Results 31 to 40 of about 4,081,530 (304)

Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice

BMC Palliative Care, 2020
Background Developing recommendations for how we deliver healthcare is often left to leading experts in a field. Findings from the Integrated Palliative Care in cancer and chronic conditions (InSup-C) study, which aimed to identify best practice in ...
Nancy Preston, Jeroen Hasselaar, Sean Hughes, Alex Kaley, Lisa Linge-Dahl, Ildiko Radvanyi, Phil Tubman, Karen Van Beek, Sandra Varey, Sheila Payne   +9 more
doaj   +1 more source

Influence of health interventions on quality of life in seriously ill children at the end of life: a systematic review protocol

Systematic Reviews, 2019
Background Seriously ill children suffer from numerous symptoms at the end of their lives, including pain, anxiety, and restricted communication. There are currently no comprehensive overviews of which health interventions have proven benefits and which ...
Veerle E. Piette, Joachim Cohen, Luc Deliens, Nele Pauwels, Jutte van der Werff ten Bosch, Kim Beernaert   +5 more
doaj   +1 more source

Implementing the theory-based advance care planning ACP+ programme for nursing homes: study protocol for a cluster randomised controlled trial and process evaluation

BMC Palliative Care, 2020
Background Research has highlighted the need for improving the implementation of advance care planning (ACP) in nursing homes. We developed a theory-based multicomponent ACP intervention (the ACP+ programme) aimed at supporting nursing home staff with ...
Joni Gilissen, Lara Pivodic, Annelien Wendrich-van Dael, Chris Gastmans, Robert Vander Stichele, Yvonne Engels, Myrra Vernooij-Dassen, Luc Deliens, Lieve Van den Block   +8 more
doaj   +1 more source

Telehealth in palliative care is being described but not evaluated: a systematic review

BMC Palliative Care, 2019
Background Telehealth is growing and its application in palliative care is seen as a solution to pressures on palliative care services. A 2010 UK review reported growing awareness of telehealth in palliative care but a lack of evidence-based research to ...
Sophie Hancock, Nancy Preston, Helen Jones, Amy Gadoud   +3 more
doaj   +1 more source

Developing and validating a questionnaire for mortality follow-back studies on end-of-life care and decision-making in a resource-poor Caribbean country

BMC Palliative Care, 2020
Background Palliative and end-of-life care development is hindered by a lack of information about the circumstances surrounding dying in developing and resource-poor countries.
Nicholas Jennings, Kenneth Chambaere, Cheryl Cox Macpherson, Karen L. Cox, Luc Deliens, Joachim Cohen   +5 more
doaj   +1 more source

Family members’ perceptions of end-of-life care across diverse locations of care [PDF]

, 2013
Background: The goal of the study was to assess perceived level of satisfaction with end-of-life care, focusing on the last 48 hours of life. Methods: A previously validated instrument was used in a telephone survey with bereaved family members (n=
Gallagher, Romayne, Krawczyk, Marian
core   +2 more sources

Communication and Language Profiles of Children Treated for Posterior Fossa Brain Tumors

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Cognitive and language deficits are frequently reported sequelae of posterior fossa brain tumors (PFBT). Typically, delayed onset impedes prompt assessment and early intervention. This has devastating implications for quality of life.
Zara Sved, Meghan Hesse, Jennie Cusiter, Annabel Webb, Kimberley Docking   +4 more
wiley   +1 more source

Stressful Events Reported by Childhood Cancer Survivors and Community Controls From the St. Jude Lifetime (SJLIFE) Cohort: A Mixed Method Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Characterizing stressful events reported by childhood cancer survivors experienced throughout the lifespan may help improve trauma‐informed care relevant to the survivor experience. Methods Participants included 2552 survivors (54% female; 34 years of age) and 469 community controls (62% female; 33 years of age) from the St.
Megan E. Ware, Colter K. Clayton, Fang Wang, Sedigheh Mirzaei, Kyla Shelton, Tara M. Brinkman, Victoria Willard, Katianne M. Howard Sharp, Kevin Krull, Lindsay F. Schwartz, Melissa M. Hudson, Gregory T. Armstrong, Kirsten K. Ness, Rachel T. Webster   +13 more
wiley   +1 more source

The Support Needs of Patients Requesting Medical Aid in Dying and Their Relatives: A Qualitative Study Using Semi-Structured Interviews and Written Narratives

International Journal of Public Health
ObjectivesTo explore the support needs that patients and relatives experience throughout their medical aid in dying (MAID) trajectories.MethodsA qualitative study in Belgium in 2022 using 1) semi-structured interviews with and personal written narratives
Stijn Vissers, Stijn Vissers, Joni Gilissen, Joni Gilissen, Joachim Cohen, Joachim Cohen, Luc Deliens, Luc Deliens, Freddy Mortier, Freddy Mortier, Freddy Mortier, Kenneth Chambaere, Kenneth Chambaere, Sigrid Dierickx, Sigrid Dierickx   +14 more
doaj   +1 more source

Imaging of High‐Risk Neuroblastoma: Recommendations From SIOPEN Radiology and Nuclear Medicine Specialty Committees

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Neuroblastoma is the most common extracranial solid tumor in early childhood. Its clinical behavior is highly variable, ranging from spontaneous regression to fatal outcome despite intensive treatment. The International Society of Pediatric Oncology Europe Neuroblastoma Group (SIOPEN) Radiology and Nuclear Medicine Specialty Committees ...
Annemieke Littooij, Catia Olianti, Herve Brisse, Pier Luigi Di Paolo, Maria Garganese, Tejas Kapadia, Jurgen Schaefer, Hugh Wallace, Simon Wan, Bart de Keizer, Irmina Sefic Pasic, Julian Rogasch   +11 more
wiley   +1 more source