellbeing than those in Group 2 or Group 1, despite a lower treatment side‐effect profile.
Bunclark K, Newman J, Ghani H, Munagala S, Otter E, Fischer G, Kurzyna M, Meszaros G, Stone M, Moledina S, Howard L, Gin-Sing W, Ferrari P, Beghetti M, Toshner M, Granato M, PH GPS Consortium, Pepke-Zaba J.   +17 more
europepmc   +2 more sources

Freedom from disease in psoriasis: a Delphi consensus definition by patients, nurses and physicians. [PDF]

J Eur Acad Dermatol Venereol, 2022
Abstract Background Physician‐reported clinical outcome and quality of life (QoL) measures are currently used to assess outcomes and direct treatment of plaque psoriasis. However, people with psoriasis may have different criteria for judging treatment success.
van Ee I, Deprez E, Egeberg A, Augustin M, Conrad C, Corazza V, Donati L, Lambert J, Lăpădatu R, Meyer A, Paul C, Penzer-Hick R, Stephen K, van der Zon J, Bewley A.   +14 more
europepmc   +2 more sources

The Pulmonary Hypertension Global Patient Survey: Physical and Psychosocial Impacts on Health-Related Quality of Life. [PDF]

Pulm Circ
ABSTRACT The Pulmonary Hypertension (PH) Global Patient Survey provides the first truly international description of the symptomatic burden of PH and its treatment on patient's health‐related quality of life (HRQoL). From 3329 adult responses across 88 countries, the “invisible” nature of PH is an over‐arching theme, with repercussions on socialisation,
Bunclark K, Newman J, Ghani H, Munagala S, Otter E, Fischer G, Kurzyna M, Meszaros G, Stone M, Moledina S, Howard L, Gin-Sing W, Ferrari P, Beghetti M, Toshner M, Granato M, PH GPS Consortium, Pepke-Zaba J.   +17 more
europepmc   +2 more sources

Pulmonary Hypertension Global Patient Survey: A Call to Action 2025. [PDF]

Pulm Circ
Pulmonary Circulation, Volume 15, Issue 3, July 2025.
Newman J, Ghani H, Munagala S, Otter E, Fischer G, Kurzyna M, Meszaros G, Stone M, MacDonald L, Moledina S, Howard L, Gin-Sing W, Ferrari P, Beghetti M, Bunclark K, Toshner M, Granato M, PH GPS Consortium, Pepke-Zaba J.   +18 more
europepmc   +2 more sources

Physical Activity Awareness and Understanding of Treatment Protection Among People With Haemophilia and Their Caregivers in Central Europe. [PDF]

Haemophilia
ABSTRACT Background Physical activity is now considered generally beneficial for persons with haemophilia (PWH). However, the specific type and extent of activity and its impact on quality of life (QoL) and bleed protection during exercise is under‐researched.
Batorova A, Banchev A, Boban A, Brand B, Brinza M, Kotnik BF, Kiss C, Puras G, Rajnoch J, Zapotocka E.   +9 more
europepmc   +2 more sources

Benefits of protected areas for nonbreeding waterbirds adjusting their distributions under climate warming. [PDF]

Conserv Biol, 2021
Abstract Climate warming is driving changes in species distributions and community composition. Many species have a so‐called climatic debt, that is, shifts in range lag behind shifts in temperature isoclines. Inside protected areas (PAs), community changes in response to climate warming can be facilitated by greater colonization rates by warm‐dwelling
Gaget E, Pavón-Jordán D, Johnston A, Lehikoinen A, Hochachka WM, Sandercock BK, Soultan A, Azafzaf H, Bendjedda N, Bino T, Božič L, Clausen P, Dakki M, Devos K, Domsa C, Encarnação V, Erciyas-Yavuz K, Faragó S, Frost T, Gaudard C, Gosztonyi L, Haas F, Hornman M, Langendoen T, Ieronymidou C, Kostyushin VA, Lewis LJ, Lorentsen SH, Luigujõe L, Meissner W, Mikuska T, Molina B, Musilová Z, Natykanets V, Paquet JY, Petkov N, Portolou D, Ridzoň J, Sayoud S, Šćiban M, Sniauksta L, Stīpniece A, Strebel N, Teufelbauer N, Topić G, Uzunova D, Vizi A, Wahl J, Zenatello M, Brommer JE.   +49 more
europepmc   +2 more sources

Harmonising Gastroenterology Training: An Analysis of Gastroenterology Training Curricula of the United European Gastroenterology Member Societies. [PDF]

United European Gastroenterol J
ABSTRACT Introduction Gastroenterology is a dynamic speciality that manages a wide range of gastrointestinal disorders. With the rising burden of gastrointestinal diseases, high‐quality and standardised training is essential. United European Gastroenterology (UEG) aims to harmonise gastroenterology training across Europe.
Schlosser-Hupf S, Staudacher J, Wagner V, Unger M, Sousa P, Donning IM, Müller-Schilling M, Heinrich H, GENIUS Study Group (National Societies Forum, National Societies Committee, Young Talent Group & Friends, Education Committee).   +11 more
europepmc   +2 more sources

Contesting ‘Global Sisterhood’: The Global Women's Health Movement, the United Nations and the Different Meanings of Reproductive Rights (1970s–80s)

Gender &History, Volume 35, Issue 3, Page 811-829, October 2023., 2023
Abstract The article contributes to a genealogy of the global articulation of reproductive rights principles, as established at the 1994 United Nations (UN) Conference on Population and Development held in Cairo and the UN Women's Conference held in Beijing the following year.
Maud Anne Bracke
wiley   +1 more source

Catholic Intimacies: Negotiating Contraception in Late Communist Poland

Journal of Religious History, Volume 46, Issue 3, Page 483-502, September 2022., 2022
The majority of people in Poland self‐identified as Catholic throughout the second half of the twentieth century. Despite the Polish Episcopate's unanimous rejection of contraception as immoral and sinful, a considerable proportion of Polish Catholics utilized family planning techniques and technologies explicitly banned by their institutional Church ...
Agnieszka Kościańska, Agata Ignaciuk, Agata Chełstowska   +2 more
wiley   +1 more source

European principles of care for physiotherapy provision for persons with inherited bleeding disorders: Perspectives of physiotherapists and patients

Haemophilia, Volume 28, Issue 4, Page 649-655, July 2022., 2022
Abstract Introduction In their Chronic Care Model, the World Health Organisation states that people with chronic disorders and their families should be informed about the expected course, potential complications, and effective strategies to prevent complications and manage symptoms.
Piet de Kleijn, G. Duport, K. Jansone, M. Marinić, P. McLaughlin, D. Noone, L. Ramishvili, A. Tollwé, D. Stephensen, the European Haemophilia Consortium and EAHAD Physiotherapy Committee   +9 more
wiley   +1 more source