Results 91 to 100 of about 204,465 (305)

Assessing governmental policies' impact through prosperity indicators and open data

, 2022
S.70-74The aim of this paper is to provide an overview of (the theory and practice of) prosperity indicators for assessing the impact of governmental policies and the data sources associated to their calculation, touching also on the broad theme of Open ...
Glikman, Yuri, Koutras, Costas, Koussouris, Sotirios, Markaki, Ourania, Kokkinakos, Panagiotis, Trutnev, Dmitrii   +5 more
core   +1 more source

Quality in governmental data retrieval: a study of public policy data on the internet

, 2020
The use of the Internet to access government data is growing and presents possibilities for citizens to monitor the implementation of public policies. In the context of public policies for the agriculture sector, it is highlighted that these constitute a major factor in social and economic development, especially for small producers, who, in turn, need
Moreira, Fabio Mosso, Santos Bisi, Pedro Henrique, Botega, Leonardo Castro, Santarem Segundo, Jose Eduardo, Goncalves Sant'Ana, Ricardo Cesar   +4 more
openaire   +2 more sources

Compound Heterozygote Friedreich Ataxia Patients With Covert Proximal FXN Gene Deletions

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT We present Friedreich ataxia patients with frataxin gene deletions. Data and records were collected at the Children's Hospital of Philadelphia from patients enrolled in the FACOMS natural history study. Patients with proximal deletions initially diagnosed with only one GAA expanded allele had more severe disease than their homozygous expansion
Michael P. Lazaropoulos, Morgan C. Devore, Christina Lam, Courtney Park, Sanjay Bidichandani, David R. Lynch   +5 more
wiley   +1 more source

Clinical Impact of NOTCH3 Variant Location After First Stroke in CADASIL

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Despite its monogenic origin, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy exhibits marked variability in clinical expression and severity. Variants in the NOTCH3 gene, within epidermal growth factor‐like repeat domains 1–6 or 7–34, are known to influence disease onset, but their impact ...
Léa Aguilhon, Hugues Chabriat, Dominique Hervé, Stéphanie Guey, Sophie Tezenas Du Montcel, Juliette Ortholand   +5 more
wiley   +1 more source

Ethical management systems for not-for-profit organizations [PDF]

Non-governmental organizations (NGOs) have proven to be excellent instruments for promoting a wide range of causes. But they need to adhere to strict ethical principles, which usually are embodied in voluntary codes and standards. This paper analyzes one
Argandoña, Antonio
core  

Big Data in Governmental Transparency and Accountability

American Journal of Data Science and Analysis
Big data analytics is transforming governmental operations by enhancing transparency, accountability, and public trust. Through the use of open data initiatives, artificial intelligence (AI), and machine learning (ML), governments can analyze vast amounts of data to detect corruption, improve decision-making, and ensure policy compliance.
openaire   +1 more source

Onasemnogene Abeparvovec in Patients With SMA: Interim Results of the RESTORE Registry in Japan

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective There are limited real‐world data regarding the safety and effectiveness of onasemnogene abeparvovec (OA; Zolgensma) infusion, a one‐time gene replacement therapy, for Japanese patients with spinal muscular atrophy (SMA). We aimed to improve understanding of the real‐world outcomes for OA in Japan.
Kayoko Saito, Kamal Benguerba, Ken Tsuchida, Kazushige Yazawa, Isao Tsumiyama, Hiromitsu Kayama, Sandra P. Reyna, Farid Khan, Richard S. Finkel   +8 more
wiley   +1 more source

Does Utilitarian and Hedonic value mediate the link between University Brand Equity and Students’ Satisfaction? “An Applied Study on the Egyptian Universities” [PDF]

Mağallaẗ Rāyaẗ Al-Dawliyyaẗ Lil ʿulūm Al-Tiğāriyyaẗ
This research has been tackle, within a systematic framework, the subject of university brand equity effect on student satisfaction: utilitarian and hedonic values as mediating variables. It generally aims to explore the significant effect of university
م.م. رهام جمال الدين محمد, أ.د.أمجد حامد عمارة   +1 more
doaj   +1 more source

Subclinical Optic Nerve Involvement in Radiologically Isolated Syndrome: Multimodal Detection and Diagnostic Impact

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objectives We aimed to determine the frequency of subclinical optic nerve (ON) lesions using MRI, optical coherence tomography (OCT), and visual evoked potentials (VEP) in radiologically isolated syndrome (RIS), and to assess their diagnostic and prognostic significance.
Christine Lebrun‐Frenay, Cassandre Landes‐Château, Lydiane Mondot, Mikael Cohen, Margherita Popolo, Jérôme de Seze, Bertrand Bourre, Françoise Durand‐Dubief, Olivier Casez, Orhun H. Kantarci, Aksel Siva, Stephanie Baillif, Darin T. Okuda, Letizia Leocani   +13 more
wiley   +1 more source

Government cloud computing and the policies of data sovereignty [PDF]

Government cloud services are a new development at the intersection of electronic government and cloud computing which holds the promise of rendering government service delivery more effective and efficient.
Irion, Kristina
core