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A guide to sharing open healthcare data under the General Data Protection Regulation [PDF]
Scientific Data, 2023 Sharing healthcare data is increasingly essential for developing data-driven improvements in patient care at the Intensive Care Unit (ICU). However, it is also very challenging under the strict privacy legislation of the European Union (EU).
Jip W. T. M. de Kok +17 more
doaj +2 more sources
COVID-19 Research: Navigating the European General Data Protection Regulation [PDF]
Journal of Medical Internet Research, 2020 Researchers must collaborate globally to rapidly respond to the COVID-19 pandemic. In Europe, the General Data Protection Regulation (GDPR) regulates the processing of personal data, including health data of value to researchers.
Becker, Regina +3 more
doaj +2 more sources
COVID-19: Putting the General Data Protection Regulation to the Test [PDF]
JMIR Public Health and Surveillance, 2020 The coronavirus disease (COVID-19) pandemic is very much a global health issue and requires collaborative, international health research efforts to address it.
McLennan, Stuart +2 more
doaj +2 more sources
The Effect of the General Data Protection Regulation on Medical Research. [PDF]
J Med Internet Res, 2017 The enactment of the General Data Protection Regulation (GDPR) will impact on European data science. Particular concerns relating to consent requirements that would severely restrict medical data research have been raised.Our objective is to explain the changes in data protection laws that apply to medical research and to discuss their potential impact.
Rumbold JM, Pierscionek B.
europepmc +7 more sources
The new General Data Protection Regulation: Still a sound system for the protection of individuals? [PDF]
Computer Law and Security Review, 2016 The five-year wait is finally over; a few days before expiration of 2015 the “trilogue” that had started a few months earlier between the Commission, the Council and the Parlia- ment suddenly bore fruit and the EU data protection reform package has finally been concluded. As planned since the beginning of this effort a Regulation, the General Data Pro-
Paul De Hert, Vagelis Papakonstantinou
exaly +4 more sources
Un General Data Protection Regulation (GDPR) non molto general
Archivio Antropologico Mediterraneo, 2021 Anthropological research and social research in general are facing the restrictions and the new data management procedures established by the new European regulation, established in 2018. Before analyzing the technical merits of what is still possible to
Elena Bougleux
doaj +1 more source
The Role and Significance of the Data Protection Officer in the Organization
Socialiniai Tyrimai, 2021 Following the entry into force of the General Data Protection Regulation (hereafter referred to as the GDPR), organizations that process personal data must ensure and demonstrate compliance with all of its principles.
Aurimas Šidlauskas
doaj +1 more source
Socialiniai Tyrimai, 2021 The implementation of the EU General Data Protection Regulation (hereinafter referred to as the Regulation), which, among other things, aims to eliminate disparities between national systems and to alleviate unnecessary administrative burdens, began on ...
Aurimas Šidlauskas
doaj +1 more source
Scrutinizing the EU General Data Protection Regulation [PDF]
Science, 2018 How will new decentralized governance impact research?
Marelli, Luca, Testa, Giuseppe
openaire +3 more sources
La evaluación de impacto en protección de datos en los proyectos de investigación
Gaceta Sanitaria, 2020 Resumen: Los recientes cambios en la normativa europea de protección de datos de carácter personal siguen permitiendo el uso de los datos sanitarios con fines de investigación, pero establecen la evaluación de impacto en protección de datos como ...
Francisco Javier García-León +4 more
doaj +1 more source