A crucial role of on-site clinical trial monitoring: Insights from the ethics committee. [PDF]
Chindhalore CA, Dakhale GN, Gajbhiye S.
europepmc +1 more source
Evidence from UK Research Ethics Committee members on what makes a good research ethics review, and what can be improved. [PDF]
Sidaway M, Collett C, Kolstoe SE.
europepmc +1 more source
Clinical Impact of NOTCH3 Variant Location After First Stroke in CADASIL
ABSTRACT Objective Despite its monogenic origin, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy exhibits marked variability in clinical expression and severity. Variants in the NOTCH3 gene, within epidermal growth factor‐like repeat domains 1–6 or 7–34, are known to influence disease onset, but their impact ...
Léa Aguilhon +5 more
wiley +1 more source
Unspoken obligations: perspectives on post-trial responsibilities from Tanzanian research ethics committee and researchers. [PDF]
Mwangi R +3 more
europepmc +1 more source
Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members. [PDF]
Mwaka ES +4 more
europepmc +1 more source
HUGO Ethics Committee: ten years on
Ruth Chadwick
doaj +1 more source
ABSTRACT Objective To characterize the demographic, clinical, and laboratory features of the Chinese patients of genetic Creutzfeldt‐Jakob disease with T188K variant (T188K‐gCJD), the most common subtype of genetic prion diseases (gPrDs) in China. Methods In this nationwide retrospective study, data from 98 genetically confirmed T188K‐gCJD patients ...
Chun‐Jie Li +11 more
wiley +1 more source
Informed consent and ethics committee involvement in case reports and case series: cross-sectional meta-research study. [PDF]
Valešić M, Čivljak M, Puljak L.
europepmc +1 more source
Experience of the selected Ethics Committee of Pune city regarding the review of COVID-19 protocols during the pandemic. [PDF]
Joshi SG, Safai AA, Barve SS.
europepmc +1 more source
Screening Routine Clinical Notes for Epilepsy Surgery Candidates Using Large Language Models
ABSTRACT Objective Epilepsy surgery is severely underutilized despite proven efficacy, with substantial under‐referral of eligible patients in routine clinical practice. This study evaluated the potential role of large language models (LLMs) as decision‐support tools for screening unstructured clinical notes to identify epilepsy surgery candidates and ...
Uriel Fennig +9 more
wiley +1 more source

