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Research ethics in a changing social sciences landscape

Research Ethics Review, 2023
The role of research ethics committees, and research ethics issues more broadly are often not viewed in the context of the development of scientific methods and the academic community. This topic piece seeks to redress this gap.
Nicole Brown
doaj   +1 more source

Research ethics committees, ethnographers and imaginations of risk

Ethnography, 2020
Ethnographers’ concerns about institutional ethics review are by now well-known and several hypotheses have been advanced to explain their complaints. Many have highlighted the lack of epistemological fit between ethnographic methods and ethics review ...
Kirsten Bell, L. Wynn
semanticscholar   +1 more source

Ethical ethics committees?: a response [PDF]

Journal of Medical Ethics, 2000
sir Following Dr Barber's letter1 relating to the mechanism for approval of Local Research Ethics Committees (LRECs), I have also had concerns over the intense pressure for a fast turn around for local approval. Projects may have been six months or more in the Multicentre Research Ethics Committe (MREC) process and then arrive on my desk with ...
openaire   +2 more sources

Review of Scientific Self-Experimentation: Ethics History, Regulation, Scenarios, and Views Among Ethics Committees and Prominent Scientists

Rejuvenation Research, 2019
We examine self-experimentation ethics history and practice, related law, use scenarios in universities and industry, and attitudes. We show through analysis of the historical development of medical ethics and regulation, from Hippocrates through Good ...
B. Hanley, W. Bains, George Church
semanticscholar   +1 more source

Rethinking research ethics committees in low- and medium-income countries

Research Ethics Review, 2018
Key historical landmark research malpractice scandals that shocked the international community (Nazi doctors’ experiments, Tuskegee study, Jewish chronic disease experiments, Krugman’s Willowbrook hepatitis study) were the origin of the institution of ...
Luchuo Engelbert Bain, Ikenna Desmond Ebuenyi, Nkoke Clovis Ekukwe, Paschal Kum Awah   +3 more
doaj   +1 more source

Ethics preparedness: facilitating ethics review during outbreaks - recommendations from an expert panel

BMC Medical Ethics, 2019
Background Ensuring that countries have adequate research capacities is essential for an effective and efficient response to infectious disease outbreaks.
Abha Saxena, Peter Horby, John Amuasi, Nic Aagaard, Johannes Köhler, Ehsan Shamsi Gooshki, Emmanuelle Denis, Andreas A. Reis, the ALERRT-WHO Workshop, Raffaella Ravinetto   +9 more
doaj   +1 more source

Redundant trials can be prevented, if the EU clinical trial regulation is applied duly

BMC Medical Ethics, 2020
The problem of wasteful clinical trials has been debated relentlessly in the medical community. To a significant extent, it is attributed to redundant trials – studies that are carried out to address questions, which can be answered satisfactorily on the
Daria Kim, Joerg Hasford
doaj   +1 more source

In Pursuit of Ethical and Inclusive Research: What Ethics Committees and Disability Researchers Can Learn From Each Other

International Journal of Qualitative Methods
Across disciplines, qualitative researchers have documented epistemological and practical tensions in the ethical review of community-based and participatory research, with many arguing that ethics committees’ decisions perpetuate the exclusion of ...
Megan Walsh, V. Stead, Susan M Sawyer, A. O’Shea, J. Watson, Kate Anderson   +5 more
semanticscholar   +1 more source

Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model

BMC Medical Ethics, 2019
In the past decade, there has been an increase in genomic research and biobanking activities in Africa. Research initiatives such as the Human Heredity and Health in Africa (H3Africa) Consortium are contributing to the development of scientific capacity ...
P. Tindana, Aminu Yakubu, C. Staunton, A. Matimba, K. Littler, Ebony B. Madden, N. S. Munung, J. de Vries   +7 more
semanticscholar   +1 more source

Importance of systematic deliberation and stakeholder presence: a national study of clinical ethics committees

Journal of Medical Ethics, 2019
Background Case consultation performed by clinical ethics committees (CECs) is a complex activity which should be evaluated. Several evaluation studies have reported stakeholder satisfaction in single institutions.
Morten Magelssen, R. Pedersen, Ingrid Miljeteig, Håvard Ervik, R. Førde   +4 more
semanticscholar   +1 more source