Results 101 to 110 of about 2,407,465 (287)

Video education about genetic privacy and patient perspectives about sharing prenatal genetic data: a randomized trial. [PDF]

open access: yesAm J Obstet Gynecol, 2022
Parobek CM   +6 more
europepmc   +1 more source

On-line privacy and consent: a dialogue, not a monologue [PDF]

open access: yes, 2010
With the move to deliver services on-line, there is a reduction in\ud opportunities for a service user to discuss and agree to the terms\ud of the management of their personal data.
Lizzie Coles-Kemp   +3 more
core   +1 more source

Deep Learning Pose Estimation for Phenotyping of Co‐Occurring Hyperkinetic Movement Disorders

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To explore whether routine outpatient video combined with deep learning‐based pose estimation and clinically interpretable kinematic features can support multi‐label phenotyping of co‐occurring hyperkinetic movement disorders (HMDs).
Laura Cif   +17 more
wiley   +1 more source

Prevalence of Systemic Lupus Erythematosus in Australia, 2010–2022: A Population‐Based Study Using Linked National Administrative Health Data

open access: yesArthritis Care &Research, EarlyView.
Objective Systemic lupus erythematosus (SLE) is a heterogenous inflammatory condition with widely varying global prevalence estimates. The frequency of SLE in the general population of Australia has been reported to be notably lower than contemporary estimates in countries such as the United States or United Kingdom, at 19 to 39 per 100,000 as opposed ...
Lucinda Roper   +7 more
wiley   +1 more source

Opt-in or out? Public perspectives on forensic DNA kinship investigations within the Dutch-speaking community

open access: yesHeliyon
Forensic DNA kinship investigation involves analyzing genetic relationships between individuals to offer new leads for solving (cold) cases. Familial DNA matching has become a valuable asset in criminal case investigations, especially when traditional ...
Sofie Claerhout   +3 more
doaj   +1 more source

Formal and Informal Social Care in People With Rheumatic and Musculoskeletal Diseases: A Cross‐Sectional Multicenter Survey

open access: yesArthritis Care &Research, EarlyView.
Objective Rheumatic and musculoskeletal diseases (RMDs) are leading causes of physical disability, necessitating support with activities of daily living. This study describes social care received by patients with RMDs in two disparate regions of England: Salford (urban) and Norfolk (rural).
Mehreen Somro   +6 more
wiley   +1 more source

Financial service composition with various privacy levels in multiple cloud environment

open access: yesJournal of Cloud Computing: Advances, Systems and Applications
This paper focuses on the financial service composition problem in a multi-cloud environment while ensuring varying levels of privacy. In today's digital era, financial institutions increasingly rely on cloud computing to deliver a wide range of services,
Xianmei Hua   +3 more
doaj   +1 more source

Genetic Privacy: The Potential for Genetic Discrimination in Insurance

open access: yesVictoria University of Wellington Law Review, 1999
The threat of modern genetics has been perceived as coming, rather dramatically, from genetic engineering, but the less flashy field of medical genetic testing poses significant and immediate issues. This article discusses the potential for breach of confidentiality or invasion of privacy through the acquisition of information, the disclosure of ...
openaire   +3 more sources

High Health Care Utilization Preceding Diagnosis With Juvenile Idiopathic Arthritis

open access: yesArthritis Care &Research, EarlyView.
Objective Although early diagnosis improves long‐term outcomes, patients with juvenile idiopathic arthritis (JIA) often experience prolonged, circuitous paths to diagnosis. To inform diagnostic improvement, we sought to characterize health care utilization in the year preceding diagnosis. Methods We identified 10,021 patients with an incident diagnosis
Anna Costello   +5 more
wiley   +1 more source

Cumulative Social Disadvantage and Disease Activity in Juvenile Idiopathic Arthritis: A Childhood Arthritis and Rheumatology Research Alliance Registry Study

open access: yesArthritis Care &Research, EarlyView.
Objective Social determinants of health (SDOH) contribute to juvenile idiopathic arthritis (JIA) disparities, but most studies have assessed SDOH independently rather than cumulatively across individual, family, and neighborhood levels. Using a socioecological framework, we investigated the relationship among cumulative social disadvantage ...
William Daniel Soulsby   +448 more
wiley   +1 more source

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