Results 51 to 60 of about 217,048 (207)

Clinical Ethics Training in Canada: Moving Towards Standardization

Canadian Journal of Bioethics
This paper summarizes the presentation and stakeholder feedback gathered from the Canadian Bioethics Society Workshop and Community Forum in May 2023, in a session entitled, “Clinical Ethics Fellowship in Canada: Making the Move Towards Standardization”.
Winifred Badaiki, Andrea Frolic
doaj   +1 more source

Ethical issues in epidemiologic research and public health practice

Emerging Themes in Epidemiology, 2006
A rich and growing body of literature has emerged on ethics in epidemiologic research and public health practice. Recent articles have included conceptual frameworks of public health ethics and overviews of historical developments in the field.
Coughlin Steven S
doaj   +1 more source

COVID-19 underscores the important role of Clinical Ethics Committees in Africa

BMC Medical Ethics, 2021
Background The COVID-19 pandemic has magnified pre-existing challenges in healthcare in Africa. Long-standing health inequities, embedded in the continent over centuries, have been laid bare and have raised complex ethical dilemmas.
Keymanthri Moodley, Siti Mukaumbya Kabanda, Anita Kleinsmidt, Adetayo Emmanuel Obasa   +3 more
doaj   +1 more source

Remote Assessment of Ataxia Severity in SCA3 Across Multiple Centers and Time Points

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Spinocerebellar ataxia type 3 (SCA3) is a genetically defined ataxia. The Scale for Assessment and Rating of Ataxia (SARA) is a clinician‐reported outcome that measures ataxia severity at a single time point. In its standard application, SARA fails to capture short‐term fluctuations, limiting its sensitivity in trials.
Marcus Grobe‐Einsler, Vivian Maas, Arian Taheri Amin, Jennifer Faber, Tamara Schaprian, Katharina Hill, Matthis Synofzik, Lisa H. Graf, Heike Jacobi, Manuela Lima, Ana F. Ferreira, Bart P. van de Warrenburg, Ilse H. J. Willemse, Dagmar Timmann, Andreas Thieme, Paola Giunti, Hector Garcia‐Moreno, Magda M. Santana, Jeannette Hübener‐Schmid, Elin H. Davies, Thomas Klockgether   +20 more
wiley   +1 more source

Brainstem and Cerebellar Volume Loss and Associated Clinical Features in Progressive Supranuclear Palsy

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Introduction Progressive Supranuclear Palsy (PSP) is a neurodegenerative ‘tauopathy’ with predominating pathology in the basal ganglia and midbrain. Caudal tau spread frequently implicates the cerebellum; however, the pattern of atrophy remains equivocal.
Chloe Spiegel, Timothy P. Siejka, Cassandra Marotta, Josh J. Y. Lee, Kelly Bertram, Terence J. O'Brien, Meng Law, Lucy Vivash, Ian H. Harding   +8 more
wiley   +1 more source

Hospital/clinical ethics committees' notion: an overview

Journal of Medical Ethics and History of Medicine, 2016
Hospital ethics committees (HECs) help clinicians deal with the ethical challenges which have been raised during clinical practice. A comprehensive literature review was conducted to provide a historical background of the development of HECs ...
Fatemeh Hajibabaee, Soodabeh Joolaee, Mahammad Ali Cheraghi, Pooneh Salari, Patricia Rodney   +4 more
doaj  

Neonatal Ethics Teaching Program – Scenario-Oriented Learning in Ethics: Antenatal Consultation at the Limit of Viability

MedEdPORTAL, 2015
Scenario Oriented Learning in Ethics uses standardized patients (SPs) as a teaching tool to impart knowledge on the principal and the three key competencies of the Neonatal Ethics Teaching Program that trainees are expected to acquire before completing ...
Thierry Daboval, Emanuela Ferretti, Kristina Rohde, Paul Muirhead, Gregory Moore   +4 more
doaj   +1 more source

Clinical Ethics Committees in Africa: lost in the shadow of RECs/IRBs?

BMC Medical Ethics, 2020
Background Clinical Ethics Committees (CECs) are well established at healthcare institutions in resource-rich countries. However, there is limited information on established CECs in resource poor countries, especially in Africa.
Keymanthri Moodley, Siti Mukaumbya Kabanda, Leza Soldaat, Anita Kleinsmidt, Adetayo Emmanuel Obasa, Sharon Kling   +5 more
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Diffusion Spectrum Imaging Maps Early Axonal Loss and a Unique Progressive Signal in Neuronal Intranuclear Inclusion Disease

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To delineate specific in vivo white matter pathology in neuronal intranuclear inclusion disease (NIID) using diffusion spectrum imaging (DSI) and define its clinical relevance. Methods DSI was performed on 42 NIID patients and 38 matched controls.
Kaiyan Jiang, Yixiu Pei, Xiaobao Hu, Ying Xiong, Fang Wang, Yanyan Yu, Min Zhu, Dandan Tan, Meihong Zhou, Daojun Hong, Fuqing Zhou   +10 more
wiley   +1 more source

‘If you build it, they will come…to the wrong door: evaluating patient and caregiver-initiated ethics consultations via a patient portal’

BMJ Health & Care Informatics
Objectives Memorial Sloan Kettering Cancer Center (MSK) sought to empower patients and caregivers to be more proactive in requesting ethics consultations.Methods Functionality was developed on MSK’s electronic patient portal that allowed patients and/or ...
Konstantina Matsoukas, Liz Blackler, Amy E Scharf, Michelle Colletti, Louis P Voigt   +4 more
doaj   +1 more source