Results 141 to 150 of about 110,519 (287)

Aligning NASA Earth Science Data Stewardship with FAIR Principles: Outcomes, Recommendations, and Future Directions

open access: yesData Science Journal
The FAIR Principles—Findable, Accessible, Interoperable, and Reusable—offer a widely accepted framework for improving the sharing and reuse of digital scientific data by both human and machine users.
Ge Peng   +8 more
doaj   +1 more source

Progressive Parkinsonism in PPP2R5D‐Related Neurodevelopmental Disorder

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT PPP2R5D‐related neurodevelopmental disorder (Houge–Janssens syndrome type 1) is a rare autosomal dominant condition characterized by macrocephaly, intellectual disability, and epilepsy. Progressive parkinsonism is an emerging adult phenotype that neurologists should be aware of since timely genetic diagnosis opens the door to disease‐modifying
Katerina Bernardi   +6 more
wiley   +1 more source

The Price of Precision: A Critical Review of Molecular Diagnostics in Glioma, From Guidelines to Global Disparities

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Gliomas have undergone a profound redefinition over the past decade, transitioning from morphology‐based entities to biologically coherent diseases defined by molecular alterations. The 2021 WHO Classification of Tumors of the Central Nervous System and its 2022 update formalize this shift, establishing integrated diagnosis as the global ...
Maria Guarnaccia, Sebastiano Cavallaro
wiley   +1 more source

D4.2 - FAIR semantic artefact lifecycle from engineering, to sharing [PDF]

open access: yes
Semantic Artefacts (SAs) is a broad term to designate different knowledge organization systems or semantic resources, including ontologies, terminologies, taxonomies, thesauri, vocabularies and, metadata schemas.
Jonquet, Clement   +9 more
core   +1 more source

Understanding the Burden of Orofacial Involvement and Patient Treatment Preferences in Systemic Sclerosis: Results From a Large International Survey

open access: yesArthritis Care &Research, EarlyView.
Objective Orofacial manifestations are significantly impactful in patients with systemic sclerosis (SSc) yet remain understudied, with no dedicated clinical guidelines to inform their management. Methods An international online survey comprised38 questions addressing orofacial manifestations of SSc, including patients’ confidence in their treating ...
Eleni Deligianni   +4 more
wiley   +1 more source

Letter, Galen M. Fisher to Larry Seiichi Kataoka, Nov. 7, 1945 [PDF]

open access: yes, 1945
Letter from the Committee on American Principles and Fair Play regarding Larry Kataoka's prospects for the revocation of his renunciation of citizenship. 1 page, single sided. Paper, ink.Collected by Larry Seiichi Kataoka at Tule Lake.
Committee on American Principles and Fair Play
core  

Why isn’t FAIR enough? Bringing together methods and values for Open Science uptake

open access: yesUmanistica Digitale
The FAIR principles have emerged as a global standard for Research Data Management but their application has not had the expected impact, especially considering the considerable amount of funding which has been put into FAIR policies.
Francesca Di Donato, Lottie Provost
doaj   +1 more source

A Case for Accelerating Standards to Achieve the FAIR Principles of Environmental Health Research Experimental Data. [PDF]

open access: yesEnviron Health Perspect, 2023
Nault R   +5 more
europepmc   +1 more source

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