Results 71 to 80 of about 18,669 (233)

Ageing patients with severe haemophilia: complications and comorbidities

Zdravniški Vestnik, 2012
Background: Advances in the treatment of haemophilia patients have led to a significant increase in life expectancy. Diseases and conditions developing now were not previously encountered in this population group as patients were dying younger ...
Saša Anžej Doma, Irena Preložnik Zupan, Dušan Andoljšek, Majda Benedik Dolničar   +3 more
doaj  

Lack of Inhibitor Development in Previously Treated People With Haemophilia Switching Factor Products—Final Results of Athn 2: Factor Switching Study

Haemophilia, EarlyView.
Erin Cockrell, Martin Chandler, Tammuella Chrisentery‐Singleton, Stacy E. Croteau, Nabil Daoud, Michael F. Guerrera, M. Nikki Hirsh, Janna Journeycake, Roshni Kulkarni, Susan U. Lattimore, Catherine McGuinn, Margaret Ragni, Michael Recht, Ulrike M. Reiss, Robert Sidonio Jr., Cliffford M. Takemoto, Michael Tarantino, Annette von Drygalski, Ellis J. Neufeld   +18 more
wiley   +1 more source

Use of an Oral Health‐Related Quality of Life Instrument to Measure Unmet Dental Care Needs in Adults With Inherited Bleeding Disorders

Haemophilia, EarlyView.
ABSTRACT Introduction Preventive dental care is vital for individuals with bleeding disorders to reduce the need for potentially invasive procedures. Although dental care is a mandated function of U.S. federally supported hemophilia treatment centers (HTCs), access to dental care is widely variable.
Miguel A. Escobar, Megan M. Ullman, Joanna Larson, Michael M. Chan, Marisela Trujillo   +4 more
wiley   +1 more source

RENAL ALLOGENEIC TRANSPLANTATION IN PATIENT WITH HAEMOPHILIA B

Вестник трансплантологии и искусственных органов, 2014
We report the case of successful renal allogeneic transplantation and treatment in a 56-year-old patient with haemophilia B at Hematology Research Center. He has received replacement therapy by factor IX since 2010.
N. V. Purlo, R. B. Achmetshin, A. J. Bulanov, E. A. Likhacheva, L. S. Birjukova   +4 more
doaj   +1 more source

Haemophilia B is clinically less severe than haemophilia A: further evidence.

Blood transfusion = Trasfusione del sangue, 2016
Preview Haemophilia A and B are rare bleeding disorders caused by mutations in the genes encoding coagulation factor VIII (FVIII) and factor IX (FIX)1. The prevalence of haemophilia A is 1 in 5,000 males in the general population, while that of haemophilia B is 1 in 40,0001,2.
Franchini, Massimo, Mannucci, Pier Mannuccio   +1 more
openaire   +2 more sources

Physical Activity and Sedentary Behaviour in Children With Haemophilia

Haemophilia, EarlyView.
ABSTRACT Introduction Physical activity (PA) is vital in child development, while inactivity remains a leading contributor to global mortality. Therapeutic advances have enabled greater PA in boys with haemophilia (BwH), yet robust UK data on objectively measured PA and sedentary behaviour (SB) across severities are limited.
Melanie Bladen, Lucy Alderson, Eleanor Main, Mario Cortina‐Borja   +3 more
wiley   +1 more source

Haemophilia Management in Natural Disasters—From Field to Consensus Report

Haemophilia, EarlyView.
ABSTRACT Objective The earthquake in Türkiye had a profound impact on both haemophilia patients and healthcare services in the region. This experience highlighted the need for an effective action plan for patients with bleeding disorders in extraordinary situations.
Ahmet Muzaffer Demir, Selin Aytaç, Serap Karaman, Can Acıpayam, Muhlis Cem Ar, Bülent Antmen, Adalet Meral Güneş, Kaan Kavaklı, Hasan Kaya, Vahap Okan, Sayime Başak Koç Şenol, Ayşegül Ünüvar, Osman BülentZülfikar, Merve Altunbaş   +13 more
wiley   +1 more source

Smartphone‐Based Teledentistry to Support Clinical Triage and Risk‐Informed Dental Care in Patients With Inherited Bleeding and Haemoglobin Disorders: A Cross‐Sectional Diagnostic Agreement Study

Haemophilia, EarlyView.
ABSTRACT Introduction Patients with inherited bleeding and haemoglobin disorders face barriers to accessing timely dental care, increasing the risk of untreated oral disease and complications related to invasive procedures. Aim To evaluate the agreement between smartphone‐based asynchronous teledentistry and face‐to‐face examination for oral conditions,
Victor Cordeiro da Silva, Carolina Mendes Frusca do Monte, Leandro Tavares da Silva, Gabriela Silva Almeida, Claudia Santos Lorenzato, José Vitor Nogara Borges de Menezes, Fabian Calixto Fraiz, Cassius Carvalho Torres‐Pereira   +7 more
wiley   +1 more source

Symptoms, Diagnosis, and Treatment for Women and Girls With Hemophilia: A Narrative Review

Haemophilia, EarlyView.
ABSTRACT Introduction Hemophilia is an X‐linked bleeding disorder previously thought to present only in men. This sentiment is rapidly changing as the information around women and girls’ experiences of bleeding symptoms has evolved, sparking intense discussion among researchers, clinicians, patients, and patient advocates regarding appropriate ...
Sam Hirniak, Carla Samuel, Faria Aditi, Haya Abu Ghazaleh, Dawn Rotellini, Menaka Pai, Andrea Edginton   +6 more
wiley   +1 more source

Patient‐Reported Outcome Measures and Clinical Performance in Hemophilia: Implications for Person‐Centered Care

Haemophilia, EarlyView.
ABSTRACT Objectives To examine the association between patient‐reported outcome measures (PROMs) and objective measures of clinical performance in children, adolescents, and adults with haemophilia, highlighting their implications for person‐centered care.
Tatyane Oliveira Rebouças Brito, Luiz Ivando Pires Ferreira Filho, Luany Elvira Mesquita Carvalho, Francisco Josimar Girão Júnior, Pedro Everson Alexandre de Aquino, Chiara Bezerra Barreira, Lucilane Maria Sales da Silva   +6 more
wiley   +1 more source