Results 111 to 120 of about 27,284,541 (286)

The JARDIN Hackathon to Seek Solutions to Overcome Technical Barriers in Health Data Exchange: From the Point of Care to European Registry Networks

Data Science Journal
Effective exchange of health data between healthcare providers, national registries, and European Reference Networks (ERNs) is crucial for advancing research and clinical care of rare diseases.
César Bernabé, Daphne Wijnbergen, Alberto Cámara, Karolis Cremers, Margarida Magalhães, Daniela Vicentini Albring, Sergi Aguiló-Castillo, Kalia Orphanou, Stella Tamana, Maria Xenophontos, Laura Menotti, Mirco Cazzaro, Ornella Irrera, Joëlle Thonnard, Sander van Boom, Iris C. M. Pelsma, Annika Jacobsen, Andrew Gibson, Veronica Popa, Mark Wilkinson, Marco Roos   +20 more
doaj   +1 more source

Understanding the Burden of Orofacial Involvement and Patient Treatment Preferences in Systemic Sclerosis: Results From a Large International Survey

Arthritis Care &Research, EarlyView.
Objective Orofacial manifestations are significantly impactful in patients with systemic sclerosis (SSc) yet remain understudied, with no dedicated clinical guidelines to inform their management. Methods An international online survey comprised38 questions addressing orofacial manifestations of SSc, including patients’ confidence in their treating ...
Eleni Deligianni, Lee Shapiro, Deana Gibbs, Zsuzsanna H. McMahan, Michael Hughes   +4 more
wiley   +1 more source

Common Minimum Metadata for FAIR Semantic Artefacts

, 2023
International audienceSemantic interoperability is crucial for the FAIR Principles and strongly relies on Semantic Artefacts that also need to be FAIR. To achieve this, semantic artefacts require rich, structured, and interoperable metadata.
Jonquet, Clement, Dutta, Biswanath, Santos, Luiz O. Bonino da Silva, Pergl, Robert, Le Franc, Yann   +4 more
core   +2 more sources

Open data ownership and sharing: Challenges and opportunities for application of FAIR principles and a checklist for data managers

Journal of Agriculture and Food Research
The amount of data generated across various disciplines has been steadily increasing and is projected to experience exponential growth in the foreseeable future. This underscores the pressing need for proficient and streamlined data management.
Albert I. Ugochukwu, Peter W.B. Phillips
doaj   +1 more source

Automated Hand Flexor Tendon–Thickness Measurement in Systemic Sclerosis

Arthritis Care &Research, EarlyView.
Objective Systemic sclerosis (SSc) can affect flexor tendons, contributing to hand function problems and reduced quality of life. Tendon changes are currently assessed with ultrasonography and measured manually, a time‐consuming process prone to interobserver variability.
Mark Greveling, Ties van het Erve, Yvette van de Berg, Simon Mastbergen, Julia Spierings   +4 more
wiley   +1 more source

Patients improve, patterns persist: longitudinal stability of RA joint involvement patterns

Arthritis Care &Research, Accepted Article.
Objective Rheumatoid arthritis is a heterogeneous disease. Data‐driven approaches, from synovial histology to joint involvement patterns (JIPs), have sought to define clinically meaningful subgroups. Whether these subgroups represent stable phenotypes or transient disease states remains unclear.
Tjardo Maarseveen, Yasuo Nagafuchi, Kristina Lend, Seyam Alemyar, Herman Kasper Glas, Gerdur Gröndal, Bjorn Gudbjornsson, Espen A. Haavardsholm, Kim Hørslev Petersen, Jon Lampa, Merete Lund Hetland, Dan Nordström, Mike Nurmohamed, Mikkel Østergaard, Anna Rudin, Marte Schrumpf Heiberg, Tuulikki Sokka‐Isler, Till Uhlig, Josien Veris‐van Dieren, Ronald van Vollenhoven, Tom Huizinga, Marcel JT Reinders, Sytske Anne Bergstra, Erik van den Akker, Rachel Knevel   +24 more
wiley   +1 more source

Generative Artificial Intelligence in Clinical Practice: How Should Rheumatologists Evaluate and Monitor Emerging Tools?

Arthritis Care &Research, EarlyView.
Generative artificial intelligence (AI) is increasingly being used in rheumatology practice, to assist with tasks such as documentation, record summarization, and clinical decision support. Rheumatologists need a practical approach to determining what evidence and oversight each application requires.
Koushan Kouranloo, Mrinalini Dey, Jinoos Yazdany   +2 more
wiley   +1 more source

Applying FAIR Principles to Plant Phenotypic Data Management in GnpIS

Plant Phenomics, 2019
GnpIS is a data repository for plant phenomics that stores whole field and greenhouse experimental data including environment measures. It allows long-term access to datasets following the FAIR principles: Findable, Accessible, Interoperable, and ...
C. Pommier, C. Michotey, G. Cornut, P. Roumet, E. Duchêne, R. Flores, A. Lebreton, M. Alaux, S. Durand, E. Kimmel, T. Letellier, G. Merceron, M. Laine, C. Guerche, M. Loaec, D. Steinbach, M. A. Laporte, E. Arnaud, H. Quesneville, A. F. Adam-Blondon   +19 more
doaj   +1 more source

Revisiting Stability Criteria in Ball‐Milled High‐Entropy Alloys: Do Hume–Rothery and Thermodynamic Rules Equally Apply?

Advanced Engineering Materials, Volume 27, Issue 6, March 2025.
The stability criteria affecting the formation of high‐entropy alloys, particularly focusing in supersaturated solid solutions produced by mechanical alloying, are analyzed. Criteria based on Hume–Rothery rules are distinguished from those derived from thermodynamic relations. The formers are generally applicable to mechanically alloyed samples.
Javier S. Blázquez, Alejandro F. Manchón‐Gordón, Antonio Vidal‐Crespo, Rafael Caballero‐Flores, Jhon J. Ipus, Clara F. Conde   +5 more
wiley   +1 more source

Development and Implementation of Research Data Management in the DFG-Funded Research Consortium SFB/TRR219

Bausteine Forschungsdatenmanagement
Research Data Management (RDM) is a crucial component of any Collaborative Research Centre (CRC). It facilitates interdisciplinary collaboration, promotes good research practice and supports reproducibility, and adherence to the FAIR principles ...
Kseniia Dukkart
doaj   +1 more source