Results 21 to 30 of about 156,693 (214)
Patient-powered research networks: building capacity for conducting patient-centered clinical outcomes research. [PDF]
, 2014 The Patient-Centered Outcomes Research Institute (PCORI) recently launched PCORnet to establish a single inter-operable multicenter data research network that will support observational research and randomized clinical trials.
Andrew A. Nierenberg +24 more
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A description of the ABCD organizational structure and communication framework
Developmental Cognitive Neuroscience, 2018 The Adolescent Brain Cognitive Development (ABCD) study is designed to be the largest study of brain development and child health in the United States, performing comprehensive assessments of 11,500 children repeatedly for 10 years.
Allison M. Auchter +7 more
doaj +1 more source
The Making of an ORCID Consortium: Launching the US Government ORCID Consortium
, 2021 In late 2018, the US Department of Energy (DOE) Office of Scientific and Technical Information (OSTI) embarked on the adventure of developing a new ORCID consortium. There were many factors and decision points to consider – what organizations could join the consortium, how the consortium should operate, staffing resources, consortium fee models, and ...
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StemBANCC: Governing Access to Material and Data in a Large Stem Cell Research Consortium [PDF]
Stem Cell Reviews and Reports, 2015 This paper makes the case for implementing an internal governance framework for sharing materials and data in stem cell research consortia. A governance framework can facilitate a transparent and accountable system while building trust among partner institutions. However, avoiding excessive bureaucracy is essential.
Morrison +9 more
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Scientific Reports, 2022 Changes in the online car-hailing industry have brought new challenges to government governance. Effectively enhancing governance efficiency has become the focus of academic research.
Xiaoyu Wan, Jia Liu, Siqi Zhao
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Wellcome Open Research, 2022 Background: Global efforts to strengthen health research capacity in low- and middle-income countries (LMICs) have intensified in the past few decades, and these efforts are often implemented by consortia.
Nadia Tagoe +3 more
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The internet and public–private governance in the European Union [PDF]
, 2006 The EU plays a significant role in public policy aspects of Internet governance, having created in the late 1990s the dot eu Internet Top Level Domain (TLD). This enables users to register names under a European online address label.
Christou, George, Simpson, Seamus
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The Impact of Large-scale Employee Share Ownership Plans on Labour Productivity: The Case of Eircom [PDF]
, 2012 Large-scale Employee Share Ownership Plans (ESOPs) have been a distinctive characteristic of Irish public enterprise reform, with shareholdings of 14.9 per cent being allocated to employees as part of firm restructuring and privatisation programmes. This
McCarthy, Dermot, Palcic, Donal
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Consent, ethics and genetic biobanks: the case of the Athlome project
BMC Genomics, 2017 This article provides a critical overview of the ethics and governance of genetic biobank research, using the Athlome Consortium as a large scale instance of collaborative sports genetic biobanking.
Rachel Thompson, Michael J. McNamee
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HeliyonOur article deals with the governance of responsible research and innovation (RRI) and aims to set out a first psychologically grounded decision-theoretic method for the governance of RRI.
Harold Paredes-Frigolett +3 more
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