Results 101 to 110 of about 5,912 (216)

Milestone Attainment in Young Children With Arthrogryposis Multiplex Congenita: Developmental Profile and Associated Factors

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Evidence on developmental milestones in children with arthrogryposis multiplex congenita (AMC) under the age of five is scarce. This multisite cross‐sectional study described developmental status and examined factors associated with milestone attainment in 143 children aged 0–66 months from a pediatric AMC Registry.
Ahlam Zidan, Sophia C. Pasia, Emmanouil Rampakakis, Reggie Hamdy, Frank Rauch, Lauren C. Hyer, Joel Lerman, Haluk Altiok, Krister Freese, Cary Mielke, Sarah B. Nossov, Philip F. Giampietro, Thania Ordaz‐Robles, Noémi Dahan‐Oliel   +13 more
wiley   +1 more source

Designing gender-inclusive data systems in small-scale fisheries. [PDF]

Ambio
Harper SJ, Williams M, Kleiber D, Axelrod M, Mangubhai S, Torell E, Macho G, Fakoya K, Gopal N, Ojea E, Lawless S, Franz N, de la Torre-Castro M, Deeg C, Gustavsson M, Oloko A, Atkins M, Basurto X, Soejima K, Ferrer AJ, Del Mar Mancha-Cisneros M, Pedroza-Gutiérrez C, Choudhury A, Cohen PJ, Siegelman B, Bradford K, Duffy-Tumasz A, Fröcklin S, Gee J, Kusakabe K, Appiah S, Manyungwa-Pasani C, Virdin J, Sutaria SS, Siyanbola O, McDougall C.   +35 more
europepmc   +1 more source

Denial of Inpatient Genetic Testing: A Study on Outpatient Yield and Outcomes

American Journal of Medical Genetics Part A, EarlyView.
ABSTRACT Genetic conditions suspected in children often require genetic testing for accurate diagnoses, but testing remains costly. Case management teams review genetic test requests to improve access for patients while reducing the financial burden for medical institutions.
Cindy Y. Canales, Kathleen Shields, Meagan Choates, Paul Hillman, Laura Farach, Theresa Wittman, Kathryn Leal   +6 more
wiley   +1 more source

Publisher Correction: How advocacy coalitions in Sweden explain the policy gap between Swedish and EU eel fishery policies. [PDF]

Ambio
Nilsson J, Sandström A.
europepmc   +1 more source

Homelessness Service Usage Patterns of 30,000 Homeless and At‐Risk Households: The Melbourne Access Point Study

Australian Journal of Social Issues, EarlyView.
ABSTRACT Over the last three decades, overseas researchers have utilised administrative data to identify distinct patterns in shelter use. In Australia, the use of administrative data to understand service utilisation patterns among people ‘at risk’ of homelessness and experiencing homelessness is limited.
Godwin Kavaarpuo, Kathryn Daley, Guy Johnson   +2 more
wiley   +1 more source

Bridging Knowledge Systems and Perspectives to Inform Salmon Management and Research: A Kuskokwim River Case Study. [PDF]

Ecol Evol
Esquible J, Hoffman A, Ropati D, Woods B, Black J, Donkersloot R, Williams M, Justin W, Leon J, Stevens C, Chythlook C, Wagner T, Carothers C.   +12 more
europepmc   +1 more source

Understanding the Housing and Support Experience of People With Complex Disability in Australia: A Qualitative Analysis of Submissions to the Disability Royal Commission

Australian Journal of Social Issues, EarlyView.
ABSTRACT In 2019, the Australian government established the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability (‘Disability Royal Commission’, DRC) to investigate widespread mistreatment of people with disability. Nearly 10,000 people with disability, their families and supporters engaged with the DRC.
Kate D'Cruz, Fiona Carey, Libby Witts, Jessie Spence, Peter Mulherin, Megan Topping, Di Winkler, Jacinta Douglas   +7 more
wiley   +1 more source

Valuating marine knowledge: Heterogeneous collaborations at the Concarneau marine station. [PDF]

Hist Philos Life Sci
Bogusz T.
europepmc   +1 more source

Supported Decision‐Making Rights in Behaviour Support Policies

Australian Journal of Social Issues, EarlyView.
ABSTRACT Disability policy emphasises that people with disability have the right to exercise their will and preferences in their lives, and decision‐making support must be provided to realise this right if they request. One context in which people's will and preferences are often restricted is behaviour support.
Sally Robinson, Karen R. Fisher, Julian Laurens, Alinka Fisher, Sabrina Forte, Katrina Reschke, Rosemary Kayess   +6 more
wiley   +1 more source

Adjusting the management of the Antarctic krill fishery to meet the challenges of the 21st century. [PDF]

Proc Natl Acad Sci U S A
Meyer B, Arata JA, Atkinson A, Bahlburg D, Bernard K, Cárdenas CA, Grant SM, Hill SL, Hüppe L, Ichii T, Kawaguchi S, Krafft BA, Labrousse S, Maschette D, Piñones A, Reiss C, Siebenhüner B, Sylvester Z, Ziegler P.   +18 more
europepmc   +1 more source