Results 71 to 80 of about 44,424 (271)

Observations on an Open‐Label Phase 1/2 Dopamine Gene Therapy Trial (OXB‐102/Axo‐Lenti‐PD) in People with Parkinson's Disease

open access: yesMovement Disorders, EarlyView.
Abstract Background SUNRISE‐PD was a dose‐escalating, phase 1/2 study investigating a second‐generation lentiviral vector gene therapy delivering the genes for dopamine synthesis (OXB‐102) to treat Parkinson's disease (PD). The trial was prematurely terminated due to insolvency of the sponsor.
Simon Rowe   +19 more
wiley   +1 more source

The health state preferences and logistical inconsistencies of New Zealanders: a tale of two tariffs [PDF]

open access: yes
Notwithstanding the proposed use of Cost-Utility Analysis (CUA) to inform health care priority setting in New Zealand, to date there has been no research into New Zealanders’ valuations of health-related quality of life. This paper reports the results of
N J Devlin   +3 more
core  

Key Interventions in Friedreich's Ataxia and Their Impact on Patient Outcomes: A Systematic Review

open access: yesMovement Disorders, EarlyView.
Abstract Friedreich's ataxia (FA) is a rare neurodegenerative disease with multisystemic symptoms that requires multidisciplinary care. This systematic review summarizes available pharmacological and nonpharmacological interventions, their outcomes, and alignment with patient‐centered care domains, as well as their impact on these domains.
Dorota Sarwinska   +6 more
wiley   +1 more source

The use of patient-reported outcome measures to improve patient-related outcomes – a systematic review

open access: yesHealth and Quality of Life Outcomes
Background Patient-reported outcome measures (PROMs) provide invaluable information on patients’ health outcomes and can be used to improve patient-related outcomes at the individual, organizational and policy levels.
Joshua M. Bonsel   +4 more
doaj   +1 more source

EuroQol-5D (EQ-5D): an instrument for measuring quality of life

open access: yesMonaldi Archives for Chest Disease, 2015
The aim of this paper was to provide a detailed description of the EuroQol- 5 Dimension (EQ-5D) useful for those member of staff in rehabilitation setting who wish to use it properly.
Gianluigi Balestroni, Giorgio Bertolotti
doaj   +1 more source

Mean EuroQol-5D results by age and sex.

open access: yes, 2017
Mean EuroQol-5D results by age and sex.
Antonio Jesús Núñez-Montenegro (3719896)   +5 more
core   +1 more source

Real‐World Evaluation of Bilateral Magnetic Resonance–Guided Focused Ultrasound Thalamotomy in Essential Tremor

open access: yesMovement Disorders, EarlyView.
Abstract Background Magnetic resonance–guided focused ultrasound (MRgFUS) thalamotomy is effective in treating essential tremor (ET) with an adequate safety profile. Objective The aim of the study was to evaluate the real‐world safety and efficacy of staged bilateral MRgFUS thalamotomy in ET and its impact on patient's quality of life (QoL) and patient‐
Dolores Vilas   +8 more
wiley   +1 more source

EuroQol Toddler and Infant Populations (EQ-TIPS): Age-Related Differences in Performance

open access: yesChildren
Objectives: The EQ-TIPS was developed to measure the Health-Related Quality of Life in infants/toddlers. Considering the rapid development in this period, this study aimed to investigate age-related variations in EQ-TIPS performance.
Janine Verstraete   +2 more
doaj   +1 more source

Improving valuation sampling of EQ-5D health states

open access: yesHealth and Quality of Life Outcomes, 2013
Background The original valuation exercise which formed the basis of the UK EQ-5D time trade-off social tariff of health states, employed a sampling scheme involving 43 health states.
Bagust Adrian
doaj   +1 more source

Validity of the AusTOM scales: a comparison of the AusTOMs and EuroQol-5D.

open access: yesHealth and quality of life outcomes, 2004
Clinicians require brief outcome measures in their busy daily practice to document global client outcomes. Based on the UK Therapy Outcome Measure, the Australian Therapy Outcome Measures were designed to capture global therapy outcomes of occupational therapy, physiotherapy and speech pathology in the Australian clinical context. The aim of this study
Unsworth, CA   +5 more
openaire   +4 more sources

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